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#1 Patty

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Posted 13 November 2007 - 02:34 AM

I am so tired. I can not seem to get out of my own way right now. All I want to do is sleep and rest but with a very active 3 year old, well I can't. I know this if hard on my family life and Tom just won't get it. He thinks I am being lazy but I am just tired. I do what I can and try to push more but some days I just can't. It strange because as soon as the pain left this awful tiredness set it. I can't seem to catch a break. I just feel like I am in a huge funk right now and I hate it but I can't help it.

Thanks for letting me have a place to complain.xoxo
Hugs,
Patty

If Life hands you lemons, make lemonade.

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

#2 CFMBabs

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Posted 13 November 2007 - 04:53 AM

I'm so laid back -- I'm horizontal, my hubby say's. Of course the truth of the matter is I have no option most days. I simply wake up tired and everything goes down hill from that point on.
Don't forget we are fighting disease from the inside as well as the outside too! Putting on a brave face whilst our body rejects this condition is tiring and I'd sure like to see my hubby put up with my daily routine, not inflicting illness upon him of course. Unless you suffer with a chronic illness, and I'm sure fellow sufferers will tell you the same, it's difficult for anyone to imagine how it feels.
We're such a rare bunch of folk, and finding someone to confide in is almost impossible, especially someone who knows anything about sclero. This site is a whole family of sufferers -- we all understand, can relate to, and give our support to each other when we need to vent.
Don't call it guidence councelling -- call it sclero guidance!

Best wishes
Barbs xxx

#3 Sweet

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Posted 13 November 2007 - 05:39 AM

Group *********HUGS************

Boy you just described how I am been feeling for the past month or so, and on top of it I came down with a horrible cold last Wednesday and I'm still on the couch with it, I just can't kick it. I do have a very understanding husband thank goodness. I don't have kids, but I watch my grand kids on a regular basis, and I'm supposed to pick up the 1 year old Friday for 3 days. UGHHHHH I want her, but I'm worried I won't be over my cold by then and won't be able to get off the couch.

I just finished writing a very depressing email to a friend - whining of course and when I was done reading it, I thought "Wow, how depressing" and I just deleted it.

It's so very hard having a chronic illness - we just don't catch a break - it's exhausting.

Anyway, I didn't mean to make you even more miserable, but I wanted you to know you are not alone, and many of us really do understand what you are going through.

Much love to you my buddy!!
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#4 barefut

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Posted 13 November 2007 - 08:55 AM

I have also been there done that with the 3 year olds. I remember the days when all I wanted to do was put head to pillow and close my eyes but of course couldn't.

Can you hire a babysitter or get a family member to watch your sweetie so you can at least take a nap for a few hours?

What about hiring a house keeper for a one time catch up? I know how letting things go for even one day can overwhelm you.

My thoughts are with you hon.

Sweet,

I have done the same thing with the email to a friend! :rolleyes: I never want to be a "burden" or a complainer on them. Next time come here to let it all out. Just because you are support staff doen't mean you don't need support too sometimes you know! You'll never have to delete here. Love you!

#5 MicheleM

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Posted 13 November 2007 - 10:55 AM

I'm so sorry Patty. Seems like if it isn't one thing it's another. It's so hard to be up then down ... it just seems to take soooo much energy to get up from the downs!!! I'm ever so grateful we are all here to listen. I am a lucky girl too with a husband who most of the time trys so hard to help. But then there are those ... times ... when it seems no one understands except you guys. I try so hard to live lightly & keep smiling, but sometimes, I don't know if it's the meds or me but life just seems so heavy to haul around!!! Then once in a while the weight is lifted and there is hope again. When I get like this I try to remember that I got another day and a lot of others didn't! Maybe that thought will help someone! I'm glad we all understand!
Soft hugs your way,

Michele

#6 Sweet

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Posted 13 November 2007 - 11:04 AM

Thanks Barefut, you have no idea how much that means to me. *hugs*
Warm and gentle hugs,

Pamela
ISN Support Specialist
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#7 debonair susie

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Posted 13 November 2007 - 11:09 AM

Patty, How very true... I feel bad for you and others... in our shape...who have young children to care for, in view of feeling unwell and so fatigued.

Barbara, you described it all very succintly! I love the "sclero guidence", too!

I wish all the best day each of you can possibly have.

Big HUgs,
Susie
Special Hugs,

Susie Kraft
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