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Just Venting

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7 replies to this topic

#1 Timo


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Posted 13 January 2008 - 12:43 AM

Hi everyone!

It's been a long time since I have been on here. I've loved reading all the posts, I've really missed them. Life hasnt been to good for me lately. I'm 19 years old and I have had scleroderma since I was 13... I also have arthritis and polymyositis. I am trying to finish university (education degree), work (at a kindy), see friends, find a nice guy that can support me through all the ups and downs that come with dating me.. and loving me... and it would be nice if I could save up the money to buy my auto car that I need, so I can get my licence and eventually move out.

In the last couple of months I have been diagnosed with osteoporis (i have the bone density of a 90yr old) due to my long term prednisone taking... and have had a zometa infusion which caused me to be admitted to hospital...

I have calcifications forming on my knees that are threatening to push through the skin, my mouth is shrinking and I can hardly fit a grape in my mouth anymore.

I went to the dentist and I have to get all four wisdom teeth out... should be routine, not for me.... The risks: my wisdom teeth are running along the nerves, so I could lose feeling in my bottom lip, my mouth is so small that there is a good chance that it will split along the sides, and the with the zometa infusion I may get necrosis of the jaw...

I'm just so sick of going around in circles... in treating one condition another one is caused.

Life stinks!

Thanks for listening everyone. I really appreciate it

Hope your having a better time than I am
Hopefully I'll be back on soon
Love Timo

#2 Sam


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Posted 13 January 2008 - 04:05 AM

Timo, wow alot has been going on. I just wanted to say I will be thinking of you and hope4 that things gets better for you. Take care, Sam

#3 Snowbird


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Posted 13 January 2008 - 05:43 AM

Hi Timo

Sorry to hear that things are going so badly for you right now. I'll be thinking about you too and hoping that things start improving for you.
Sending good wishes your way!

#4 aniwallar


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Posted 13 January 2008 - 12:46 PM

Dear Timo:

I'm so sory you are having such a hart time. My heart goes out to you sweetheart. Please, stay possitive, I know it is very difficult to do, but remember that stress doesn't help.
One thing this consition does to us is make us way stronger. Many people on this site are true figther. You do what you have to do and move on to the next. Just keep on doind what you are doing and you will see that the bad times will pass.
Sending you my love.

#5 peanut


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Posted 13 January 2008 - 03:05 PM

Hey Timo,
It's encouraging to hear that despite your difficulties you continue to be motivated.

My wisdom teeth were also abnormal, they were the largest my Hygienist has ever seen. I had all 4, 2 were impacted and all 4 were as big as two teeth put together. After they were removed they left huge holes. I had immense pain that ended up being dry sockets. This happens when the holes are healing the scabs prematurely fall off leaving the nerves exposed to air which is extremely painful. I took tons of pain medications which I threw up. Eventually I stopped taking all my meds cause I couldn't keep anything down and after that I got better. What a crazy adventure, but I had a good oral surgeon who let me call him any time - I hope you fine one you can trust.


You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#6 Sweet


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Posted 13 January 2008 - 04:03 PM

Oh goodness you do have a lot going on! I hope things smooth out soon. And I have to say your little furry friend is adorable!!!
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#7 summer


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Posted 15 January 2008 - 12:01 AM

Hi Timo,

Welcome back to the Forum, you do have alot going on at the moment, I find that when symptoms arise they always seem to come all at once.

Where abouts in Australia do you live?, I'm in Melbourne, there is a few of us Aussies that are on this forum.

I just wanted to say hello and you are in my thoughts, hoping that you find some relief from all of this.

Take care

#8 jaxs


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Posted 15 January 2008 - 07:44 AM

wc tino im sad to read u have all this going on at such a young age, :huh: life can be so cruel, keep your smile on and keep comeing back as theses guys are the best, warm hugs jaxsx
live life for today and not for tomorrow