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Biomarker for Diffuse Scleroderma skin has been discovered!


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New Member - Sister Has Scleroderma


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#1 tamtam

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Posted 10 January 2008 - 09:15 AM

hello
MY SISTER WAS HAS SCLERODERMA. SHE HAS HAD IT FOR 6 YEARS.
IT HAS AFFECTED HER LUNGS, ESOPHAGUS AND GASTROINTESTINAL TRACT.
SHE HAS HAD A BAD FIVE YEARS. IN AN OUT OF VANDERBUIL HOSPITAL IN
NASHVILLE TENNESSEE.SHE'S VOMITING ALL THE TIME. SHE STARTED DRINKING
GREEN TEA IT HAS HELP SOME. DOES ANY ONE HAVE THIS PROBLEM




TAMMY

#2 janey

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Posted 10 January 2008 - 12:59 PM

Tammy,
Welcome to the ISN forums! I'm so sorry that your sister has been diagnosed with scleroderma. It sounds like she is having some serious problems that really need to be addressed by a specialist. Vomiting all of the time is NOT normal.

I couldn't find a scleroderma specialist in Nashville, but I did find a long list of rheumatologists in Nashville. Sometimes you can look at their bios on-line and check out their specialties. It also sounds like a good GI doctor is in order. As many of us will stress, if you aren't getting results with one doctor, then find another one! I've switched doctors many times.

Please keep us informed on how your sister is doing. She's very lucky to have you working in her behalf.

Big hugs to you both,
Janey Willis
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(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#3 Sweet

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Posted 10 January 2008 - 02:25 PM

Hi Tammy,

Welcome to the Sclero Forums. I'm glad you've joined us. I'm very sorry to hear about your sister being ill. It's great that you're doing research for her, how wonderful!!!

I'm assuming she is under a doctors care? If not she needs to be seen right away, she sounds like she's having a rough go of it right now.

Please keep us posted.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)