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Hurts To Breathe

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#1 Clementine


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Posted 06 November 2007 - 05:50 PM

Does anyone else have pain when you breathe? I don't have a cold. I think it could be my esophagus. In the past I've had a hernia, along with GERD, but a month ago I quit taking 2 Zantac at bedtime per my Dr., and one month later I am having pain. I also feel a little sick, but I am not coughing and no signs of a cold. I don't know if I should have it checked, go to a primary care physician or call the GI DR...it's so confusing b/c I don't know where it is coming from. So, if anyone has had this symptom, please tell me what you think it is. Last night I started back on Zantac.

ON top of that, my dentist broke off my tooth on accident today, when he was replacing a temp. crown with a permanent one, and now I have to have gum surgery (crown extender) AND, where I had a tooth extracted last month, the bone did not heal properly and now the periodontist has to cut it out. Yea, so I'm really happy over here.

I'm sorry I've not been as supportive to everyone lately, but it's been one of those months for me.


#2 summer


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Posted 06 November 2007 - 09:13 PM

Hi Jen,
Sorry you are not well, as they say when it rains it pours!.
I have had this problem, mine was the lungs though,even to talk I couldn't find the breath to inhale. Mine eventually went after about 2 months of agony.
My rheumatologist has referred me to a Thoracic Specialist.
Does it hurt when you inhale or exhale?

Take care and I hope you find some relief soon, maybe you should ring your rheumatologist when you can.


#3 lizzie


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Posted 06 November 2007 - 09:52 PM

Hi Tangelo
If its hurting when you breathe it would seem more likely to be your lungs so if it were me I would defintely see my primary care physician to get them to listen to my chest just to make sure didn't have not have some infection.


#4 susie54


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Posted 07 November 2007 - 02:18 AM

Hi Tangelo,

I had to almost laugh at the desperation you are feeling with which doctor to see and what is this a symptom of and I AM SO TIRED OF GUESSING WHO SHOULD I SEE TO FIX THIS SYMPTOM. I feel this way so much. I have had chest pain on breathing off and on lately and I am hoarse when I get up. So I think well , should I go to a pulmonologist or since I am hoarse , should I go to my gastro, or because is an overall problem should I go to see my rheumatologist or SHOULD I GO AT ALL? WHAT"S A GIRL TO DO!!!
It is soo frustrating. But, I think you ought to check it out. And I am sorry you are having pain and it does signal a problem and causing you discomfort. So I hope you can get some help soon. HANG IN THERE>Susie54

#5 Margaret


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Posted 07 November 2007 - 03:43 AM

Morning Tangelo ,

Just from my little medical knowledge, I would say that if it hurts to breath, go to the primary care physician for a lung X-ray. You don't have to have a cough for pleurisy. When Gareth was hurting to breath last spring, the doctor also said it could be the cartilage around his rib cage being inflamed. Just some ideas, but I think you do need to get checked out.

Take care, Everyone.

#6 debonair susie

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Posted 07 November 2007 - 07:59 AM

Hi Tang,

First of all, you needn't to apologize... we all go down that road. Please just know that we're here for one another.

Both susie54 and Margaret know about the pain thing. Each of us may have different things going on, but it boils down the same... when there's pain, ya want it to go away!

I have costochondritis... what Margaret described, and it can really hurt.

Are you taking anything to help with the GERD you have? Is the Zantac you're taking prescribed, or is OTC? You say you feel sick, so your gastro might be the place to start. There are days I feel really nauseaous... all around bad. Often, it's my GERD... I've eaten too late, or not eaten right for a few days. So... I am so grateful for Prilosec and I really stay aware of the things I eat, which usually sets things back on track.

I'm sure that having the dental procedure ahead of you... doesn't help and once that's behind you, it'll be a good thing.

Please let us know how you do.
Big Hugs, Susie
Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#7 Shelley Ensz

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Posted 07 November 2007 - 08:31 AM

Hi Tangelo,

I know exactly what it's like to wonder who to call or if to call or whatever. I've also found that it's entirely wasted effort to wonder about such things, after I discovered a simple approach.

The first is, don't worry who to call or if to call. If you are thinking MAYBE you should call someone, then have a pat answer for who to call. For me, this is the triage nurse at my internist's office. They are specially trained to review symptoms and define what care we need (if any) and when, etc.

If it is after my doctor's office hours, I call the Emergency room of the hospital that my doctor has privileges at, and ask to speak to the triage nurse.

This simple approach has saved me a lot of endless worry (Should I call? Who should I call? When should I call? Should I wait until it gets worse or goes away? What all could this possibly be caused by? Is it something that needs treatment urgently or can it wait until tomorrow, or next week, or next month?).

It has also provided me with appropriate care in a timely fashion. Some people prefer to start with the triage nurse from their rheumatology office; but in my experience, most things can be handled very adequately with a good internist's office, and if they are in any doubt they can refer me to the specialists.

I also used to call my insurance company's nurses line, when my old clinic did not have a triage nurse. They were also very helpful.

It doesn't really matter what your approach will be, so much as it matters to have an instant answer for what to do when you don't know what to do. You will be amazed at the peace of mind it delivers, just to have an answer for what to do when you don't know what to do, and how it evaporates 95% of the worry over any new or worsened symptom.

So, go call somebody -- the triage nurse at your general practitioner's clinic is a good place to start -- and let us know how it turns out.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#8 Sweet


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Posted 07 November 2007 - 01:23 PM

Hey Jen my Love -

I'm so sorry! My thoughts are the same as Margaret's. Pleurisy popped into my head. I would give your primary care physician a call and start with that. By now you probably already took some action, I'm a bit late here.
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#9 Peggy


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Posted 07 November 2007 - 02:07 PM

I have the same thing and they say it's acid reflux / espohagus problems brought on by the sclero. I have to have a GI cocktail (which I used last night) that I drink when it flares up so bad that I feel like I'm having a heart attack and my chest / lungs are being burned up from the inside by a blow torch. This GI cocktail numbs the entire esophagus and the pain goes away. I also have to have my bed raised up 7 inches and I take Nexium 2 times a day. I was told to eat NO chocolate and to have no carbonated beverages - talk about punishment - but it does help. So my advice would be to go to your doctor to see if this is what yours might be just to be on the safe side.


Diagnosis - systemic sclero / sjogren's / raynaud's / mixed connective tissue disease / acid reflux with the start of Barrett's syndrome / thyroid disease

#10 barefut


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Posted 07 November 2007 - 02:27 PM

Hi Tange,

Do you feel the pain in your lungs/rib cage or in your throat/esoph?

I used to have a raw feeling deep in my throat when I breathed. Whenever air passed over my esophagus it just felt raw, for lack of a better description. It went away when I increased my Prilosec from 20mg once/day to 20mg 2x/day.

It was most bothersome right when I woke up in the morning, which suggested that I was having reflux at night. I guess reflux can be sneaky as well as painfully obvious especially when your lower esophageal sphincter stays open as mine does. Then when I sleep, fluid creeps back up. So I have to sleep with head elevated.

Is that what you're feeling? If it is deeper into your lungs and hurts only when you take a breath, then maybe pleurisy...

DO call your doctor!

Sorry about your dental disaster too! You poor thing! Only up from here? Wishing you the best,


#11 Margaret


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Posted 07 November 2007 - 03:18 PM

<<I have costochondritis... what Margaret described, and it can really hurt. >>

Hi Susie ,

Thanks for that big word!!! I couldn't for the life of me remember what the doctor called it. I just know that Gareth was hurting and that is what he 'thought' the problem could be.

Take care, Everyone.