Jump to content


Congrats to Margaret, Platinum Member with 1,000 posts and 10 Years of Forums Membership!


Photo

Combatting Fatigue


  • Please log in to reply
25 replies to this topic

#21 debonair susie

debonair susie

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,638 posts
  • Location:(United States)

Posted 06 November 2007 - 07:40 AM

Hi Tammy and all who have posted since I last did.
Lots of great suggestions for all of us who are having the issues described.

I sure like what Janey has suggested that works for her. I'm going to try that too, Janey :rolleyes:

I don't know how you do it, being on your feet... a grueling schedule for most, but explains alot!

You are a real trooper, Tammy... is there any way you could sit during part of your work day? I realize the demand there must be on all of you working in the pharmacy.

I agree with the suggestion by Jensue, Janey and others who suggested you try eating a little bit several times a day. It's so much easier on the digestion.
(I should practice the same :P )

Take care, Tammy et al!
Special Hugs, Susie
Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#22 Peggy

Peggy

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 635 posts
  • Location:Minnesota

Posted 07 November 2007 - 02:34 PM

Boy can I relate. I have just spent the entire day on the couch having accomplished nothing but had no choice. I have in the last 3 days fallen asleep while I was talking with people - talk about embarrassing! I have decided I can't fight it though - which is the hardest thing for me to do as I am usually such a work horse and a pefectionist on top of it.

Everything I'm reading though tells me that it's the sclero disease. What I want to know is this the way it's going to be? I can't imagine having this disease for these poor people that have small children. My husband has been very good in realizing that I can't do much and doesn't require big meals and is OK with cereal and toast if necessary.

So you and I just need to realize that we have to rest when our body is telling us that's what it needs and cherish the times when we feel good.

Stay warm!

Peggy

#23 Tammy

Tammy

    Senior Bronze Member

  • Topic Starter
  • Members
  • PipPipPip
  • 67 posts

Posted 06 December 2007 - 03:24 AM

I wanted to wait a while before I posted another reply to this topic because I have started a B-complex injection and wanted to give it a bit to see if it helped. I have been using 2cc IM weekly for just over a month now and am still taking an oral B50 complex daily...I am still exhausted!! How often do you guys use the injection?


Thanks & Hugs
Tammy

#24 KarenL

KarenL

    Silver Member

  • Members
  • PipPipPipPip
  • 213 posts

Posted 06 December 2007 - 12:17 PM

I sometimes feel like I'm drugged, I drop off so easily, while watching TV, reading, sometimes while driving I have to pull over. I started taking a sublingual B-12 and it's helped a bit.

Another scary thought, but everyone should keep it in mind is coronary artery disease. For women especially, one of the first symptoms of a blockage is severe tiredness. The month before my first heart attack, I slept like crazy. It happened again and again. (I've had three and the doctors think my arteries are compromised in part because of the scleroderma) My cholesterol is low, I'm on plavix and aspirin and yet I get blockages. Just be aware is what I'm saying, everyone was shocked that my problem was so serious.

Karen

#25 Kamlesh

Kamlesh

    Senior Silver Member

  • Members
  • PipPipPipPipPip
  • 315 posts
  • Location:Dublin, CA

Posted 06 December 2007 - 05:57 PM

Hi Tammy,
It is not uncommon to have some fatigue with Scleroderma. I did mention to primary physicians during the last visit. He went over all the blood tests to find any deficiencies and he found very low level of iron. He asked me to start over the counter iron tables over 300mg a day and in case I am constipated due to iron, he prescribed medications to relieve constipation. I am glad other necessary elements such as B12, Folic acid are within normal range. Still my CBC stays below 3.5. So I have some more work to do.
Kind regards,

Kamlesh


#26 debonair susie

debonair susie

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,638 posts
  • Location:(United States)

Posted 07 December 2007 - 06:15 AM

Karen, that IS very important information and yet scary indeed :o !

Hopefully, doctors will better recognize the signs, as well as the ladies themselves so these attacks can be prevented.

Quite awhuile back, I posted about a friend of mine who had been doctoring becaus e of pain she had been having. They figured it was Carpal Tunnel! Two weeks after they had pretty much given up, she had a heart attack and died. It was very heart-breaking, as she was so proactive, where taking care of herself was concerned.

Appreciate your post... Take care of yourself.

Hugs,
Susie
Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)