Can Anyone Please Help Me?
Posted 13 December 2007 - 09:45 PM
I TRULY and deeply appreciate ANY wisdom and insight you may have to offer. TWO rheumatologists were baffled and not helpful so far, and we wait months to see them. I wonder if this skin thing COULD be MCTD related, and what tests I should ask for to rule out MCTD and maybe muscle damage.
Posted 14 December 2007 - 09:41 AM
Welcome. I hope you find some answers. It is frustrating being in limbo. I have scleroderma and suffer from hands that peel their entire layer of skin. I thought it was related to work and the soap I had to use there, but it happens even when I am not working... so that is one thing that is in common with scleroderma.
Good Luck in your quest,
Denelle in MN
Posted 14 December 2007 - 10:34 AM
I am sure you'll find some answer's here on the forum. This is a wonderful group of very insightful and caring people.
I haven't had the peeling problems that you've had, but I do get A LOT of dry skin build up around my fingertips and finger nails. I get a lot of cracks on my fingers as well.
Good luck to you,
Posted 14 December 2007 - 11:43 AM
Welcome to the Sclero Forums. I'm so glad you've joined us. Sounds like you doctors have their hands full trying to come up with a diagnosis for you. I don't have any brilliant insight, but I would encourage you to hound your doctors and continue to work with them until they can come up with something. Are you on any meds?
Posted 22 June 2008 - 11:37 PM
I haven't been diagnosed with anything but I first had an incident five years go when my fingers swelled and feet were sore and then the skin peeled on both areas. I also had lots of tingling and weird feelings.
I forgot about it all until recently when it started up again ... no peeling but the arrival of raynaud's on feet and then hands. Lots of tingling and mild pain. I'm nearly 40 so a little old for primary raynaud's (but still hoping).
I'm all negative for blood tests and no major pain so it's a waiting game for me. Never heard of anyone else with peeling skin.
Posted 23 June 2008 - 01:04 AM
My doctor feels now, that this is a Sclero issue rather than allergic as it keeps happening. Last two days itching began again. Every time it occurs, it's back on Prednisone and Hydroxyzine and I can't continually take the Prednisone. I'm going to do the wait and see procedure, take the Hydroxyzine and see if it passes.
I'm beginning to tend to side with the general practitioner in that my overall body skin gets a tautness and tightening feeling to it just prior to peeling.
As I've said here on several occasions, I recall vaughly and through my mother's recollections, that many, many years ago my father had peeled from head to toe and had doctors totally baffled. It eventually went away on it's own.
It is what it is...........
Posted 23 June 2008 - 03:43 PM
I'm sorry to read about the problems you are having. I've never had any peeling problems like you describe so I did a little research and found a couple of articles you might find interesting. The first one is from the Mayo Clinic. Just click on the links to reach the article.
Peeling Skin on hands. What causes it?
Peeling Skin Syndrome. WebMD.
I'm certainly no doctor but with a positive ANA and your family history I think you need to keep working with your doctors (particularly your rheumatologist) until you get some answers. Please keep us informed.
Again, welcome to the ISN forums.
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