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Thursday, I Got Results Back


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#1 debonair susie

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Posted 03 November 2007 - 09:59 AM

This past little while has been so busy... the only relief I really get is posting here and trying to get a better insight where my mom is concerned (hubby and I are caregivers to her).

Prior to our moving back, I at least had some time to re-group. Though I dearly love being nearer to family, etc, plus all we've had to do (more hubby than me) to get things more liveable in Mom's basement... I really do miss the more quiet times.

Anyway, I got my results back. The stress ECHO was normal, which I believe I already let you know. The thyroid fine needle aspiration: consistent with benign thyroid nodule, which I had felt anyway. My concern.. and I've told all doctors all along... the size has become an ongoing problem, in that swallowing/choking is not something that makes for a comfortable situation. So, she (int) has referred me to an endo... however, the app't isn't until the 3rd week in Jan.
I'm not fussy about taking meds, in that it wouldn't solve the size issue, other than to keep it from growing larger. The only other alternative (and in my rheumatologist's mind, this wouldn't be considered)... "life-threatening", I'm quite sure. I just view this as yet another stall in the process.

The results for sprue weren't in yet, so we'll see. In the meantime, she gave me a script for Raglan. The symptoms are problematic, in that (as many of you know first-hand :blink: ),traveling too very far from a restroom... just isn't advisable , therefore it really effects one's ability to vwenture very far. She has also advised me to "not eat this, not do that"... the same thing, I'm sure , that those with these symptoms have heard. I know we don't have to like it, but it sure is exasperating, isn't it?


Hubby has been real bitey this week... all of the going from test to test, dr to dr... I believe I'll go on my own from now on. Our two youngest sons each have things going on in their lives. Though its difficult, I am aware that the outcomes are out of our control. I've let hubby know that we give all of the love and support... advise when we are asked, but beyond, can only hope for the best. I remind him that niehter of us, though human, can get stressed, or it has a negative effect on our health. We've had alot of dramatic changes, most for the better, but still changes and we're just beginning to feel the effects of our move.

I really do apologize for sounding off today... but I'm afraid I'm just going to have to find a way to juggle things and prioritize a little better than I have been... whatcha think?
In the meantime, thanks bunches for "being there"...
Now, I had better go get my mother up, as we're to leave in about an hour... wish me luck :P

Hope all of you have a good weekend!
Hugs, Susie
Special Hugs,

Susie Kraft
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#2 MicheleM

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Posted 03 November 2007 - 01:44 PM

Oh Susie. I know where you're coming from & feel your pain. I just wish it were all so much easier for you. It's so very hard sometimes just keeping our heads above water - feeling like we're just treading water & going no where fast. Have some patience with yourself, I know easier said than done.

I understand the kid part too. Both of mine are grown & one moved back home - not the best situation for either of us. My husband is impervious to the whole mother/daughter thing. He's also a bit tired of the illness & the strings that are attached to it. Just when I think he's got it I find I'm wrong again. So don't feel alone there either.

The meds are sometimes hard to adjust, but think about it this way - maybe you'll only need them to readjust your system. I took reglan & had no problems with it. I have since changed my diet & haven't needed it in years. So change is possible for all of us in all areas!

I'm glad to have been here for you. We all need each other and that's why were here! I've moved many times and had to resituate myself & children - it isn't ever easy even when you move into an area you're familiar with. Change is change & please bear that in mind!

Give yourself some quiet time each day, even if it's only 5 or 10 minutes letting the sun shine on your face. You deserve it & will be better for doing something, no matter how small, for yourself!

Hope a small smile crosses your face today!
Soft hugs your way,

Michele

#3 jefa

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Posted 03 November 2007 - 09:02 PM

Hi, Susie. Thanks for filling us in on your results so far. The waiting can be difficult. Sorry to hear this is getting to everyone in the family. Seems like you all have more on your plate than most what with the caregiver situation. It must be difficult. You are right on about the kids. You can only do the best you can and continue to offer love and support. Once they are on their own, though, they are going to make their own choices. With your mom to worry about and your own illness, you need to relax a bit and let them get on with it. I suggest that you and your husband try and carve out some quiet time with each other in all of this. Maybe a date. :)
Warm wishes,
Jefa

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#4 debonair susie

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Posted 04 November 2007 - 08:43 AM

Dear Michele, I thank you so much... You hit the nail right on the head! You're insight is very reassuring and very much appreciated. As with the illnesses with which we live everyday, it's also very comforting to know of the support you have so graciously offered up.

Your awareness of your husband's feelings about all that you mentioned is uncanny... the mold fits for mine too!

I'm glad to read that you've had success over time, with meds and later diet change... I will work on the patience thing :)

I find that as caregiver to my mother, it is very draining... even though it's not at a stage (yet) where she requires "hands-on" care. However, over time, I'm finding I require more sleep, due to the physical drain... I have more obligations here than I had with just taking care of hubby and myself!
My sister-in-law is always standing by to help me in any way, but she also has health issues... sarcoidosis and thyroid cancer survivor. So, she and I work well in tandem so it doesn't drain all of our resources, most of the time.

You did bring a smile across my face... thank you for that too! Also, thanks just for "being there" at this time!

Big Hugs to you,
Susie
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#5 debonair susie

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Posted 04 November 2007 - 08:48 AM

jefa, thanks so much for your comforting message... you know exactly what I'm talking about!

As for my hubby and carving out some time, I'm sure he would agree completely about that :rolleyes:

At any rate, I'm hoping this next week runs a bit smoother.

Special Hugs, Susie
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Susie Kraft
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#6 MicheleM

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Posted 05 November 2007 - 03:01 AM

Hey Susie - Change is just hard to accomodate. I can tell you're trying really hard, but try hard for yourself too. You can't give what you don't have! I keep learning this lesson the hard way, but you've helped me because by posting I remind myself!!!! Maybe you're on the down side of up!!! Hope today was a good one for you!
Soft hugs your way,

Michele

#7 debonair susie

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Posted 05 November 2007 - 07:32 AM

Thanks Michele.

I'm going to pace myself better, this week.

Since my diagnoses, my hubby has "nudged" me to do things. I've never been the sort who sits and does nothing, which has made it tough for me to transition as I should be... but I'm learning :P

The irony, is that he has COPD, with chronic bronchitis and an asthma component, as well as prostate cancer... plus he's 13 1/2 years older than me! I really believe that if he gets me "to do", he'll keep doing, too. However, he's never let any grass grow under his feet, either! So... I get after him... to slow down, while trying to pace myself too.

I wish you a great week, Michele and thanks again, for your continuing support :rolleyes:

Big Hugs, Susie
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Susie Kraft
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