Longevity With Scleroderma
Posted 15 November 2007 - 03:11 PM
When I mentioned to her I was diagnosed with scleroderma as I was applying to graduate school to earn my masters in Early Childhood Education, she didn't bat an eye. I watched her face closely as I gave my scripted, brief synopsis of scleroderma. I finally had to ask, (since she didn't), "have you heard of scleroderma?" She just nodded understandingly and said, "Scleroderma can be scary. My mother has sceroderma." I asked her how old her mother is and she said 82! I said, "I'm glad I asked. That gives me hope."
My son's teacher is such a sweet lady! She told me to not give up my dream of teaching and even though its harder to pursue our dreams as we get older, and especially with sclero, to not give up on it, just chip away at it a little at a time.
Her mother is doing well. I didn't ask which type of sclero she has or how long ago she was diagnosed, but 82 and doing well!
So there y'all!
Sleep on that.
Posted 15 November 2007 - 03:24 PM
THANKS for sharing!
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)
Posted 15 November 2007 - 03:44 PM
I will share with you what my mentor said to me, when I wasn't sure if I wanted to go back for my BS and then my Masters. She said "Why not? The time is going to pass by anyway, and if you start taking classes now, then you're just one step closer to it next time you analyze time" Took me 6 years, but I did it - all Mastered up! lol It really does open so many more doors for you.
Posted 15 November 2007 - 04:22 PM
Thanks for your encouragement!
Posted 16 November 2007 - 01:56 PM
It is what it is...........
Posted 16 November 2007 - 05:52 PM
Posted 17 November 2007 - 05:23 AM
My graduate program is offered at a location only 2 miles from my home, as a satellite course with lectures via video all the way from Old Dominion College in Virginia (I'm in WA). So, I thought how could I not follow my dream when it was being practically dumped into my lap?
The only problem is, in order to qualify for financial aid, I have to take a full time course load. . I may still get to it someday though. Where there's a will there's a way.
Posted 17 November 2007 - 05:24 AM
I wonder if the sclero causes the memory problems or whether that just comes with old age......
Posted 17 November 2007 - 09:35 AM
Yes, I have a friend, well into her 70s... who also has Scleroderma. Her daughter and I were best friends through high school (still are, as a matter of fact)! I never knew until after I got diagnosed... I never knew about Sclero at all prior.
Enjoy the weekend, everyone!
Posted 17 November 2007 - 02:51 PM
Three cases of sclero in such short proximity. Why do they constantly say how rare it is, when proof in case is here on this website and through it's posts, that there are more of us than is being counted as a consensus?
It is what it is...........
Posted 17 November 2007 - 05:39 PM
Posted 17 November 2007 - 06:37 PM
Maybe most cases progress as quickly as mine.. I was diagnosed a year ago, 6 months ago I was put on oxygen because my lungs have progressed to that of a 84 year old. My lungs are too far gone to participate in SCOT. I'm looking into other treatment options. My husband asked me what if those treatment options don't pan out? Then what? I don't know... I want dearly to think about living till I'm 80 but there are days when it's hard to see 6 months to a year and it's even harder when those you love ask hard questions that have no answer.
You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...