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Please Tell Me I'm Not Alone


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#1 Gizelle

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Posted 02 November 2007 - 02:07 PM

I have very sore hips. I have a hard time even touching them. I've been going to physiotherapy for a long time, but no relief. The pain is actually worse in my buttocks and down the back of my legs, to the back of my knees. My muscles are very tight everywhere. My general practitioner said if the physio didn't work I can go back to my Rumatologist and get cortisone in both hips. Have any of you had this problem. I'm so sick and tired of pain. I take perocet and pain medication. It only helps me cope a little. Gizelle

#2 jefa

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Posted 02 November 2007 - 11:21 PM

Have you had an MRI? I am not a doctor, but it seems like this may be referred pain from lumbar vertebrae compression. My rheumatologist had mine checked out with an MRI thinking it was the cause of sensations in my legs. My sensations were from skin changes, but at least I got a good picture of my lower back.
Warm wishes,
Jefa

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#3 Sam

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Posted 03 November 2007 - 05:50 AM

oh yes I have gone through this myself. So your not laone. I think an MRI is a good idea too. I hope your pain subsides real soon. sam
Sam

#4 debonair susie

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Posted 03 November 2007 - 06:33 AM

I'm having the hip pain too. The cortizone shot only helped for no more than three weeks. However, the good thing is that the injection was into the tissue, not the joint or bone, which saves on bone density!
I'm also inclined to believe that I need to get a memory foam for my mattress... I think it may be the culprit, in my case :blink:

Susie
Special Hugs,

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#5 Sweet

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Posted 03 November 2007 - 07:14 AM

Hi,

You are not alone. I suffer from that often. The way you are describing it sounds like you may have sciatica. It can be very painful. Take a look at the link I gave you and see if this sounds like you. Good thing is, the treatment is fairly easy and you get relief quickly.
Warm and gentle hugs,

Pamela
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#6 rlbrussell

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Posted 03 November 2007 - 04:13 PM

I am so sorry you are in so much pain. My hips have given me a lot of trouble in the past. I had several days where they were so painful that they were non-functional and they were very sore to the touch. One thing that helped with sleep was a memory foam toper for our bed. I actually also bought a twin size and I take it with me any time I travel. I also have small memory foam pillows I use to prop up my arms as the side of my elbows get really sore too. A lot of my pain has settled down with the use of Prednisone for my myositis. I am not sure how well cortisone shots will work.
Rosa
Diffuse Sclero
dx Jan 2006

#7 relicmom1

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Posted 04 November 2007 - 06:39 AM

My dear, you are SO NOT alone in this. I have terrible hip pain. My right is worse than my left. At it's worst, it goes down my leg to the knee. It feels like the bone and joints are on fire. I have had numerous cortisone injections and they do help for a while, but it always comes back. I was taking ibuprofen, but my gastro made me stop that because I have watermelon stomach and the risk of a bleed was too much. She is concerned about the continual cortisone injections. The last visit she put me on a lidocaine patch. I can wear one for 12 hours then I have to take it off and wait 12 hours and put another one on. I must say, they have really helped me. I can wear up to 3 at one time. She told me if I needed to use one on any other area I can, as long as I don't wear more than 3 at a time. I use 2 on my hips. She said you can also cut them (no smaller than in 3 pieces) to use on small areas. The downside of these patches is that they are expensive (aren't all prescriptions??) The cost for 90 of them is $800.00. Fortunatlely my insurance covers them and I only have a copay. But they do work for me. I hope this helps you and everyone else.
Peace :)
Barbara aka relicmom1

#8 Gizelle

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Posted 04 November 2007 - 02:21 PM

Thank you all for your replies and ideas. I've had tests previously and they were fine. The MRI did show some buldging disc , but the doctor said that happens to everyone, my neurologist that is. I'm seeing my general practitioner on Monday and she is sending me back to my Rumatologist for cortozone shots. The doctor said it wasn't siatica, but they did try every nerve pain meds known to man and no relief. Same as usual wait and see, in the meanwhile suffer great.
Thanks everyone, Gizelle

#9 Gizelle

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Posted 05 November 2007 - 01:00 PM

I saw my general practitioner today and she said the pain in my buttocks and legs, is Sciatica. She is sending me back to my rumatologist. I don't know what he'll do, but like she said their are meds for Scleroderma. I'll let you all know more when I see him. Thanks, Gzielle

#10 Sweet

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Posted 05 November 2007 - 01:01 PM

Aha! Just as I suspected. :) Hope you will now get some relief.
Warm and gentle hugs,

Pamela
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#11 sueinvabeach

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Posted 06 November 2007 - 08:31 PM

Hi, have the same hip pain, outrageously painful. Horrible to turn over in the bed at night. The cortisone shot lasted me about 3 weeks also, Rhemy called it Bursitis. Now wants me to go for Physical Therapy.

Hope you feel better soon!

:-)

Sue
Asthma 1998, Diabetes 2007, Morphea 2007, Fibromyalgia 2007.