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Tracleer Questions


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#1 tmgilbertpt

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Posted 20 November 2007 - 04:44 AM

I just recently started treatment with Tracleer, drug used for pulmonary hypertension. So far my side effects have been loss of appetite and pretty bad nasuea. Right now I am on 62.5 mg twice a day. To be on this dosage x 1month and then increasee to 125 mg 2x/day. I was wondering if anyone out there is on this medicine also and how they are tolerting it? And how long did it take before you felt better. Thanks, Tammy

#2 CraigR

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Posted 20 November 2007 - 06:25 AM

I've been on Tracleer for over a year and never had any side effects. I'm at the complete dose of 125 mg per day.

Just be sure and get your monthly liver test.

Craig

#3 JohnLCanuck

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Posted 20 November 2007 - 11:07 AM

I've been on Tracleer for almost 4 years now & I never had any side effects. Better yet I call it my miracle drug. I can walk further & faster & the constant pain in my finger tips is almost non-existant. I also take "tylenol arthritis" so my liver test is important & is done every 3 months now. No problemo!

However, we may all have Sclero but diff meds for everyone & tolerances all different as well.

Good luck
John L
John L

#4 Shelley Ensz

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Posted 20 November 2007 - 05:35 PM

Hi Tammy,

Actelion has a free patient support program, called SureSteps, for U.S. patients. You can get your questions answered by a nurse counselor. The website address for SureSteps is http://www.tracleer.com/sure-steps/ and it is listed on our main site at:Tracleer/Bosentan Clinical Trials


Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#5 janey

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Posted 20 November 2007 - 06:14 PM

Tammy,
I've been on Tracleer for a year. Six months at 125 mg twice a day, then reduce to 62.5 mg twice a day last April. No side effects and my liver results are normal. My PA pressure has dropped and I don't get as SOB. The extra benefit has been that it's really helped relieve my Raynaud's as well.
Good luck to you!

Big Hugs,
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#6 Sam

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Posted 21 November 2007 - 12:21 AM

Shelly thanks for a great link. Sam
Sam

#7 tmgilbertpt

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Posted 21 November 2007 - 07:54 AM

Are any of you guys also taking Coumadin with the Tracleer? I was speaking with one of my patients who is on Coumadin and he described his stomach symptoms actually like what I have and his started with the Coumadin. So I am wondering if maybe this is it? Thanks for responding..good to hear from those who have had postive effects from the drug.
Tammy

#8 CraigR

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Posted 23 November 2007 - 07:16 AM

I take Coumadin along with Tracleer (and Neurontin [peripheral neuropathy], Prazosin [minipress], Evoxac [Sjogren's] and another pain reliever for peripheral neuropathy. No stomach problems or other side effects. I take the Coumadin at night before bed.

Craig

#9 janey

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Posted 23 November 2007 - 09:33 AM

Tammy,
I also take coumadin but have no side effects that I know of. I take it right after I eat my evening meal.

Big Hugs,
Janey