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Newbie Looking For Help

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#1 Suriaty



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Posted 17 December 2007 - 06:38 AM

Hi..good day. Firstly, I hope you can understand me because I'm not so good in English.

Let me introduce myself. My name is Suriaty, I'm writing from Malaysia. I am a daughter to my 54 year old mother who has been suffering from scleroderma for more than 30 years. I have been looking for someone who can share the knowledge about this disease. Doctor told me, in Malaysia that there are only around 3-5 person scleroderma patient.
It have been very stressful to see my mother get worse from year to years. I'd like to know, what is the basic medication that given by a doctor for systemic scleroderma patient in your country?

Is UV blood irradiation can help pneumonia among scleroderma?

I really hope u will be able to answer me.


#2 janey


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Posted 17 December 2007 - 12:54 PM


Welcome to our forums! Thank you for introducing yourself and joining us. Your English is great so please feel free to ask more questions. There is a lot of experience in this group and lots of hugs to go around.

Hugs to you and your mother,

Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#3 Sweet


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Posted 17 December 2007 - 01:21 PM

Hi TQ,

Welcome to the Sclero Forums. I'm so glad you've found us. You will find a lot of great info here in addition to support and friends that truly understand what you are feeling and what your mom is going through.

Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)