Posted 23 November 2007 - 04:40 PM
I know in the past I have read about someone having peripheral neuropathy. I went to a neurologist last week and he thinks that I have it. I can't get the nerve testing done until my stress fracture in my foot heals. I was just curious. I hope that everybody had a happy day yesterday.
Posted 23 November 2007 - 06:59 PM
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Posted 23 November 2007 - 11:22 PM
I've had peripheral neuropathy for a number of years, however I had it long before any hint of SSc and the opinion is that it is due to a back problem (spondylolithesis)- and I'm sure that is the case as when my back is OK have no numbness and when it is playing up it returns.
Posted 24 November 2007 - 06:11 AM
Posted 24 November 2007 - 05:01 PM
I have a general peripheral neuropathy which is mild. At times I will get numb in different areas but the only pain I have had with it is in the toes and fingers.I had the tests EMG , nerve conduction tests done on all limbs. I hope you don't have alot of pain with yours and I think it affects my balance sometimes but not a huge bother. I hope yours stays mild too. Susie54
Posted 25 November 2007 - 12:23 PM
About a year ago I went to the Neuro Dr. to get test for Peripheral neuropathy. The doctor told me I don't have it but I get the numbness and the tingling on my arms, hands and feet, I also get pain on my arms. I don't know if the test were wrong or what and I don't want to try those tests again. If you think you have it but the test come back negative, and it is very painfull maybe you would want to try again.
Have a great day,
Posted 26 November 2007 - 07:32 AM
Neurontin and other pain meds seem to help. Never got much help from Elavil. It tends to get worse (goes from benign numbness to pain) when I eat something very sugary, such as a bowl of ice cream.
It seems better when I take my vitamin supplements - but I have not pinned it down as to which supplement it might be. Vitamin B6 is said by some (including my oncologist) to help. Lack of vitamin B12 is sometimes said to cause neuropathy.
Posted 26 November 2007 - 09:07 AM
Mine will not only go numb but I also get break-out nerve pain where it feels like someone is stabbing you from the inside. Hurts like crazy and you never know when you will feel it.
The neuropathy is terrible too in that my feet go so numb that I have nerve damage up to my knees now.
Let me know if you have any questions as I have really had the tests and tests and doctor upon doctor on this.
Posted 27 November 2007 - 02:31 AM
Posted 28 November 2007 - 08:43 AM