Got The Blahs
Posted 13 November 2007 - 02:34 AM
Thanks for letting me have a place to complain.xoxo
If Life hands you lemons, make lemonade.
Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.
Posted 13 November 2007 - 04:53 AM
Don't forget we are fighting disease from the inside as well as the outside too! Putting on a brave face whilst our body rejects this condition is tiring and I'd sure like to see my hubby put up with my daily routine, not inflicting illness upon him of course. Unless you suffer with a chronic illness, and I'm sure fellow sufferers will tell you the same, it's difficult for anyone to imagine how it feels.
We're such a rare bunch of folk, and finding someone to confide in is almost impossible, especially someone who knows anything about sclero. This site is a whole family of sufferers -- we all understand, can relate to, and give our support to each other when we need to vent.
Don't call it guidence councelling -- call it sclero guidance!
Posted 13 November 2007 - 05:39 AM
Boy you just described how I am been feeling for the past month or so, and on top of it I came down with a horrible cold last Wednesday and I'm still on the couch with it, I just can't kick it. I do have a very understanding husband thank goodness. I don't have kids, but I watch my grand kids on a regular basis, and I'm supposed to pick up the 1 year old Friday for 3 days. UGHHHHH I want her, but I'm worried I won't be over my cold by then and won't be able to get off the couch.
I just finished writing a very depressing email to a friend - whining of course and when I was done reading it, I thought "Wow, how depressing" and I just deleted it.
It's so very hard having a chronic illness - we just don't catch a break - it's exhausting.
Anyway, I didn't mean to make you even more miserable, but I wanted you to know you are not alone, and many of us really do understand what you are going through.
Much love to you my buddy!!
Posted 13 November 2007 - 08:55 AM
Can you hire a babysitter or get a family member to watch your sweetie so you can at least take a nap for a few hours?
What about hiring a house keeper for a one time catch up? I know how letting things go for even one day can overwhelm you.
My thoughts are with you hon.
I have done the same thing with the email to a friend! I never want to be a "burden" or a complainer on them. Next time come here to let it all out. Just because you are support staff doen't mean you don't need support too sometimes you know! You'll never have to delete here. Love you!
Posted 13 November 2007 - 10:55 AM
Posted 13 November 2007 - 11:09 AM
Barbara, you described it all very succintly! I love the "sclero guidence", too!
I wish all the best day each of you can possibly have.