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UCONN To Do A Trial For Raynauds


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7 replies to this topic

#1 Patty

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Posted 16 November 2007 - 11:47 AM

I just got a call from UCONN about Dr Rothfield doing a trial for Raynauds. Because I do not suffer from it I said no but I know that wer have a few from CT here so I wanted to post to let others know about it.
Hugs,
Patty

If Life hands you lemons, make lemonade.

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

#2 janey

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Posted 16 November 2007 - 01:06 PM

Patty,
I did a search looking for this trial but couldn't find anything. I found trials on Raynaud's involving Rothfield that have been completed, but nothing in the recruitment stage. If you have more information, please send me a private message or email and I'll see if I can get it posted. To date - it hasn't been listed on clinicaltrials.gov.

Sounds very interesting.

Big Hugs,
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#3 truman

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Posted 16 November 2007 - 01:47 PM

So you have a number with which to reach him in contributing to this research? If so, please PM me.
Tru

It is what it is...........

#4 Vee

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Posted 16 November 2007 - 03:26 PM

Hey Patty,

Did you ever get to see you're new doctor? Sorry I've been so out of touch lately, but I think of you often!

I hope you're taking care of yourself.

be happy!
Happy people don't have the best of everything, they just make the best of everything they have!

Warm and Happy to you! Vee

#5 Patty

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Posted 16 November 2007 - 04:17 PM

Janey,
I am pretty sure that the nurse that called me said it was a topical ointment clinical trial. Because I only have very very slight raynauds I said no. The nurse said that it was for people with on going trouble from it. I can call UCONN Monday and ask Dr Rothfields dept more about it see if they have it listed anywhere. I was very excited about this even if its not for me, it could help so many people!
Hugs,
Patty

If Life hands you lemons, make lemonade.

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

#6 Patty

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Posted 16 November 2007 - 04:42 PM

Hey Vee,

I go the 26th to see Dr Traverse. I am so excited!!

I have been ok for the most part. We all have colds. Poor Gia had a double ear infection, sinus infection and pink eye. Poor baby :( She was home for 6 days sick. Poor me! LOL I was going to call you the other morning but with her home sick I never got a chance. I will soon to fill you in more on things. I have lots to tell you.

How are you doing? I saw it was very cold there so I hope your doing ok.

Love ya,
Patty

#7 Sam

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Posted 18 November 2007 - 12:59 AM

I have heard of that new treatment with the ointment for the hands, I have a lady in my group who will be doing that soon. I dont know anything aobut it though. Sorry I can't help. Sam
Sam

#8 KarenL

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Posted 18 November 2007 - 07:50 AM

If you can get the information, I'll try anything! I live in far eastern NY about 15 min. from the CT border so let me know!
Karen