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Eye Sight? And Hearing ?

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#1 Sam


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Posted 06 January 2008 - 10:36 AM

I was wondering if anyone has problems with there vision? Sometimes my words going blurry or something its kinda hard to explain, and I have notice a big change inthem. will be making an eye appointment soon,.Does Sclero affect the eyes too?

ok my left ear can't stand loud noises, its getting worse. Also I know I have some hearing loss on one of my ears but dont remember which one. Does Sclero affect your hearing?


#2 bookworm


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Posted 06 January 2008 - 11:32 AM

Hi Sam!

I also am having trouble with eyes and ears. I don't know whether it is sclero related. I am almost 65 years old so I know some of my problems could be age-related.

However, my ear doctor says he believes my hearing problem is an autoimmune hearing loss, so I figure that at least ties in with the sclero. Here's what happened to me: I had excellent hearing in both ears. One morning I woke up and my left ear felt the way they do on airplanes. I had recently had a head cold, and, although it had been over for about a week, I just sort of figured the stuffy ear was a leftover of the cold and would go away soon.

When it didn't go away in a couple of days, the primary doctor prescribed something to dry it up. When that didn't work, she had me come in and she said she saw a lot of fluid in my ear and changed the medicine. When that didn't work, she sent me to an ear specialist. They tested my hearing and found significant hearing loss in my left ear and said I had permanent nerve damage. I got a second opinion from an ear specialist I trust in the nearest big city, and he, unfortunately, agreed and he said he thought it was autoimmune related.

There is an article I read I think on this website on autoimmune hearing loss. If I can locate it, I'll send you the URL. But I remember that it said that autoimmune hearing problems are often misdiagnosed as fluid in the ears (as mine was) because of the way it looks or something.

All that happened about a year ago and recently my hearing was getting so much worse and it was time for a yearly visit with the ear doctor, so I went in and they tested my hearing again. It turned out the hearing actually was better in the left ear, but now I had a lot of hearing loss in the right ear, as well! They recommended hearing aids and this time, I decided to take their advice. The hearing aids are wonderful and have made a big difference!

As for your eyes, could they be dry? My eyes were sort of runny and the eye doctor told me that, strange as it sounded, runny eyes were a sign of dry eyes! He recommended over the counter eye drops. I have also found it helpful to get magnifying glasses for reading. If you find out anything more on eyes, I'd love to hear about it!

Mary in Texas

#3 Vee


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Posted 06 January 2008 - 12:01 PM

Hi Sam,

I'm also having changes in my eyes and ears. Age or Sclero? who knows. Sometimes my eyes feel like there is a film or a fogginess over them, and they feel much dryer than usual. Sometimes I will watch a sad movie, just to see if I can still produce tears! Silly, I know.

As for the hearing. I know that my job has affected my hearing over the years. All the blow dryers going constantly as a backround noise. And one of my ears is definitely stronger than the other. I find myself turning my head to get my ear closer to the person that is talking to me. I've even caught myself cupping my hand behind an ear to get a stronger sound. I do that a lot when I'm watching tv on a low volume. I was taken aback when I noticed the first time I did it. But, hey, what ever works!

Happy thoughts your way!
Happy people don't have the best of everything, they just make the best of everything they have!

Warm and Happy to you! Vee

#4 WestCoast1


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Posted 06 January 2008 - 12:18 PM

Hi Sam~
I was thinking the same thing about eye sight. I am also wondering if it is age or sclero...possibly autoimmune related as Mary mentioned? This link has some very interesting info on sclero related eye problems: Eye Invovment in SS

One thing that my doctor always mentions is the 6 to 12 month eye exam, especially if you are on a medication called Plaquenil (a DMARD used for certain arthritic conditions).

I will be sure to ask this question at my next rheumatologist apt.


#5 truman


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Posted 06 January 2008 - 12:54 PM

Hi Sam:

Having trouble with my eye sight as well. Sometimes I put on two pairs of eyeglasses (one on top of the other) to read regular newspaper print. Other times, things are normal.

I find it more troublesome in my right eye, especially in the morning, and find using Visine drops clears it temporarily.

It is what it is...........

#6 peanut


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Posted 06 January 2008 - 05:46 PM

I have my eye sight checked regularly. Some of the meds can lead to glucoma so I wanna keep that in check. A year ago I went to get my eyes checked cause I felt pressure but it turned out to be dryness. Eye drops, eye salve & vitamins helped.

Recently I got my hearing checked cause I constantly ask my hubby to repeat stuff. My hearing tested perfect. The ear doctor thinks its cognitive and since I do have chemo brain from the cyclophosphamide I'll just home both my brain and my hearing come back.


You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#7 Buttons


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Posted 07 January 2008 - 12:57 AM

I have problems with my vision which started long before being diagnosed with SSc but the eye specialist I saw believed that there was a link to an auto immune problem because blood tests he did kept coming back borderline - they have now become positive. It started for me with very disturbed vision - everything would kind swim in front of me & last for some time, eventually the optician picked up the fact I had a kind of blister on the back of my eye so referred me to the hospital. After various tests it showed that the layers at the back of my eye had separated & become full of fluid which did not reabsorb(often does) so I then had to have laser surgery but unfortunately didn't help much so I have some permanent damage to my central area of vision in my right eye, I still get some disturbed vision & it's much worse when I am stressed! I also suffer with dry itchy eyes so have drops for that, it helps a little.
But some problems like are due simply to age - need for reading glasses. I have been wearing varifocal lenses now for about 10 years.
I would advise anyone to keep having their eyes checked on a regular basis because my problems would not have been picked up but for a regular eye test.


#8 debonair susie

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Posted 11 January 2008 - 06:33 AM

Coming on late... sorry.
I have sjogren's, so my eyesight problem may be due in part, to that. However, I have the start of a cataract, so that has affected my sight too.
I do believe I read (here) that our eyes are also affected, due to the Scleroderma.
Very possibly genetics may come into play, also.

Hugs, Susie
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