Jump to content


Congrats to Margaret, Platinum Member with 1,000 posts and 10 Years of Forums Membership!


Photo

Cold On The Inside


  • Please log in to reply
13 replies to this topic

#1 Margaret

Margaret

    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,002 posts
  • Location:Pennsylvania

Posted 17 December 2007 - 06:18 AM

Hi, Everyone~~~

I have another question. It's been very windy and cold and Gareth is shivering, even in the house....temp is 70 inside. Does anyone have experience with the inside body being *cold*? He doesn't have Raynaud's but his hands are chilly. No matter how bundled up he is, he still shivers/shakes. He doesn't have a fever and the pneumonia is cleared up. This has been going on for two days now. Just curious.

Take care, Everyone.
Margaret

#2 Sharonvandee

Sharonvandee

    Silver Member

  • Members
  • PipPipPipPip
  • 118 posts
  • Location:Albury Australia

Posted 17 December 2007 - 10:17 AM

Dear Margret

I do have Raynaud's and I feel cold on the inside and out. even in a warm room I can take a couple of hours to get warm. I mostly feel it in the hands and the feet. It is summer here at the moment but simple things like showers, airconditioners, wet hair and walking on wet grass will start me off and I feel like I am shivering on the inside. I drink warm drinks which help a little.

good luck
Kindest Regards

Sharon

Diagnosis Scleroderma-crest, Scolliosis, Asthma, ILD, Plueral Fibrosis, GERD, Hiatus hernia, Anticardiolipin positive, ANA positive

a little bent and broken and almost beyond repair!

#3 Sam

Sam

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 640 posts
  • Location:Delta, Ohio

Posted 17 December 2007 - 10:45 AM

I get that way too especially when I am coming down with a cold. Like I have now. What I do when that happens I take a nice warm bath or shower or I will sit by my little heater. Also I will drink something warm, tht usually helps me. Hope this helps. Sam
Sam

#4 janey

janey

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 2,118 posts
  • Location:New Mexico

Posted 17 December 2007 - 12:40 PM

Margaret,
Most of the time, my "cold feeling" comes from the inside out. Therefore, I try to warm myself from the inside (along with wearing lots of layers of warm clothes). I drink several cups of hot tea, have soup at least once a day and never eat nor drink anything cold. For breakfast I have fruit, almonds, and soy milk. At an hour before eating I set everything on the counter to warm up to room temperature. I order water and all drinks with no ice. All of this seems to help. Of course, a few warm hugs from the hubby and friends help too.

Warm hugs to Gareth,
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#5 aniwallar

aniwallar

    Senior Bronze Member

  • Members
  • PipPipPip
  • 92 posts
  • Location:Soeul, South Korea

Posted 17 December 2007 - 01:18 PM

Hi Margaret:
I know what you are talking about. Very often I feel cold in the inside and when this happens, it very hard to warm up. You just shiver no matter what you do. Take the advise given here (I will too) about drinking warm drinks and wearing layers of clothes.
Hope everything gets better.
Ani

#6 Margaret

Margaret

    Platinum Member

  • Topic Starter
  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,002 posts
  • Location:Pennsylvania

Posted 17 December 2007 - 03:08 PM

Hi Everyone,

Thanks for the replies. Since this is a *new* symptom, I assumed it was
sclero related......probably from vascular reasons, right?

Take care, Everyone.
Margaret

#7 Denelle

Denelle

    Senior Bronze Member

  • Members
  • PipPipPip
  • 50 posts

Posted 17 December 2007 - 04:43 PM

Hi,

I use warm packs that go in mittens, scarves, and electric blankets and heating pads. The best way I warm up when I am "cold on the inside" is to use an electric blanket, wear a hat and a scarf. Then I get nice and toasty.

Good luck warming up.

Denelle

#8 emmie

emmie

    Senior Silver Member

  • Members
  • PipPipPipPipPip
  • 321 posts

Posted 17 December 2007 - 07:14 PM

Hi Margaret,
I have the same cold thing going on. I do all of the things that have been mentioned above. I also use the little heaters for the hands in the pockets of my jeans/slacks. They really help me warm the core of my body. Also, wearing a hat outside if you live in a climate that is cold helps tremendously.

Has Gareth's thyroid function been tested? Being cold is also a symptom of a thyroid function that is "out of whack".

emmie

#9 Buttons

Buttons

    Senior Silver Member

  • Members
  • PipPipPipPipPipPip
  • 610 posts
  • Location:UK

Posted 17 December 2007 - 08:24 PM

I also seem to get cold from the inside, I wear lots of thin layers & warm my t-shirts, gloves etc on the radiators before putting them on, I find this helps me to warm up a little quicker. Like Janey I don't like to have cold food or drink & get it out of the fridge to come up to room temperature before having it. When feeling really cold I sit with my back against the radiator while reading,it helps me to relax a little bit which then stops some of the aches and pains due to tensing up while cold.

Stay warm

Jensue

#10 lizzie

lizzie

    Senior Silver Member

  • Members
  • PipPipPipPipPip
  • 497 posts
  • Location: UK

Posted 17 December 2007 - 10:28 PM

Hi Margaret, the information re raynauds and scleroderma often advises that it is important to maintain the core body temperature - I think that the feeling "cold on the inside" signifies that the core body temperature is low and that action should be taken to warm it up. Like Gareth and others, I get the inside shivers , especially at the start of the cold winter weather when my body has not adjusted to lower temperatures. I find it hard to warm up when my core temperature drops, just putting on more clothes doesn't seem to work- just keeps the cold in! I find the best way is to have a quick warm bath or shower and the put on 2 ot 3 layers of pre-warmed clothes, wrap a blanket round me and have a hot drink. Of course the best thing is to avoid it happening if possible - when I'm working in my office or at home I now sit with a blanket over knees and most importantly a hot water bottle - it makes all the difference although does mean I get I lot of wisecracks from colleagues! The other thing that I find really helpful in keeping warm are disposable hand warmers worn inside fleece fingerless mitts with special pockets to put them in. I got them from the Raynauds and Scleroderma association in the UK but Im sure it would be easy to adapt an ordinary pair of mitts.
Lizzie

#11 jaxs

jaxs

    Silver Member

  • Members
  • PipPipPipPip
  • 112 posts

Posted 18 December 2007 - 02:57 AM

hey margaret
i do have Raynaud's and im always cold even with my heating on full, I sit always with hot water bottles and always wear socks , I always have cold feet and and my body always feels chilly, jaxsx
live life for today and not for tomorrow

#12 peanut

peanut

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 738 posts

Posted 18 December 2007 - 03:31 AM

Hey Margaret,
I get chilled on the inside too. I sit on my heating pad and cover myself with blankets or I crack out the electric blanket and try to rest. A bath helps too.

hearts,
peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#13 danceswithcats

danceswithcats

    Senior Bronze Member

  • Members
  • PipPipPip
  • 35 posts
  • Location:Phoenix AZ

Posted 18 December 2007 - 05:48 AM

Here's another 'freeze baby'! I also take all drinks room temperature, no ice, keep heating pad and blankets handy where I sit on the sofa, wear 2 layers of heavy socks on my feet and leg warmers ... they really help ... Target has them right now for $7. Hot showers feel great while I'm taking them but then I chill off so bad it's not worth the effort! I use an electric blanket in bed along with a warm fuzzy blanket to lay on and warm blanket over me on top of the heating blanket and a comforter! I haven't found any type of gloves that work at all in keeping my hands warm that still enable me to be functional (driving the car, etc.) I keep a wool rug on the floor in front of where I sit on the sofa as well as a very low footstool that keeps my feet off the cold floor as well as supports my back. I keep 2 blankets in the car and pile them on when I'm in the wheelchair as doctors offices are always freezing cold! Lots of accommodation for the problems encountered with this stupid disease. But we manage, don't we?!

#14 bookworm

bookworm

    Silver Member

  • Members
  • PipPipPipPip
  • 292 posts
  • Location:Texas

Posted 18 December 2007 - 06:08 PM

Hi, Margaret,
I agree with all the suggestions. Some I already do and others I intend to try. In Texas, people look at you kind of funny when you order water with no ice or tea or coke with no ice! Now, I also request water that it's right out of the tap because, usually if you just request no ice, the water is still freezing cold.
The main thing I want to add is that I shivered when you said the room was 70 degrees. I'd be freezing in a 70-degree room. Right now, my thermostat is set on 77 and I am wearing layers of clothes, socks and have been sitting covered up. The temp. outside was 70 today! So it isn't as if we're having a cold snap.
I feel guilty for setting the heat so high and using more than my share of the earth's resources, but I figure I make it up in the summer when everyone else is air conditioning themselves into the frigid zone and my air conditioner isn't even turned on. Since I live in Texas, it is very hot in the summers and not so cold for most of the winter.
I do have one other neat thing. It looks like a very wide fleece boot. Both my feet go into it and it's electrically heated. It is pure Heaven! I use it when I watch TV or sit knitting.!
Good luck on warming up Gareth!

Mary in Texas