Posted 24 November 2007 - 05:19 PM
I did raise the bed about six inches a few nights ago so we'll see.
Posted 25 November 2007 - 01:11 AM
Posted 27 November 2007 - 03:15 AM
If you feel like your intestines are being twisted after you eat, then you may have an intestinal infection. A 10 day dose of antibiotics will clear this up. I think they call it "bowel overgrowth". Anyway, just a suggestion as I too was on Reglan and went off as I did not like the side effects. Good luck Gidget
Posted 27 November 2007 - 09:03 AM
ISN Support Specialist
(Retired) ISN Chat Moderator
International Scleroderma Network (ISN)
Posted 27 November 2007 - 09:40 AM
I'm so sorry to hear you're not feelin up to par. I wish you'd check with your doctor's first before stopping any meds. I know we all hate taking anything, but they were given to us for a reason in the first place. I'm guilty of the same, I went back and forth with anti-depressants. I would take them, then feel better and think, "Hey, I'm feelin' great! I don't need these anymore!" Well there was a reason I was "feelin' great", because the pills were working! I think we all try to fool ourselves into believing that we no longer have a symptom, and that it's gone for good, and sometimes that may be the case, but make sure and check with the doctor's. Maybe you can at least wean down to a lesser dose.
I'm thinkin' of ya'.
Warm and Happy to you! Vee
Posted 27 November 2007 - 10:18 AM
I've never been tested for dysmotility, but my symptoms point that I have it.
I consulted with my rheumatologist about going of the meds and he was ok with it, but I have not talked to him yet about going back on them. I just knew I had to go back on Zantac and I'm in the process of seeing a GI Dr. before I go back on Reglan. I would rather know I am taking Reglan out of dire necessity and would almost rather suffer than take a pill that is not for me. Does that make sense? The Reglan was given to my by my rheumatologist and I would rather have a GI dr. prescribe it to me. Just me, I am weird. My husband is wonderful! Right now, the depression is because I hate feeling bad from eatin. Oddly, after I had breakfast, four hours ago, I did not feel bad but now, four hours later, I feel full and like someone is standing on my chest! YUCK. All I had were egg white omelets. So that is what is depressing me. My relationship is great!! I love my life, minus the sclero.
Posted 27 November 2007 - 01:46 PM
Posted 27 November 2007 - 05:05 PM
I was like you a couple of times,I just had to try going of the motilium for about four months. Sometimes you have to see if it really makes a difference. The pain, the
nausea, the constipation. It all came back.
SO< YES< we all forget sometimes that the little things we take make such a difference. Thank goodness there is a pill that helps that now. I heard it wasn't long ago that nothing could be done for dymotility. Hope things get better. Susie54
Posted 28 November 2007 - 06:56 PM
Glad to see that you have an appointment for your GI problems. You need to get those new problems addressed as soon as possible. Hopefully, you'll start to feel better soon, but if you do - promise that you won't cancel the appointment. I always want to go off my Prevacid because I think my GERD no longer exist, but the moment I miss one dose - guess what - it's BACK! UGH! Just shows that some of the meds we take might actually be helping us.
It sounds like your young marriage is really good for you. Hooray!!!!! Living with the one you love is a wonderful thing and can certainly help us get through all the problems we have to deal with. Congratulations!
I love your new avatar!