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Biomarker for Diffuse Scleroderma skin has been discovered!


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#1 peanut

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Posted 08 December 2007 - 07:10 AM

I will be flying on Wednesday to Chicago. I typically organize my prescription medicines into little pill pouches. I write on them the time of day I'm supposed to take them. Does anyone know if I'm carrying on my meds do they need to be in their pharmacy issued bottles or can I leave them in pouches?

confused,
peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#2 Snowbird

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Posted 08 December 2007 - 08:00 AM

Hi Peanut

I'm guessing in their prescribed bottles these days with all the new rules. I suspect you might even be able to find some information about that online in the specific airline website. Sometimes drugs cannot be put through the scanners either (it will damage/cause some pills to spoil somehow)...you may want to confirm with your pharmacist/doctor on that one. I know my sister had to take some drugs with her one time on vacation and her doctor insisted that she provide security personnel with her doctors note requesting they do not put them in any scanners as they would lose their potency or something or other and would be of no use to her when she got where she was going? Ideas for you to check on anyway...and oh yes, I agree cute pictures!

Hugs, Ramona
Sending good wishes your way!

#3 Sheryl

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Posted 08 December 2007 - 10:14 AM

Peanut, you most likely won't have trouble because you are not leaving the United States. If you were leaving and having to reenter the country that would be a different story.
You are suppose to leave them in there original containers.
You can have extra pills in a container say 90 in a bottle for 30 but they are suppose to be the same prescription. They frown on pain medication leaving the country without proper prescription information.

Another thing that is very handy is to use the extra stickers you sometimes get when filling a prescription and putting them all on a piece of paper or have your pharmacy print you up extras in the future to have on a sheet of paper for proof and carry that in your purse. If you get all your prescriptions in one place then they can run you a sheet off of what you take and if will be exactly how the script was written out for. You may not take those exact doses anymore but the information will all be there. That way if something were to happen to you others would know what your routine is how much and how many things you require each day and time peroids.

Good luck and have some fun while you are there. I wish I lived near Il. I would meet up with you and show you around to all the hot spots. I'm 6 hours away and heading to Florida next weekend. Let us know things that transpired. And what you thought of the different treatments. Sheryl
Strength and Warmth,
Sheryl

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#4 Sweet

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Posted 08 December 2007 - 10:31 AM

Hey cutie pie,

Definitely in the prescribed bottles. It's a pain, but you could lose them (they take them away) if you don't. I have had it happen.

Looking forward to hearing about your trip.
Warm and gentle hugs,

Pamela
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#5 peanut

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Posted 08 December 2007 - 12:00 PM

Sweet,
You make an excellent point... I definitely wouldn't want to be without my meds... I'd be miserable - but then I'd qualify for the stem cell transplant for sure. He He. Don't wanna risk it though.

(I'm going to Chicago to see about a Stem Cell Transplant... )

hearts,
peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#6 Sweet

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Posted 08 December 2007 - 12:28 PM

I even tried to explain to them what the meds were and why it was so important for me to have them, but noooooo. I must have looked a little like a smuggler or something. hehe

Really looking forward to seeing how the appt. goes Peanut.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#7 peanut

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Posted 08 December 2007 - 12:56 PM

Well I called the reservations desk to be sure... I didn't want to call cause I don't like being on hold and those automated phone systems drive me crazy cause they never pick up my voice. The lady said I could keep them in my pill pouches but they have to be in a 1 quart zip lock bag. I told the lady, then I'd have 1+ more zip lock than I'm allowed. She said they can't deprive me of my meds.

I suppose it wouldn't be a big deal but it's at least 21 bottles to pack, what a pain.

Oh these new FAA regulations make a person a little nutty.

peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#8 Clementine

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Posted 08 December 2007 - 02:13 PM

Good luck Peanut! I always carry on my medication, in the bottles, and even go as far as having my latest dr. report with me, which lists all the meds I am taking. I feel better traveling with medical information, just in case I were to get sick on the flight or whatever. You may consider taking advantage of the wheel chair at the airport if you have to catch another flight. Sometimes it can be a looong walk and I doubt you'll have your oxgyen at that point. Good luck sweet heart. We will be thinking of you and hoping for the BEST!!!
Tangie

#9 Piper

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Posted 08 December 2007 - 04:35 PM

Hi Peanut, I flew today and just arrived in Key West. I was told to have all my meds in their original containers plus the official receipt for the script. They never looked at them but I had them all in my carry on in a large zip lock bag if they wanted to see them.
You should take advantage of the wheel chair. Most airports are very large and everyone seems to goes like crazy.
Hugs, Piper

#10 lizzie

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Posted 09 December 2007 - 02:15 AM

Hi Peanut, we have similar (if not stricter!) regulations here in the UK. Last year things were really tough and we couldn't take any handluggage, just a small clear plastic bag with a passport and little else (not even a book!). My husband and I were in Paris at that time and my son who has chronic renal failure and consequently takes lots of meds was flying over from the UK to see us. He had his tablets in a special pill box, rather than in the boxes and bottles they came in. Because he didn't have a doctors note or a prescription with him they were going to confiscate them, he told them if the tablets didn't go neither could he, he had to go through each tablet telling them what they were for and they eventually let him through security with them.
Hope all goes well for you in Chicago
Lizzie

#11 peanut

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Posted 09 December 2007 - 11:04 AM

official receipt for the script??
Does that mean a receipt from the pharmacy or a note from my doctor saying he wrote the script? Oh dear. That means I have 2 days to collect letters from 3 doctors... *sigh*

peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#12 Piper

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Posted 09 December 2007 - 02:18 PM

Hi Peanut, It was just the receipt that you get when you pic up the script from the drug store. I wouldn't worry. I was going from Canada to the U.S so maybe they are more strict with us. For you it's just like travelling from state to state. Have fun!
Hugs, Piper

#13 Sheryl

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Posted 09 December 2007 - 02:33 PM

Peanut, you are staying in the states so you will be fine. Just keep them in their original bottles if you can. You really shouldn't have a problem. Its when you leave and enter another country, that they check or when you come back to this country after traveling abroad that we check. Sheryl
Strength and Warmth,
Sheryl

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#14 Denelle

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Posted 10 December 2007 - 03:34 PM

Hi,

I didn't have any trouble when I flew from MN to GA in August. I had all my pills in their days case, plus the bottles (because I was going for more than 7 days ;) ). I was very concerned, but I had no trouble at all.

Good Luck in the Windy City!

Denelle B)

#15 Sheryl

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Posted 11 December 2007 - 01:35 AM

Hi Peanut, I hope you were / are able to get into Chicago today. The airport is still iced in from the few pictures that I have seen. Its a scarry day to fly I wish you a saft trip if you are able to get out. Sheryl
Strength and Warmth,
Sheryl

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#16 janey

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Posted 11 December 2007 - 05:20 AM

Peanut,
Have a great trip! Look forward to hearing about all of your adventures. Try to stay warm.

Warm, warm hugs,
Janey

#17 Snowbird

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Posted 11 December 2007 - 10:27 AM

I wish you good luck too Peanut!

Ramona
Sending good wishes your way!

#18 peanut

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Posted 11 December 2007 - 11:52 AM

Hey friends,
Thanks so much. I actually leave tomorrow... but it's wonderful to read your kind wishes. I did get an "official answer" to my meds question.

I called the airlines and they said it's okay to leave them in AM/PM medication organizers. I called the airlines disability/handicap line and they said it's okay to leave them in AM/PM medication organizers. Then I called the Transportation Security Administration (TSA), the people who do the actual screening. They said it's up to the discretion of the screener but YES, you should have official documentation on your meds meaning yes, they should be in their original pharmacy bottles and NOT in AM/PM medication organizers.

I love how I get 2 wrong answers...

hooray for tomorrow,
peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#19 emmie

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Posted 11 December 2007 - 06:47 PM

Hi peanut,

I haven't posted in a few months, but do keep up regularly. I live in the Chicago area in fact quite near O'Hare. (I assume that's where you are flying; if Midway I'm quite a bit away.) Anyway, the ice didn't hit this area nor the city like it did in others; no pwer outages, trouble getting around etc. However, the airport is having problems with incoming and outgoing flights due to weather problems in other areas and de-icing etc.
I really hope this doesn't affect you. I'm sure you're anticipating and dreading this visit all at the same time.

If I were feeling better, I'd love to meet you. I hope you enjoy the sight seeing aspect of your trip (downtown Chicago is truly beautiful in my opinion, but I may be biased.) And most of all, I wish you the very best with your doctor visits and the information you get.

Be safe.
emmie