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Feet Problems Again!

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#1 summer


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Posted 09 December 2007 - 10:51 PM

It has been nearly 12 months now since my diagnosis of Crest/Limited Scleroderma. My very first initial symptom was stiffness/soreness of the Achilles Tendons on both feet. I recently have been fully weaned of Prednisolone and while I am sort of happy to be off this, the pain I am feeling in my feet/ankles/achilles areas is terrible :( , I only have to walk now 10 feet and the pain is becoming unbearable. Nothing seems to help with the pain, I have noticed though that I have now swelling in both feet, all around especially around the tops of the feet and ankles. My heels have large dry cracks on them and cream doesn't really help much.

Would anyone please be able to tell me what causes the swelling?
Any suggestions are always appreciated.

Many thanks

#2 debonair susie

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Posted 10 December 2007 - 05:14 AM

Hi Celia,

I'm sorry to read that you are having such pain... when the feet hurt, the entire body seems to hurt :(

I have the REST of CREST/Limited Scleroderma and have had some pain in my feet, at times... but it isn't as bad as what you are experiencing. Prior to.. and after... my diagnoses, I had alot of pain but just figured I needed to accept the fact and live with it. However, though I was a slow learner :P ... 5 years later, the pain management began. I never appreciated how good it felt to be pain-free, once in a while.

I have a question... do you have neuropathy in your feet?

At any rate, I feel bad for you and hope you can get relief soon.
Special Hugs,

Susie Kraft
ISN Support Specialist
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International Scleroderma Network (ISN)

#3 WestCoast1


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Posted 10 December 2007 - 06:59 AM

Hi Celia, Has your rheumatologist ever suggest that you see a Podiatrist for your feet problems?


#4 kelowna52


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Posted 10 December 2007 - 07:33 AM

Hello Celia, I totally understand what you mean as far as foot pain goes. Whenever I sit down or get out of bed I can hardly walk the pain is so bad in my feet. I had Bunion surgery 7 weeks ago and I swear the pain is worse now than it was before. I have the same amount of pain in both feet. Just staying off of my feet seems to help some. Well, take care and good luck to you.

Jackie S.

#5 Denelle


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Posted 10 December 2007 - 03:29 PM


I just wanted to let you know that swelling of the feet can be a sign of pulmonary hypertension... do you have any shortness of breath? If not, then I wouldn't be concerned about that. If PH doesn't seem to be a possibility, then a podiatrist could be helpful.

Good Luck,
Denelle B)

#6 peanut


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Posted 10 December 2007 - 09:33 PM

Hi Celia,
I agree with Denelle about swelling especially in the ankles. Please monitor this carefully.

I will be seeing a podiatrist soon for mysterious pain in my feet, but not nearly as bad as yours. I did have a similar experience in college. I walked to class in new tennis shoes and pain started shooting from all over the bottoms of my feet to the point where I couldn't walk any longer. I took them off and walked barefoot back to my dorm to get inserts I wore in other shoes, which provided some relief.

best of luck,

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#7 summer


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Posted 10 December 2007 - 11:13 PM

Thanks everyone for replying to my post.

Westcoast, I see my rheumatologist in a weeks time, I will mention it to him then about my feet problems.

Susie, As far as I know I don't have Neuropathy, I'm not even sure what it is.

Many thanks

#8 Sam


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Posted 11 December 2007 - 03:06 AM

Celia, try this to see if the swelling will go down, lay on the floor if you can and put your legs against the wall up in the air. Only do this five minutes then get up. My mom does this and it helps her. She has swelling in her legs all the time. Hope this helps, I'm sorry your having pain too. Take care, Sam