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Migraines


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#1 WestCoast1

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Posted 08 November 2007 - 06:58 PM

Hi there Forum Family,
I seem to be going through a bout of migraines lately...I can't wait for them to go away!!! I had to go to the hospital for the first time ever to relieve my pain. I felt like I was "giving up" because I was giving in....but looking back, I was just getting through. I have had 2 days pain free since then. (knock on wood!)

I hope to be back in action really soon, until then Hugs all around...
*WestCoast*

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#2 summer

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Posted 08 November 2007 - 10:47 PM

Hi Westcoast,
I can sympathise with you, a few months ago I also put up a post about migraines. I had a migraine every second day for two weeks and was at my wits end. After the two weeks they disappeared - touch wood :rolleyes: .
My Cardiologist recently prescribed me Atenolol for Tachycardia and he did mention to me that this also prevents migraine attacks.

I'm hoping that your migraines disappear soon - take care and also take it easy in the mean time.

Best wishes
Celia

#3 jefa

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Posted 08 November 2007 - 11:12 PM

I've never had a migraine, but I have been surrounded with sufferers - my mom, husband and boss. I have the greatest sympathy for those who must endure this agony. Apart from hiding in a dark room, one of the things my mom found most useful was putting her hands into a basin of warm water. Don't know why that helps, but it does seem to.
Warm wishes,
Jefa

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#4 Margaret

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Posted 09 November 2007 - 02:56 AM

Hi Erin ,

Like Jefa, I have never had a migraine but watched my Mom suffer through them when I was kid. My heart goes out to you and all who have them. Mom found out later in life (post-hyst age 45) that hers were hormonally caused. After her hyst and she was put on straight estrogen, they disappeared. Her doctor tried to take her off her estrogen years ago (she's in her 70's) and the migrains came back full force. She basically marched into his office and DEMANDED another perscription!!! She won't go off them. It's such a small dosage...... .5 mg daily.

Take care, Everyone.
Margaret

#5 Sweet

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Posted 09 November 2007 - 03:44 AM

Hi Erin,

###### my friend that sounds horrible. I think I may have had a migraine once in my life, and I remember thinking, it might feel better to bang my head against the wall then to endure the headache. I'm glad you were able to get some relief and I hope it stays that way!
Warm and gentle hugs,

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#6 KristenS

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Posted 09 November 2007 - 04:02 AM

I have had them, and they are painful. At one point I had a migraine that lasted over a week and landed me in the hospital. After many painful tests in the ER, it was finally determined that it was one of my meds that I was taking for my acid reflux. Once it got out of my system, the migraine went away. I still get them now right before I get my period, but that is due to perimenopause. And the dr. has said that that is due to the SD as well. This disease is such a joy! I love it. so much fun. NOT!
Have your doctor check all of your meds and counter reactions. See if there might be something hiding in there. Good luck
I hope that your day goes well and you don't have any worries.

#7 WestCoast1

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Posted 09 November 2007 - 05:24 AM

Thank you for all of your replies! I had considered banging my head against a wall..it seemed less painful than my head at the time, but it hurt too much to get vertical...

So day 3 and no pain! (in my head) I really appreciate a "good" day...there's nothin better!

As for the medication, my rheumatologist took me off of Prazosin just in case it was that, but says that he really doubts it...migraines arn't a side effect that he has seen with this Raynauds medication.

I will ask about this medication that you mentioned here for migraine's, I would love to have something to take before the pain gets out of hand.

Again thanks for the messages, and hugs....
*WestCoast*

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#8 bahaboyga

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Posted 11 November 2007 - 06:20 AM

Hi WestCoast1,

My wife was having headaches for about a month. Our family Dr. gave her pain medication after about two weeks I took her to a Nuerologist. The Nuerologist had tests done and they found a subdural hematoma (Bleed) on one side of the brain. She ended up having surgery. A team of Doctors seemed to think it was Vasculitis.
She hasn't had headache since the before the surgery and doing good other than some joint pain and swelling

Best Wishes

Bahaboyga

#9 Sweet

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Posted 11 November 2007 - 06:35 AM

Hi Baha,

Welcome to the Sclero Forums. I'm certainly sorry to hear of the ordeal your wife experienced. I hope the outcome turns out well.

Again, Welcome
Warm and gentle hugs,

Pamela
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#10 Piper

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Posted 11 November 2007 - 09:52 AM

Hi Erin, I really feel for you, I also have suffered from migraines with aura since I was 5. My Dr. put me on atenolol (a bet blocker) and I have only had 1 migraine in 6 months. Yea!!! It also lowered my B.P and slowed my fast heart rate. The downside is that it makes raynauds worse. Can't win them all I guess. Elavil also helps somewhat with migraines and I'm on that too. Good luck in finding some relief.
Hugs, Piper

#11 WestCoast1

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Posted 11 November 2007 - 11:31 AM

Piper thanks for the tips...I will have to make a list of these meds and talk to my doctor about what he thinks will work. I am sorry to hear that one medicen makes the headache better but the raynauds worse...

Bahaboy, welcome... and I am sorry to hear that your wife had a bleed in the brain. That is always something that we worry about when we have migraines/headaches this bad. On a positive note, it sounds like the surgery went well and has had pretty good results. What kind of tests did the neurologist have to do to find the bleed?? Please let us know things go with the joint pain.

Still no headache...I have stopped counting the days and started enjoying the pain free time that I do have :-)
*WestCoast*

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#12 bahaboyga

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Posted 11 November 2007 - 07:22 PM

Hello everyone,

Thank you for the warm welcome. My wife was diagnosed in 1989 with SS. She has experienced most of the typical symptons such as skin ulcers, watermelon stomache,bowel problems and artritis.
We live in a small town where the medical fiedls are lacking expertise. Our rumatogist thought she had CREST.
After years of treatments that were not helping I finally contacted the office of Dr Furst @ UCLA. When I made the first call the appointment desk explained that Dr. Furst was not accepting new patients, I said thank you and good bye.
Later that evening I recieved a call from Dr. Furst himself and explained her symptoms and made an appointment. After hanging up the phone I broke down and cried.
Dr Furst has changed her life and done so much or us with medications and education. He pulled her off most of the medications the Rumatologist prscribed and gave us a full report to take to our Dr. at home and its been a miracle ever since.
We see Dr. Furst once a year and he addresses her immediate needs.

To find what was causing the headaches the Neuroligist had a CT scan done. Two days later another CT scan. 24 hours later she was in surgery.
Her hands are severly deformed and arthritis and depression seem to be the big issues at the present. All internal organs seem to be fair at this time.

Thanks for listening

Bahaboyga

#13 jefa

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Posted 12 November 2007 - 10:07 AM

Hello, Bahaboyga. I am glad you and your wife found us. It is always nice to see a couple facing these issues together. It sounds like you have managed to get some good medical support in spite of your remote location. The kind of support you can find in the ISN forums may help some with the depression. I look foreward to hearing more from you. Welcome hugs to both of you.
Warm wishes,
Jefa

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