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Biomarker for Diffuse Scleroderma skin has been discovered!


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#1 Kamlesh

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Posted 18 November 2007 - 07:21 PM

Many of you are aware of, I was taken off Cellcept due to low White Blood Count (WBC). My WBC has come back little bit, but Red Blood Count (RBC) is going below low limit. As such both RBC/WBC have been staying close to the low range. I have been off Cellcept for two months now.

In my appointment with my rheumatologist last week, he checked my skin and other symptoms, and suggested to stop Cellcept permanently. As many of us are aware of, Cellcept has many side effects and it is given to transplant patients for a limited period. I had been on Cellcept for two years and glad to be behind me.

I am keeping my fingers crossed for possible Scleroderma flare ups.

I am glad to share some good news with all my special friends.
Kind regards,

Kamlesh


#2 Sheryl

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Posted 19 November 2007 - 02:33 AM

Kamlesh, I am celebrating with you. Glad you are finally off the cellcept. I hope you keep improving daily, weekly and forever. Now what are you doing about the bowel problem? Has any decisions been made? Are there any nutrients that you can be taking to help build the blood up so that the WBC and RBC can begin rebuilding themselves not fighting each other off? I don't know what is given to strengthen blood. Something to check into. I don't do much research because I am still on the phone line and I don't like tying it up for long peroids of time. Have a wonderful festive week and enjoy your family. I am going to work, work and do a bit more work. I've been getting lazy so I need to spend more time in my kitchen. I will be in there countless hours this week. Glad to hear that things are starting to look up for you. Sheryl
Strength and Warmth,
Sheryl

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#3 Sweet

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Posted 19 November 2007 - 05:24 AM

Kamlesh! How great is that?! I'm really happy for you. Wishing the the best as time goes on.
Warm and gentle hugs,

Pamela
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#4 debonair susie

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Posted 19 November 2007 - 07:05 AM

Kamlesh, I'm glad for you in regard to the Cellcept.

I hope that your blood counts regulate soon.

Big Hugs, Susie
Special Hugs,

Susie Kraft
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#5 truman

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Posted 19 November 2007 - 04:03 PM

Kamlesh:

Fantastic! Always thinking about our friends here, and it's fantastic to hear good news!

Enjoy the holidays with a weight lifted.
Tru

It is what it is...........

#6 Kamlesh

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Posted 19 November 2007 - 04:11 PM

Sheryl,
Thank you for your kind words. I have an appointment next Tuesday in UCSF with Dr. Patti to get an opinion about a possible surgery (partial wrap). I am willing to take calculated risks, if he thinks I am OK candidate for the surgery.
Kind regards,

Kamlesh


#7 janey

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Posted 19 November 2007 - 05:12 PM

Kamlesh,
Congratulations! This definitely was what you needed to lift your spirits. You sound great!

Please let keep us informed on the possible surgery. You've definitely been doing your homework getting ready for it.

Big Hugs,
Janey Willis
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#8 Kamlesh

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Posted 19 November 2007 - 05:49 PM

Tru and all my wonderful friends,

Thank you. I hope all of you are doing great. I am glad to have my both kids at home for thanksgiving. Planning to take couple of days of vacation and relax.
Take care and have Happy Thanksgiving all my friends. I am counting my blessings and definitely I am thankful for all wonderful things in my life. Definitely, my blessings far outweigh all problems.
Kind regards,

Kamlesh


#9 truman

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Posted 20 November 2007 - 01:06 PM

Kamlesh:

Both your kids home.......I envy you :) Enjoy, enjoy, enjoy........save me the white meat, a little gravy and some good rye bread.

Happy Thanksgiving Kam...........thinking of you and your family. Bless you all.
Tru

It is what it is...........