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The Persistant Toe

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#1 truman


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Posted 27 December 2007 - 05:29 PM

Seems the chronic persistent toe may just be a memory. Doctor feels as of today, I may lose the foot. Just had my last cigarette. doctor. allowed my friend into the room with me today. She told him he's not to work on me without numbing my foot. He complied and must have went out of his way to do an extreme cleaning and cutting. When I got home, I realized there was blood on the carpet, the kitchen tile, the bathroom, etc. The bleeding was out of control (probably due to the plavix I'm on). Ironically, he called the house asking for my younger son, when I realized who he was, I explained what was happening and he said just to keep the foot elevated and come in tomorrow to change the dressing. He said he was calling my son to explain the seriousness of the situation in hopes that he would react to help me. I never heard from them at holiday, so I doubt I'll hear even with the doctor calling him. I've never felt sorry for myself, and I will never put myself in that situation. The doctor did say he felt I would qualify for permanent disability, so I did begin filling out the flood of paperwork today. Six hours total, so far, in paperwork responses. He also prescribed an anti-depressant in an effort to celebrate the last cigarette and I must say, they are quite pleasant.

Sorry to be a downer with this post, but it is what it is. I firmly believe that our illness is not as extinct as stated. Doctors need to recognize the symptoms as they occur. CREST and Sclero are more prevalent then they realize. There needs to be some bulletin, convention, etc., to get the awareness out to the medical field to define and teach the symptoms for quicker treatment of any given situation that patients come in with.

It is what it is...........

#2 Sweet


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Posted 27 December 2007 - 07:45 PM

Oh Tru,

Your post brought tears to my eyes. I am so sorry to hear you toe has now progressed to endangering the rest of your foot. I will think positive thoughts for you.

Please hang in there and congrats on the NO SMOKING! Yippee!

Love ya
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#3 lizzie


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Posted 28 December 2007 - 04:33 AM

Hi Tru , really sorry to hear that there is a possibility that you may lose your foot. Keeping my fingers crossed that it doesn't come to that. I echo Sweets congrats on quitting smoking - It really is something positive that you can do to improve your circulation. The paperwork for the disability application sounds a nightmare - its the same here, I don't know why it has to be so complicated. Hope that that both your phsyical and family situation take a turn for the better.

#4 Peggy


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Posted 28 December 2007 - 06:04 AM

I'm so sorry to hear about your foot! You are in my thoughts and I too cried when I read your post.

I too am trying to get disability but I did mine online and it was quite quick. I had my telephone interview a few weeks ago and now they are in the process of getting the records in St. Paul (I live in Minnesota). Supposedly because I have sclero they are moving it to expedited status due to the nature of the disease so I hope that in your case they will do that also.

Good luck on your quitting smoking. I know it won't be easy.

Warm hugs from Minnesota.


#5 truman


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Posted 28 December 2007 - 01:02 PM

Hi Peggy:

I applied on line for permanent disability yesterday with application and medical history forms. They actually called today to tell me to download the medical release applications, sign and return to their office. I downloaded about 15 for their needs, just as the mailman was coming for drop off of mail. He took the forms.

SSA said all I need now is my birth certificate, but not at this point. I hope they do process as soon as possible. The woman said 4-6 months. I don't blame the wait, as they must try to weed out the "users" of the system as compared to the people who deserve the "rights" of the system.

Almost 19 hours and no cigs. Did take a toke of the Nicoderm about 5 minutes ago.

PS: Had to go back to the foot doctor today due to hemorrhage last light. Apparently great deal of work done on my foot yesterday. Large toe almost gone. Doctor on duty said toe looked great with no sign of infection. (Just one day off cigs?). If so, count me in. PS: doctor is one great looker! Seeing him again on Monday.

Happy New Year everyone........suddenly feeling a renewed sense of Spirit.

It is what it is...........

#6 WestCoast1


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Posted 28 December 2007 - 06:52 PM

Hi Truman,
I am so glad to hear of your progress with smoking. It really is confermation that your efforts to quit have improved your toes healing.

Keep up the good work, you are doing great.


#7 Buttons


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Posted 28 December 2007 - 08:39 PM

Hi Truman

Would just like to wish you well & hope that you have a better New Year.

I can't imagine how you must be feeling but well done for giving up the smoking.

Take care