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Biomarker for Diffuse Scleroderma skin has been discovered!


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#1 Snowbird

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Posted 22 November 2007 - 12:24 PM

Humnnn...I suspect it is a very smart thing to tell your Massage Therapist if you have SS, Crest Limited?? Comments/advice welcome??

Thanks, Ramona
Sending good wishes your way!

#2 barefut

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Posted 22 November 2007 - 02:58 PM

Hi Ramona,

Yes. I went for a massage a few weeks ago at our town's school of massage. They have a form to fill out asking of any health issues. They advise not getting a massage if there is any soft tissue inflammation or damage.

They were really good about telling me to remind them at any time during the masage if they were being too hard or too soft or if anything they were doing hurt.

I ended up with some finger joint pain afterwards for about a week. She gently pulled each finger and it was okay until she got to my middle fingers and I got a sharp pain. I'm okay now though.

I wrote on my form: scleroderma, connective tissue disease. Then if they have any questions then we can discuss it before the massage.

B

#3 Snowbird

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Posted 23 November 2007 - 01:39 PM

Hi Barefoot

I'm glad you are feeling better now...that must have really hurt....I find that just little nicks that would get better really quickly before this disease started kicking in seem to hurt for ages now....and that's so little compared to being tugged at like you were, even if it was gentle. Do you think it could have been caused by collagen deposits in your joints?

Inflammation is obvious for me to see but how would anyone know if the had any soft tissue damage (or does the Doctor tell us that)?

Good advice, I will be sure to tell her on my next visit.

Hope you had a Happy Thanksgiving.

Many thanks, hugs, Ramona
Sending good wishes your way!

#4 janey

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Posted 23 November 2007 - 02:19 PM

Ramona,
I certainly will tell them from now on! The other when I waiting for my haircut, the massage therapist was giving free 5 minutes neck massages. I'm sure to drum up more business. AnyWhoo - I didn't say anything but "Sure - I'd love one!". It really felt great, but for the next 3 days I had a horrible headache and neckache. Guess I'll be saying something from now on.

Big Hugs,
Janey

#5 Snowbird

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Posted 23 November 2007 - 02:36 PM

ok, that's it...my secret is definitely coming out of the bag!!

Thanks Janey. hugs back to you! Ramona
Sending good wishes your way!

#6 lizzie

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Posted 24 November 2007 - 07:21 AM

When I go for a manicure I always tell the manicurist that they need to be very gentle with the cuticles as I have a condition that causes poor circulation to my hands and that any damage to the skin may cause an ulcer. They alwys take great care.
Lizzie

#7 Snowbird

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Posted 24 November 2007 - 10:44 AM

Hi Lizzie

That's another good thought although I don't normally go for manicures....I have hard skin around my nails beds though...it even comes off in little "chunks" sometimes, its' so dead...it's really hard not to pick at it too since it just doesn't belong there. I have to always put a really good clear nail hardener on too because if I don't and I hit my nails against anything - they break in the pink area and that's certainly no fun! Do you have any problems with that??

Thanks, Ramona
Sending good wishes your way!

#8 lizzie

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Posted 24 November 2007 - 12:00 PM

Hi Ramona, I do have very ragged, thick and dry cuticles, I try to combat this by using cuticle oil on them. I don't have much of a problem with nails breaking unless I start to be a bit lax with wearing rubber gloves when doing the household chores.
Lizzie

#9 whirlway

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Posted 25 November 2007 - 06:42 AM

Just my two cents, but you should always tell your therapist if you have any disease. My therapist, the 4th one, has done a lot of research on sclero and I have given her a lot of info also. When you get massage, a lot of toxins are released in your body, and that is why you should always drink a lot of water after a massage to cleanse the toxins out of your body. There have been a few times that I have either gotten a headache or gotten sick after massage, and it was probably my fault for not drinking enough water.
My first therapist was my daughter, and she was the best, but unfortunately, she moved across the state, so I had to find another one. I finally found one that doesn't make me feel sick and makes me feel better after a massage. One gal made me so sore no one could touch my back for a week. That one didn't last long, that is for sure. And she knew that I had sclero also.
Here's to better days for all of us.
~whirlway


#10 Snowbird

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Posted 27 November 2007 - 02:19 PM

Hi Whirlway

I will definitely be informing her on my next visit now that I have received all this good advice.... I didn't realize that I should drink alot of water afterwards either...another great tidbit for me....thanks again. Ramona
Sending good wishes your way!