Jump to content


Do you want up to date information about Scleroderma? Check out our Medical pages at www.sclero.org for all your Scleroderma questions!


Photo

New Symptom


  • Please log in to reply
9 replies to this topic

#1 aniwallar

aniwallar

    Senior Bronze Member

  • Members
  • PipPipPip
  • 92 posts
  • Location:Soeul, South Korea

Posted 02 January 2008 - 04:52 PM

Hi:

I have been feeling a lot of new symptoms lately but I have read about them and I almost expected them. However, there is this one symptom that is driving me a little crazy. I feel tingeling on the left side of my face, like it's pins and neddles. I get that same thing ALWAYS in my hands and feet but never on my face.
Has anyone experience something like this before. I don't know if I should call my doctor about this, specially since I am schedulge for so many test next week.
Thanks for your advise,

Ani

#2 Kamlesh

Kamlesh

    Senior Silver Member

  • Members
  • PipPipPipPipPip
  • 315 posts
  • Location:Dublin, CA

Posted 02 January 2008 - 05:36 PM

Hi Ani,
I was getting tingling on left side of my face and on my lips. It has reduced little bit since it started about 8-9 years ago. My doctors could not figure out root cause of the problem, but they thought it was some type of Neuropathy either due to diabetes or scleroderma. I hope this is not the case in your case. In my case it is permanent damage to the nerves and cannot be reversed.
Kind regards,

Kamlesh


#3 Jordan's Mommy

Jordan's Mommy

    Senior Bronze Member

  • Members
  • PipPipPip
  • 70 posts

Posted 02 January 2008 - 05:40 PM

Hi Ani,

I do not have scleroderma (my 7 year old daughter does), but shortly after her diagnosis, I began to have lots of tingling that feels like pins and needles on the right side of my face. I had a CT scan, an MRI, and some bloodwork done, but the neurologist couldn't find anything wrong, nor could the two radiologists who read my scans. They basically attributed it to stress, which makes sense since I was desperately trying to come to terms with my daughter's illness. As I write, I have the sensation going from my cheekbone to my jawline. I would talk to your doctor about the tingling, but it could just be caused by stress.

Take care,

Jennifer

#4 truman

truman

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 625 posts
  • Location:NJ

Posted 02 January 2008 - 09:13 PM

Funny the subject came up. I'm beginning to get symptoms in my lower right leg now, but the most evident started this evening. I am getting a tingling and itching at my wound area of the toe amputation. I am taking it as a signal of some sort of healing, as I gave up smoking a week ago. I hope this is the case, because the doctor had mentioned the possibility of losing my foot. It's impossible to get a peek, as they keep it heavily bandaged. Of the areas of the foot and ankle that I can get to, I put on lotion and massage the area in order to get more a a blood supply going.
Tru

It is what it is...........

#5 aniwallar

aniwallar

    Senior Bronze Member

  • Topic Starter
  • Members
  • PipPipPip
  • 92 posts
  • Location:Soeul, South Korea

Posted 02 January 2008 - 09:48 PM

Kamlesh:

I was actually thinking of some kind of neuropathy but the tought of that scares me. I started with tingling on my hands and feet and it has never gone away. I have that 24/7. I had tests but the doctor only found carpaantunnel (sp) syndrome but that doesn't explain the tingling on my feet. Well, now my face.
I had read that people with scleroderma can get peripheral neuropathy. I guess I'm going to add a couple more tests to the ones I'm having next week.

#6 Peggy

Peggy

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 635 posts
  • Location:Minnesota

Posted 03 January 2008 - 08:57 AM

Peripheral neuropathy is how my disease first came to light for me. I have it in my hands and feet and it started out with the tingling sensation that then advanced to them going numb and then it has gradually moved up the arm and has moved up to the knees on my legs. It took a year for them to figure out what was causing this and that's when I got the diagnosis of systemic slero with Sjopgren's, Raynauds and mixed connective tissue disorder. There are some days when I think I am more exhausted that others that my eyes twitch and one side of my face which I think is the sclero.

Hope this helps.

Warm hugs from Peggy from Minnesota

#7 Ann R

Ann R

    Newbie

  • Members
  • Pip
  • 8 posts

Posted 03 January 2008 - 01:51 PM

I've had tingling under the skin for about 3 years now - hands, arms, legs and face. Some days it drives me crazy :wacko: . The only explanation my Doctors can come up with is irritation of the nerve endings but not a reason why they may be irritated.
Ann R

If you sweat the small stuff you have wet, soggy small stuff.

#8 Snowbird

Snowbird

    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,008 posts
  • Location:Canada

Posted 03 January 2008 - 02:34 PM

Humnn....I was awakened a few separate nights a couple of weeks ago because both my hands were tingling all over at the same time....and again on a different night with just 2 fingers on my one hand tingling like mad....it didn't last long when it did happen...but it was sure bothersome enough to wake me from a good sleep at the time, so I kinda thought in my groggy stupor, hey what's going on...but then I fell back to sleep again each time too.....this was new for me and has not happened since then...I have no idea what that was (other than I thought it really strange) or if it is related to anything either.....
Sending good wishes your way!

#9 susie54

susie54

    Silver Member

  • Members
  • PipPipPipPip
  • 259 posts

Posted 03 January 2008 - 04:01 PM

Hi ANi,

I have had tingling and feeling of numbness in my face and everywhere else for that matter at different times. I have a vasculitic component to my MCTD and this is what causes it. It can mimic MS at times to the point of getting diagnosed at one time with it. Susie54

#10 debonair susie

debonair susie

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,638 posts
  • Location:(United States)

Posted 11 January 2008 - 07:37 AM

Hi Ani and Everyone,

I'm not a dr, but I'll let share my experience here.
For over 2 years, I would have pain come and go, beginning in my forehead, traveling down along my jawline. My dr and I "thought" it was a sinus infection, so she would prescribe antibiotics. 30 days, I would be fine, then the symptoms would reoccur.
Finally, she said, "I'm going to check something out here". She would press on the sinuses in my face, asking if it hurt... It didn't. With that, she made a clinical diagnosis... Trigeminal Neuralgia. The doctor was right-on!
Since then, I've been taking Neurontin for it.

Anyway, Ani... what did you find out at your dr's about this? How did your appointment go? (I'm guessing you have been)?
Please, let us know?

Hugs, Susie
Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)