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3 Month Check Ups

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#1 barefut


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Posted 10 January 2008 - 08:18 PM

Saw rheumatologist and Pulm doctor Tuesday.

This month marks my 2 year diagnosis anniversary (Jan 2) rheumatologist says skin looks great. Softer than 2 years ago.

Pulm doctor suggested tapering the Cellcept even though my DLCO dropped 10% from 70% to 60%. He seems to think that's in my "stable" range. It's never been that low. Sorta scared me but I feel no different. Oh well. I guess I trust him.

Rheumy wanted to keep me at same Cellcept dose afraid that my mobility would suffer if we tapered. So we're going with rheumatologist's recomendation! Especially since Roche just sent me $4600 worth of medication for free on their patient assistance program!

Well, I am up WAY past my new bedtime but I miss you guys :(

I'm working on a blog - it's been swimming around in my head for weeks. Just need to reel it in. I know I've been slacking....

Has anyone heard from Barbs? I'm worried about her.

Love to you all,

#2 jefa


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Posted 11 January 2008 - 12:29 AM

Hi, Barefut. Glad to hear things are stable. Barb finally has a blog up, explaining her mysterious disappearance. I am so glad to see her again - now you have no excuse. :) I look forward to reading both blogs whenever they are posted.
Warm wishes,

Carrie Maddoux
(Retired)ISN Sclero Forums Support Specialist
(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

#3 Sweet


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Posted 11 January 2008 - 07:48 AM

Hey Cutie,

So good to hear from you. Thanks for the udpate, mostly good news.

We certainly miss you as well!
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)