Does This Make Sense (skin Stuff)
Posted 15 November 2006 - 03:07 AM
Anyways, with my hands....I know with sclero the skin tightens & I was trying to figure out why my skin was having phases or moments of being really tight, like you can see it pulling taught (like webbing between my knuckles & lines gone on top of finger knuckles) & it is usually when I'm really cold. WELL...you guys probably knew this already but I had to research to figure it out.....skin shrinks when it's cold.... So here's my thought... my skin is getting tight, but not so noticable to me, the untrained eye, so when my hands are really cold & my skin shrinks more, it is pulled unusually taut than in the past when my hands were cold.... so the skin tightening at this point is noticable to me, only when my hands are cold.
Anyways....so that's my theory, it makes sense to me as to why the skin being that taut is only when my hands are cold.
Posted 15 November 2006 - 04:04 AM
Posted 15 November 2006 - 02:17 PM
M skiny tightening is worse when my hands are dry. I also have calcium deposits on my fingers confirmed by an x-ray. I can feel them. I feel that this also makes my hands tight.
I have the bloodwork for Lupus. I was diagnosis 25 years ago. Also had the Raynaud's at that time. I have a positive ds-DnA which has been as high as 340. Ds-DNA is specific for Lupus.
But I have always been told I fit the MCTD and the CREST category. Shiny skin on fingers with ulcers on fingers. I do not have a positive Scl-70. My current rheumatologist did tests and says my diagnosis is Lupus with overlaps of limited Systemic Scleroderma and antiphospholipid syndrome. The APS is makes my Raynaud's worse. I have had ulcers and needed to have surgery on two fingertips.
Call me a Mixed Connective Tissue probably even though rheumatologist says the Lupus is my primary diagnosis. But rheumatologist says she has never seen anyone quite like me. I am on 8 different medicines to try and control the symptoms and progression of whatever I have.
Posted 15 November 2006 - 08:51 PM
I surely hope that one of those eight medicines is Viagra or Cialis. These drugs have done wonders for me to prevent those awful finger ulcers.
Mary from Texas
Posted 16 November 2006 - 01:09 PM
It is great to see you. I don't post here often but I read the forum regularly.
No, I am not on Viagra. I started on Coumadin and the Coumadin healed the ulcers on my legs and fingers and controlled the Raynauds.
I am on Prednisone 10mg, Cellcept, Procardia ER, Vasotec, Plaquenil, Lipitor, Coumadin and Prevacid.
I just got the OK to taper Prednisone 1mg a month. I had chemotherapy of Rituxin one year ago and it brought my blood levels back into the normal levels. rheumatologist is hoping the Cellcept will keep it that way.