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Mouth & Teeth Issues?


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#1 KristenS

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Posted 12 November 2007 - 10:41 AM

This might seem really weird, but nothing anymore with any of us is weird anymore. I am finding that I am cutting into my bottom lip with my top teeth. It really hurts too! I don't know it has anything to do with my mouth getting smaller or what, but it almost feels like my teeth are getting bigger. And I feel like I am clenching my teeth almost all of the time. I can't chew gum for more than a couple of minutes at a time or my jaws get sore. If I look at the inside of my bottom lip, I can see teeth marks and it is really red, almost like I have been chewing. Does anyone else have this problem or any suggestions?
Kristen
I hope that your day goes well and you don't have any worries.

#2 TJ903

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Posted 12 November 2007 - 06:07 PM

My mouth is getting smaller too, which causes problems with my night guard. I've got really bad TMJ and need surgery but no one will touch me due to the scleroderma, so if anyone out there knows a good ortho surgeon, please let me know. I'm in the states and for the last three years have lived with constant jaw pain. I know that it will only gt worse, and to answer your question, I bite the inside of my lip all the time.

My husband would argue that I still have a big mouth tho'. The smaller mouth does and will continue to cause us dental problems. I have to be sedated to get any work done. It's not so bad, especially if I get the gas, then I don't really care about the pain. Unfortunately I can't take a tank home with me! I'd be really happy all the time. You will probably need to ask your dentist about an NTI (night guard) that will help relax the facial muscles so that you can get some relief from that. Stress is a major factor, so once again, we need to try and de-stress. It's good for our overall health.

Have you tried any mouth excersizes? I can't spell so apologies for that. Some on the forum use a tootsie pop to put between their cheek and gumsl I've been just using my tongue to try and stretch. I'm already getting the weight gain and bloated belly look from the sclero and want to stay away from extra calories.

Good luck and big dental hugs coming at ya!!

#3 peanut

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Posted 12 November 2007 - 06:46 PM

Hey darlin'
Nothing is normal and everything is weird. I laugh when people use the term "normal"... I mean is that anyway?

Well back to teeth. It sounds like you're grinding and may be TMJ. You should talk to your dentist and be sure to mention the sore jaw due to gum chewing. A sore jaw is a big indicator. If your dentist feels like you have TMJ he will likely suggest a nite guard - not typically covered by insurance. I'd really advise getting one. There are OTC guards but they are NOT as good. Yes, it will be awkward wearing the guard but its better you grind and clench the plastic than your teeth.

See when you grind and clench you create micro fractures in your teeth which can cause problems. My dad doesn't wear his bite guard and has needed one for years - now his teeth are slowly breaking apart. It's very sad.

I wore a nite guard forever. I lost mine about a month ago and I was concerned that my jaw would ache but it hasn't. I think not working and doing yoga has subsided the TMJ. Hooray. One less thing to worry about.

As far as mouth shrinkage... mine is too. As previously suggested mouth exercises are helpful. I do mine in my car in traffic and red lights. Yeah people think I'm silly, making faces but what else is there to do stopped in your car? Ask Janey or Barefut about the exercises.

take care,
peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#4 barefut

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Posted 13 November 2007 - 09:04 AM

Hi Kristen,

I have microstomia too (big word for small mouth). It feels the same to me - like my teeth are too big for my mouth some days.

My jaw muscles also get fatigued. I can't chew gum most days either. I also feel the clenching. For me the clenching is a side effect of Prozac. I just keep doing the mouth and jaw stretches.

You know what else helps for me is, I bought a mini, battery powered hand massager recommended by my hand therapist and I use it on my jaw joint. Feels great and loosens it up.

Do you get headaches too from the tension?

#5 MicheleM

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Posted 13 November 2007 - 10:42 AM

I google images for microstomia and I think I found my version of it, (Patient with systemical sclerosis showing microstomia) . but don't know how to upload the picture(s). There's also one there of systemical sclerosis showing perioral pleating. My dentist comments about how hard it is to work in my mouth & how much my teeth have shifted. I too have the "funky" interior & TMJ, etc. Aren't we the lucky ones! I also get ulcers & bumpy areas that come and go at will. I don't think "normal" actually exists - somebody had to make that one up just for fun!!! I still smile lots - no one ever believes me when I tell them I have a small mouth - especially my family!!!!!!!!!!! :)
Soft hugs your way,

Michele

#6 KristenS

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Posted 13 November 2007 - 11:05 AM

Lordy, do I ever! The headaches are getting worse too! And you know what is driving me insane - it's when I will be out by myself and all of a sudden realize I am doing it, clenching my teeth or grinding my teeth! I do it subconsiously! its maddening! Like I have some kind of weird habit or forbid a (dare I say it) a disease!
I hope that your day goes well and you don't have any worries.

#7 bookworm

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Posted 13 November 2007 - 07:46 PM

Kristen,
My mouth seems to be getting smaller, too, and I find myself constantly clenching my jaw, which is very sore from it. My jaws often pop when I open my mouth and dental work is murder! I like the idea someone mentioned of anesthesia for dental work!!!
Barefut, I didn't know Porzak caused jaw clenching. I recently started taking Prozak and it kind of coincides with the jaw clenching -- although I have had the popping jaws for a very long time. Is it a common side effect?


Mary in Texas

#8 KristenS

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Posted 14 November 2007 - 09:55 AM

Woohoo, just talked to my dentist this morning and he is prescribing drugs for the pain. Gotta love that! Especially since I started with the mouth ulcers last night and my teeth feel like they are falling out! Talk about pain!
I hope that your day goes well and you don't have any worries.

#9 Piper

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Posted 14 November 2007 - 02:24 PM

Hi kristen, I haven't talked with you in sooo long. How are the children and horses?
I just wanted to say that I've been noticing this lately and I wake up every morning clenching my teeth. My dentist is going to make molds for me. First I need two crowns done and I don't have the money for it now so I'll have to wait for the molds and continue to do damage to my teeth.
Take care,
Hugs, Piper

#10 barefut

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Posted 14 November 2007 - 04:50 PM

Bookworm,

I don't know if clenching is a common side effect of Prozac or not. I have not read it but I have experienced it every time I have started back on it.

I have been advised by my dentist to get a mouth guard too. They are expensive to have molds done but you can buy sports mouth guards as well as regular "dental" mouth guards that you boil to soften and let cool for 30 seconds, then pop them into your mouth and bite down and hold to form them to your teeth. Then you run them under cold water to "set" them.

They are a more affordable alternative to the dental molds.

#11 peanut

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Posted 14 November 2007 - 10:28 PM

Hey friends, I'm a teeth advocate - I suppose it's cause I worked in a dentist office. We each have unique issues... below are some of my thoughts but just know it's a good idea to take care of your teeth. You only get one set.

Kristen,
What kind of sores? I started getting mouth sores all the time, but I started taking Lysine and they went away. I think it must be scleroderma related but I'm not sure how.

Barefut,
I really would NOT recommend a sports mold. The soft plastic can actually cause you to grind more because the soft plastic does not provide sufficient resistance in comparison to the type you would get from the dentist.

Mary in Texas,
Popping... does not sound good. If it gets worse I'd give your dentist a call. My jaw use to pop. It got progressively worse, then one day my jaw locked up briefly while eating an apple. I called my dentist and he made me a bite guard. It has since gone away.

take care all & floss,
peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#12 kelowna52

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Posted 15 November 2007 - 08:30 AM

Hi girls, before I retired I used to work in Dental. I have used night guards off and on for many years, they definately help with the grinding. I can't chew gum for very long either and my jaw gets sore.

Jackie S.

#13 KristenS

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Posted 15 November 2007 - 08:34 AM

Peanut,
I have sores all throughout my mouth, not like the normal cold sores. I have had those before and have done the lysine. I am even on Valtrex right now. I feel like my teeth are ready to fall out at any time! They are that sore. The roof of my mouth is puffy from sores and even my gums. I told my husband that it feels as if my mouth would just feel better if my teeth were just all removed. Or as if they were while I was sleeping and I have really bad dentures. I remember my fatheri -in-law complaining about his dentures when he was alive, maybe this is the payback I get for not really listening to him, he was such a complainer. (he lived with us and had alziemer's, ugh) Is this my payback?
Of course, then my jaws want to clench automatically on these sores. I tried to eat eggs and toast last night for dinner, even that was pain. I called the dentist and he suggested seeing me, but I said no, too painful. He was okay with just giving me meds, gotta love it sometimes. I am tired though. He did say if I run a fever, I have to go in. Joy :angry:
Maybe I should tell my rheumatologist, huh?
Kristen
I hope that your day goes well and you don't have any worries.

#14 Sheryl

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Posted 15 November 2007 - 12:16 PM

Kristen, I like this picture alot better than the one I saw earlier today. I will keep everyone guessing. What was it. Humm! Did I see it. No it isn't the one with Kristen and her husband. I hope you get your dental issues solved. There is great over the counter mouth gargles that work great with sores in your mouth. Glycol is one of the best and easiest to use to keep your mouth more germ resistent. sure feel for you. I have been there. Lots of pain. Sheryl
Strength and Warmth,
Sheryl

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