Posted 02 January 2008 - 11:10 AM
I haven't been on these boards for awhile, but some new morphea spots have got me all stressed again. I woke up on new years day to a pea sized bump on my wrist, which I am assuming is linked to the morphea as well. I am on two ointments, an immunosuppressant and a steroid, but they just seem to be fading the bruises a tiny bit, and that's all. The morphea is now on most of the front of my breast, and the side, as well as above it, as well as a few spots on my forearm, and my ring finger, and part of my palm, and now this tiny spot on my wrist. All of these spots are on my left side.
I've been so tired lately too, don't think it is a side effect of morphea, but probably the stress that we think has caused this all.
Contacted my dermatologist today and after talking to his nurse, my Feb 5th appt, has been moved up to Jan 11. She said they need to look at the progression and the new spots and discuss our next steps, which is light therapy as my dermatologist has mentioned it to me before. When I last saw my dermatologist in November, I only had morphea on my breast. Hopefully we can get this under control soon!
Posted 02 January 2008 - 12:41 PM
Posted 05 January 2008 - 12:37 PM
Only a week (or so) to go for my dermatologist appointment. I'm nervous about it, but looking forward to it as well. I'm just really anxious to try a new treatment (which I think he will suggest) and hopefully see an improvement.
Since it's going to be light therapy (UVB) as far as I know, has anyone had it, and how does it work? What does it actually do to get rid of the morphea?
Posted 05 January 2008 - 05:15 PM
Welcome Back BeeDee,
I'm sorry that you are seeing more spots and experiencing more fatigue. Glad that your dermatologist appointment has been moved up. Have you explored our page on Morphea treatments? Here's an article you might interesting. It compares the different light therapies and finds them all effective.
A randomized controlled study of low-dose UVA1, medium-dose UVA1, and narrowband UVB phototherapy in the treatment of localized scleroderma.
Please keep us informed on how your appointment and treatments go.
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)
Posted 06 January 2008 - 05:27 AM