Jump to content


Congrats to Margaret, Platinum Member with 1,000 posts and 10 Years of Forums Membership!


Photo

Great News


  • Please log in to reply
12 replies to this topic

#1 truman

truman

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 625 posts
  • Location:NJ

Posted 31 October 2007 - 11:34 AM

I went to the new rheumatologist today and this one did an actual physical examination. He also agrees, that it is limited to the arm and possibly both ankles but no further involvement. He is prescribing a low dose of a cancer medication which he says will, in time, reverse the damage of tightness on the right arm and soften the skin. He has also prescribed a blood thinner for the Raynauds..........a light at the end of the tunnel. Worse part of today was that my laptop crashed and I had a new hard drive put in. When returned, I cannot access the internet for remote access to my office to work, because my son, as administrator of our system, has the password. Now what? He'll never email the password becaused he fled in June.
Tru

It is what it is...........

#2 janey

janey

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 2,118 posts
  • Location:New Mexico

Posted 31 October 2007 - 05:11 PM

Tru,
It's good that you have found a good rheumatologist! That's so important. What's the cancer drug and blood thinner that he prescribed? Many of the immunosuppressants that are used for autoimmune are cancer drugs but at much lower dosage. I was on methotrexate and it did soften the skin on my hands (the only hardening I've had). I hope whatever drug you take that it works really well for you.

Hope our computer problems get solved. What a bummer!

Big Hugs,
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#3 Kamlesh

Kamlesh

    Senior Silver Member

  • Members
  • PipPipPipPipPip
  • 315 posts
  • Location:Dublin, CA

Posted 31 October 2007 - 05:42 PM

Tru,

I am really happy for you
I know you can do it.
Just focus on one goal to take care of yourself..


Kamlesh
Kind regards,

Kamlesh


#4 bookworm

bookworm

    Silver Member

  • Members
  • PipPipPipPip
  • 292 posts
  • Location:Texas

Posted 31 October 2007 - 07:21 PM

Tru,
I'm so glad you have found a doctor who seems to know something about sclero! I hope the drugs you've started really help you get better.
How is your toe? What did the doctor say about the toe?

Mary in Texas

#5 epasen

epasen

    Silver Member

  • Members
  • PipPipPipPip
  • 233 posts
  • Location:Lohja, Finland

Posted 01 November 2007 - 01:16 AM

Truman,
great news :) I hope you'll computer problems will get sovled.
Emmi

#6 truman

truman

    Gold Member

  • Topic Starter
  • Members
  • PipPipPipPipPipPip
  • 625 posts
  • Location:NJ

Posted 01 November 2007 - 08:49 AM

I'm going to a wound care center Monday. I made the appointment on my own. My doctor seems to think it unnecessary, and the rheumatologist had no opinion stated, but I want this to be done and over with.

I am planned to go back to work week after next, and I want to be able to "walk" the hallways instead of "hobbling".
Tru

It is what it is...........

#7 Sweet

Sweet

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,892 posts

Posted 01 November 2007 - 03:53 PM

Oh Tru, that is wonderful!
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#8 LisaBulman

LisaBulman

    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,135 posts
  • Location:Massachusetts

Posted 02 November 2007 - 02:48 AM

Tru,
I am so glad you have found a new doctor and you are happy. Please let us know what happens at the wound clinic.

Hugs,
Lisa
Lisa Bulman
(Retired) ISN/SCTC List Coordinator
(Retired) ISN Sclero Forums Assistant Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Fundraiser
International Scleroderma Network (ISN)

#9 truman

truman

    Gold Member

  • Topic Starter
  • Members
  • PipPipPipPipPipPip
  • 625 posts
  • Location:NJ

Posted 02 November 2007 - 01:36 PM

Janey:

The cancer drug is Methotrexate and the blood thinner is Plavix. The only complaint is that they tape these mini warning labels over the prescription bottle, that even with glasses, I can't read. I'm just going on a wing that those are just "standard" warnings. <_<
Tru

It is what it is...........

#10 truman

truman

    Gold Member

  • Topic Starter
  • Members
  • PipPipPipPipPipPip
  • 625 posts
  • Location:NJ

Posted 02 November 2007 - 01:38 PM

Mary:

I'm going to the wound care center on Monday. I took it upon myself to get this done once and for all. I will let you know Monday, the results.
Tru

It is what it is...........

#11 truman

truman

    Gold Member

  • Topic Starter
  • Members
  • PipPipPipPipPipPip
  • 625 posts
  • Location:NJ

Posted 02 November 2007 - 01:43 PM

Thank you Lisa and Sweet.........

I got a card from my office today with all the signatures and good wishes next to each. I know these are generally a standard practice in offices, but it did indeed bring me to tears and I took those signatures and wishes truly to heart. It was so needed today, even on the upswing. It teaches me that in the future, I will take complete notice of situations of people I know and people I meet, and will view and treat people based not only who they are, but what they may need. Not that I haven't in the past, but it's totally reinforced for the future.
Tru

It is what it is...........

#12 jefa

jefa

    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,325 posts
  • Location:Scotland

Posted 02 November 2007 - 11:14 PM

Hi, Tru. Since you said you can't read the warning labels, I have included links which should help. Anyone taking methotrexate should read through all of the information carefully.

METHOTREXATE

PLAVIX (Clopidogrel)
Warm wishes,
Jefa

Carrie Maddoux
(Retired)ISN Sclero Forums Support Specialist
(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

#13 debonair susie

debonair susie

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,638 posts
  • Location:(United States)

Posted 03 November 2007 - 06:35 AM

It's so great, that the card was so timely, Tru... I understand exactly what you are saying :rolleyes:

Big Hugs, Susie
Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)