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Feeling Like Venting


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#1 memeto2

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Posted 16 November 2006 - 05:11 PM

hello,well im ready to vent,so here goes....well since I had the blood clot in my leg the doctor told me I can't take one of my pain pillsbecause it acts as a blood thinner also,and being im on coumadin for life I guess I can't ever take this pill.and now im in PAIN,my legs are killing me.im still on my other pain pill but its not working.i just feel my doctor treats me as if I just have a cold and not a serious disease.he acts as if im ok and ill be working forever.which is the other problem,im still working and I work in a nursing home,so im on my legs constant,i went to work yesterday and felt like crying.i just want to know when is the right time to say enough is enough and I can't keep pushing myself anymore.i am the sole provider here so I feel as though im stuck between a rock and a hard place.i mean how do people pay their bills while they are waiting on disability?i just am at my wits end .sorry to put all this on you all.but would appreciate some input.thanks,take care memeto2

#2 bookworm

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Posted 16 November 2006 - 08:34 PM

Hi,

I'm just now checking into the forum tonight and I saw your venting. I wish I had answers for you, but I don't. Doctors can certainly be insensitive! Your pain should be addressed. The pain killer you can no longer take must be one of the NSAIDS (non steroidal anti inflamatories) like aspirin because I think they all thin the blood. There are other things the doctor could give you for pain and I'd check into this.

Can you find another doctor?

Have you applied for disability? If so, how long do you expect to wait, or do you have any idea?

Possibly, you could see a pain specialist. When I was having severe pain with a digital ulcer, the only one who helped me end the pain was a pain management specialist at a pain management clinic. Fortunately for me, my primary care doctor referred me to the pain management doctor because the pc could see he wasn't getting rid of my pain AT ALL.

I wish I could be more helpful, but maybe someone else will have some good advice for you. I do believe that help is out there. Just don't give up on finding it.


Mary from Texas


#3 Steve

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Posted 17 November 2006 - 02:48 AM

Hi memeto2. I'm sorry to hear about the position you are in. I think the first thing for you to do is address the pain issue, because if that was sorted out you could perhaps carry on working, up to getting disability. This doctor of yours sounds like a lemon! Therefore, I would look up other local doctors (even not-so local) who either specialise in Rheumatology, or at least have a better understanding of it than the one you're with at present. Perhaps if you did a search on the internet for one.
In my case, my Rheumatologist told me that he had done as much as he could for me, and that maybe I should seek further afield. Luckily I found a specialist about an hour's drive away, and I've never looked back. He also helped me fill in my disability forms. When I eventually gave up work, everything was in place financially, which was a great help.
If you've been in the same job for a long time like I had, maybe you have a pension plan in place that may pay out on early retirement?
Anyway, good luck and please keep us informed as to what you do.
Steve.
Take Care,

Steve Dickson
ISN Assistant News Guide for RSS Newsfeed
International Scleroderma Network (ISN)

#4 annkd

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Posted 17 November 2006 - 07:03 AM

Hi! I agree with with Bookworm and Steve. I know that getting the pain under control helps put everything in perspective. You can focus better and deal with the other issues on your plate. Please get the help you need. There are many other medications out there that might be explored. It took several tries to find the right ones for me but now I can manage my days a bit better and I am greatful for that. I kept pushing until someone listened. Keep us posted! - Ann

#5 janey

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Posted 17 November 2006 - 07:36 AM

Ditto on the advice already given. When you are able - find another doctor. If you need help, let us know. We have sources here at ISN and may be able to find one in your area. In the meantime, I'm sending you a link for some ideas that may help to reduce the pain. As you know, fibromyalgia causes a tremendous amount of pain so there have been several studies on treatment of pain. Acupuncture seems to be a big one and I do know several people that have been helped with acupuncture. Some insurance plans cover it. We also have a pain management page that might give you some ideas as well. When you are in tremendous pain, I would think that anything is worth a try. I hope you find something that works for you.
Big, but gentle hugs,
Janey Willis
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(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
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International Scleroderma Network (ISN)

#6 LoriNC

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Posted 17 November 2006 - 11:47 PM

memeto2,

I use a pain management clinic and they have worked wonders.

Find apecialist, even if you have to drive a bit. A specialist xan support your disability case and may improve the odds. The key I hve found with disability is to ensue your Doctors notes are detailed enough and have the actual pharse in the " patient is disbaled"


I think ss does not kick in until 6 months after you quit. does your company provide short term disability - sometimes that will buy you 90 days of reduced income. The difficult part of the disbility approval process is that it takes so LONG!, however once approved you get back payment starting at the 6 month.


Lori

#7 barefut

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Posted 18 November 2006 - 04:10 AM

I'm confused now. I thought blood thinners were good for preventing blood clots? Why would a doctor say to not take them?

#8 Shelley Ensz

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Posted 18 November 2006 - 04:52 AM

Hi Barefut,

I think the issue is that she is already on a blood thinner, so adding an NSAID might thin the blood out too much.
Warm Hugs,

Shelley Ensz
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#9 memeto2

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Posted 18 November 2006 - 11:37 AM

hello,thank you all for your replies.yes the medicine would thin my blood even more ,thats why I can't take it.well I called my doctor and he was his smart self on the phone.when I got off the phone all I could do was cry.he makes me feel sooo worthless.but anyways he gave me a narcotic,and I hate to say it didn't do anything fro the pain.i left work early today because my body was aching so bad.i will look into pain mgmt.thanks so much.you all are soooooo great ...take care memeto2