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Esophageal Involvement In Scleroderma


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#1 janey

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Posted 13 November 2006 - 04:20 AM

Esophageal disease in scleroderma. Motility studies in patients with scleroderma show reduced-amplitude or absent peristaltic contractions in the distal two-thirds of the esophagus and normal or decreased lower esophageal sphincter pressure. PubMed. J Clin Gastroenterol. 2006 Oct;40(9):769-75. (Also see: Esophagus Involvement)

Esophageal Involvement in Scleroderma: Gastroesophageal Reflux, the Common Problem. Esophageal involvement is frequent in SSc patients. Appropriate treatment of esophageal involvement ameliorates symptoms and prevents complications. PubMed. Semin Arthritis rheumatologist. 2006 Oct 10. (Also see: Reflux, Heartburn, GERD)

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Janey Willis
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#2 Dee

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Posted 13 November 2006 - 05:22 PM

Thank you, Janey, for these articles. They are "right on." I do not have motility in the lower two-thirds of my esophagus. My rheumatologist fully understands, but I'm not too sure my gastro understands sclero. I've printed these articles to give him.

I surely appreciate your helpful research!

Warm wishes,

Dee

#3 barefut

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Posted 13 November 2006 - 07:18 PM

Yes, thank you for those.

I have a question.

At what point should I see a gastroenterologist? I know this is a question for my rheumatologist but won't see her again til Jan.

I take a Prilosec in the morning and one at night. Most of the time now I can sleep lying down - as long as I go to bed with a totally empty stomach - not even water.

My esophagus will serenade me after I take my meds with water and lay down. It sings me a little lullaby with soft gurgling sounds and a steady beat.

I have had to give up chocolate, all spicy foods, coffee of course and now even my decaf is starting to bother me - too much acid I guess.

I can still eat a 'regular' sized meal - healthy portions but I have to eat slower and boy do I know it if I don't.

I've been woken in the night with nasty reflux three times, the last time a few days ago.

I have occasional hoarse voice - I have to clear my throat every time I speak some days. And I've had a dry cough lately.

That's a pretty good list. Maybe I'll just copy it and take it to my doctor.

Any replies appreciated.

Thanks,
Barefut

#4 janey

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Posted 14 November 2006 - 04:21 AM

Barefut,
Don't you just hate that nighttime reflux!?!?!?! Even though I too go to bed on an empty stomach (stop 3 hours before lying down), I still sleep elevated. I hate it so much that I don't want to chance it. I've only had it twice in the past 6 months.

Personally, with as much reflux as you are still having and with a hoarse voice, I'd go see a GI now. When was the last time you had an endoscopy? My brother starting getting hoarse and eventually the reflux burned his vocal chords. That hurt! Better to be safe than sorry. so if it's been a while since peeking down your throat, it might be time for another peek. Can you call you rheumatologist and ask about it prior to January? See what he says.

Big Hugs,
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#5 barefut

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Posted 14 November 2006 - 05:28 AM

Thanks Janey,

I had a bronchioscope, but other than that nobody has looked down there for anything else.

What are endoscopes like? Similar to the bronchioscope I imagine?

I nearly ruined my vocal chords screaming at the Seahawks last Sunday :lol:

Yes, I will call rheumatologist and ask.

Night time reflux is the nastiest thing I have ever had the pleasure of experiencing!

#6 debimum

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Posted 21 November 2006 - 04:25 AM

Hi, I am new on here. I had been on the lupus forum at healing well. But my family doctor thought last year already I have scleroderma. But have not had any tests to prove it, which no one has told me, and I have asked, what tests are done to diagnosis scleroderma.
I have a dilated esaphogus which was not found by the gastro doctor. The new pulmonary doctor found it last week while looking at my chest cat scan. I started reading up on scleroderma and found that a dilated esaphogus is a symptoms along with acid reflux.

So do can you tell me what tests are done to diagnosis this? I did start reading the site links posted. But it's nice to hear from people who actually go through this all.

deb

#7 WestCoast1

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Posted 21 November 2006 - 05:10 AM

Welcome Deb,
I am sure some others will chime in as well, but as far as tests, I do believe that there are a few that can give your Dr. a clue as to whats going on...or at least a direction in which to take your treatment.

One is the ANA, the pattern is more specific for different autoimmune diseases...then there is the SCL-70 that is specific for a certain kind of scleroderma. You may want to look on the SCLERO (ISN) under antibodies....there are clues in blood work for Sjogrens, lupus, sclero, thyroyoditis and many others.
*WestCoast*

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