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#1 beedee


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Posted 02 January 2008 - 11:10 AM

Hello Everyone!
I haven't been on these boards for awhile, but some new morphea spots have got me all stressed again. I woke up on new years day to a pea sized bump on my wrist, which I am assuming is linked to the morphea as well. I am on two ointments, an immunosuppressant and a steroid, but they just seem to be fading the bruises a tiny bit, and that's all. The morphea is now on most of the front of my breast, and the side, as well as above it, as well as a few spots on my forearm, and my ring finger, and part of my palm, and now this tiny spot on my wrist. All of these spots are on my left side.
I've been so tired lately too, don't think it is a side effect of morphea, but probably the stress that we think has caused this all.
Contacted my dermatologist today and after talking to his nurse, my Feb 5th appt, has been moved up to Jan 11. She said they need to look at the progression and the new spots and discuss our next steps, which is light therapy as my dermatologist has mentioned it to me before. When I last saw my dermatologist in November, I only had morphea on my breast. Hopefully we can get this under control soon!

#2 MicheleM


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Posted 02 January 2008 - 12:41 PM

Good luck to you with the next appointment. You're right about stress contributing to the exhaustion you're feeling. Do what you can & let the rest wait until you're feeling better! Hope your dr has some good advice & plan that you can follow! Keep us posted!
Soft hugs your way,


#3 beedee


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Posted 05 January 2008 - 12:37 PM

Thanks Michele!
Only a week (or so) to go for my dermatologist appointment. I'm nervous about it, but looking forward to it as well. I'm just really anxious to try a new treatment (which I think he will suggest) and hopefully see an improvement.
Since it's going to be light therapy (UVB) as far as I know, has anyone had it, and how does it work? What does it actually do to get rid of the morphea?

#4 janey


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Posted 05 January 2008 - 05:15 PM

Welcome Back BeeDee,
I'm sorry that you are seeing more spots and experiencing more fatigue. Glad that your dermatologist appointment has been moved up. Have you explored our page on Morphea treatments? Here's an article you might interesting. It compares the different light therapies and finds them all effective.

A randomized controlled study of low-dose UVA1, medium-dose UVA1, and narrowband UVB phototherapy in the treatment of localized scleroderma.

Please keep us informed on how your appointment and treatments go.

Big Hugs,

Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#5 beedee


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Posted 06 January 2008 - 05:27 AM

Thanks Janey! I had looked at the treatments page, but it was quite a while ago. I found that article comparing the different light therapies to be quite interesting, as I had wondered if they were all equally effective. Its good to see that the UVB should be just as effective as UVA. Thanks again!