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I'm Just Having A Bad Day

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#1 aniwallar


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Posted 05 November 2007 - 09:12 PM

Hi there:

I g I have to go back uess I just need to talk about how a feel. I can't talk to my husband because he just doen't want to hear it. I have been having a couple of bad days. I'm getting a little worry about how tired I am. I get up and I try to do things but I just can't.

#2 aniwallar


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Posted 05 November 2007 - 09:19 PM

I guess I pushed some button because my message just left.

Going back to my problems....aside from being so tired I am also having a tight feeling in my chest. I know that when this hapens I am supposed to see the doctor, but I don't think there is anything wrong with my heart (I have had many tests) and I'm also fed up with doctors. I also think my esophagus is acting up.
See, the thing is that even though I was diagnosis with SSc. I have been doing king of good. Now, sudenly I am not all well. I am afraid that things are really starting to hapen to me and that really, really, really scares me.

Well, I know we are all having many problems so I want to thank you all for listening.

Have a great day,

Ani Wallar

#3 TJ903


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Posted 06 November 2007 - 09:36 AM

Please hang in there. I got some very good advice when I thought my husband didn't care. I was told that they do in fact care very much, they just can't fix it right away for us, and that makes them feel bad. Men are not like women in expressing themselves, they are action oriented. He may be just as scared as you and if he is anything like my husband will absolutely deny this weakness. So try not to worry, the stress is bad for you and may be contributing to your condition.

There are always people here for you, remember that! We are all separated by miles but connected through love and support for each other!

Big hugs and warm wishes! TJ

#4 lizzie


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Posted 06 November 2007 - 12:17 PM

Hi Ani Waller. sorry you have a bad day today. I think TJ is right - men often think differently- I recently had a conversation with some male colleagues about the differences in the way men and women behave-one said that he couldn't understand why women wanted to discuss things about which nothing could be done- it wasn't that he didn't care he just couldn't see the point in discussing it if there was no solution.

I think the feeling that we are getting worse is something most of us have probably experienced, although it is always a possibility , I try and remind myself that everyone (not just those with a chronic disease) has days/weeks when they not so well and that not every ailment is due to the SSc. Having said that perhaps you should contact your Dr to get things checked out if only to put your mind at rest.

Hope you are feleing a bit brighter soon.

#5 jefa


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Posted 06 November 2007 - 09:32 PM

I am sorry you are having it a bit worse these days, Ani. It is frustrating when the pains you have can seem like so many different things and hard to know when you should call the doctor and when to just ride it out. Judging from other posts, general fatigue is probably the greatest complaint at the moment. It is for me, as well. The cold weather slipping up on us isn't helping. Lizzie is right, though, perhaps you should give your doctor a call if only for peace of mind.
Warm wishes,

Carrie Maddoux
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(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

#6 bunny pomar

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Posted 07 November 2007 - 09:36 AM

I know how you feel. Sometimes talking or just venting helps. I think the fatigue just gets worse. If I make one step forward and then something happens to upset it I take three steps back and never get to where I originally was. Keep plugging along and try to keep a positive outlook, it helps. Remember we're all in the same boat.


#7 KarenL


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Posted 08 November 2007 - 01:42 AM

Hi Ani!

Listen, tight feeling in the chest is NOT NORMAL.. I had all the heart tests too, and they all showed up normal. I was so incredibly tired and after about two weeks so much in pain I went to the ER, twice in three days! Even in the hospital they kept saying I was fine.

I was having a heart attack. I've now had three in two years, all three times they said it couldn't be that, and IT WAS. I had 99% blockage in three arteries and I DON'T have high cholesterol, don't smoke, don't have family history and I'm only 49.

If you don't feel better soon, and if the pain in the chest gets worse or goes to your neck, arm or hand, go to the ER and insist on blood work. Some of my other worsening symptoms were anxiety, sleeplessness, and the pain got worse and worse. I doubt this is your problem, but hwenever I hear "chest pain" I go on my rant. I want women to know the signs and get their doctors to listen. Even after two HA"s my doctors were still saying as they wheeled me into the Cath lab, "it's probably just anxiety"!!! GRRRRRRR< I'm NOT an anxious person! NOW, after three, the doctor said "You REALLY know your symptoms. From now on, MAKE us listen!"

Good luck and I hope you feel better. LISTEN to your body!

#8 debonair susie

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Posted 08 November 2007 - 09:43 AM

Hi anniwaller,

Karen hit it right on the nose... and from experience too!

To me, who knows our bodies better than us?

A neighbor of ours age 45, had a heart attack and passed away. The sad part about it... she worked very hard to keep her weight in check. She had been to doctors, but they thought she had carpal tunnel :blink: They never even entertained the idea that she "might" have heart issues, with such history in her family.

Her husband said that all women need to know that their symptoms are quite different, particularly from those men can display.... concerning heart attacks.

Not trying to scare you, but I just wanted to speak to Karen's post. At any rate, sometimes we or doctors tend to downplay our symptoms.

Keep on this until you get an answer that works.

Hugs, Susie
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Susie Kraft
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#9 MicheleM


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Posted 08 November 2007 - 11:45 AM

Hey Ani! I also know exactly what you're going through! I have a marriage of 30 years & a very loving husband, but he too gets frustrated when ...1 - I don't tell him how I'm doing, 2 - he can't do something to make me feel better! Men really are wired differently from women & it makes our situations much worse! The one thing that has helped as of late is Rick has been going to the dr appts with me & it's made a very big difference - he's learning what we go through with doctors who don't listen & how the tests are run ... I've been doing this mostly by myself for 7 - 8 years now and he's been good & bad about all of it. Try not to be so hard on yourself! The exhaustion can come from many things & I've spent my fair share of time in the ER with chest pains to be told nothing's wrong! I'm thinking for me it's the PH/PAH because I'm SOB, in pain, etc. So if it isn't your heart maybe an Echo from a pulmo might be in order. We all experience this disease differently, but never feel alone! I was where you are now about 3 weeks ago & yesterday & today have been sooooo much better. Hang in there & know we're here to help you help yourself!!!
Soft hugs your way,