Jump to content


Do you want up to date information about Scleroderma? Check out our Medical pages at www.sclero.org for all your Scleroderma questions!


Photo

Bad Weekend For Me


  • Please log in to reply
10 replies to this topic

#1 truman

truman

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 625 posts
  • Location:NJ

Posted 13 January 2008 - 02:39 AM

My mouth, tongue, inside cheeks has been on "fire" since Friday. I don't know if it's a reaction to the Zyvox, Nicoderm and just plain vitamin deficiency due to lousy eating habits in the last months. In the interim, I have begun using oral Nystatin.

I don't want to stop using the Zyvox, because I coming close to this nightmare being over, but I didn't take last night's dose. I've also begun taking a daily vitamin and mineral compound and doubled up on them last night.

Anyone experience this, and how did you deal with it?
Tru

It is what it is...........

#2 Sam

Sam

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 640 posts
  • Location:Delta, Ohio

Posted 13 January 2008 - 04:02 AM

Truman I think you need to call your doctor or dentist something is making you have a reaction. I would do salt water rinses though for your mouth hope that it helps. Take care, Sam
Sam

#3 jefa

jefa

    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,325 posts
  • Location:Scotland

Posted 13 January 2008 - 04:13 AM

Truman, I agree with Sam. Talk to your doctor. You should definitely not be doubling up on the vitamin supplements. You may be creating other problems. Some vitamins are not harmful in larger doses, but some of the vitamins and minerals can be dangerous in larger doses.
Warm wishes,
Jefa

Carrie Maddoux
(Retired)ISN Sclero Forums Support Specialist
(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

#4 Snowbird

Snowbird

    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,008 posts
  • Location:Canada

Posted 13 January 2008 - 05:22 AM

Hi Truman

I agree with Sam & Jefa too....try to get to your doctor or dentist asap, you sure don't want to complicate any other problems. Hope you feel better soon.
Sending good wishes your way!

#5 truman

truman

    Gold Member

  • Topic Starter
  • Members
  • PipPipPipPipPipPip
  • 625 posts
  • Location:NJ

Posted 13 January 2008 - 07:17 AM

Thank you for your responses. Just got off the phone with the doctor and he wants me to continue with the Zyvox and take the Nystatin at the same time. Since there is no swelling just the burning pain, he said I need the Zyvox. Since I now have a yeast infection in the lower extremity, he feels it's the same yeast infection in my mouth. I wish this were over already.
Tru

It is what it is...........

#6 Sweet

Sweet

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,890 posts

Posted 13 January 2008 - 04:10 PM

Agreeing with calling the doctor. It might be a bit hard to figure out since you've started so many new things at once. But then again, he may have enough experience with all that you are on, that' he'll be able to tell you right off the bat. Hope it starts to subside!
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#7 peanut

peanut

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 738 posts

Posted 13 January 2008 - 09:44 PM

Tru, Be careful with taking lots and lots of vitamins. It can make the body do weird things. My mom took a basic multivitamin and her gums started gushing blood when she flossed. The dentist said it was the vitamin A in her multivitamin and when she stopped taking the vitamin her gums stopped.

peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#8 LisaBulman

LisaBulman

    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,135 posts
  • Location:Massachusetts

Posted 14 January 2008 - 04:23 AM

Hi Tru,
Any relief? Hope you are feeling better soon!

Hugs,
Lisa
Lisa Bulman
(Retired) ISN/SCTC List Coordinator
(Retired) ISN Sclero Forums Assistant Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Fundraiser
International Scleroderma Network (ISN)

#9 debonair susie

debonair susie

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,638 posts
  • Location:(United States)

Posted 14 January 2008 - 08:35 AM

Yup... I had a yeast infection in my mouth some time back and it was pretty sore for a few days.
As Sam suggested... rinsing with salt water really helps.

Hope the pain subsides soon.


Hugs, Susie
Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#10 truman

truman

    Gold Member

  • Topic Starter
  • Members
  • PipPipPipPipPipPip
  • 625 posts
  • Location:NJ

Posted 14 January 2008 - 02:34 PM

Thanks to all for your thoughts.

Went to my doctor today, and as usual painful, but good news is the toe is beginning to gain color and looking good. No black what so ever this time! It looks as if the skin is beginning to grow over the exposed bone.

He had yanked off the bandage as quickly as a parent would do to a child's knee, but I was not prepared nor expected him to do that. Subsequently the shock and pain caused a defensive mechanism in me and I slapped him. When I realized what he'd done and the pain coming on, I continually slapped and punched him. Just couldn't take the pain anymore.

Doctor also put me on a one pill ONLY dosage for the thrush and vaginitis. Hopefully that will take care of the problems. I also made an appointment for tomorrow for my dentist to give it a once over. My sons came this evening to bring me some dinner, but my mouth hurt too much to eat. Can't even have a cocktail.......burns too much.

Hopefully tomorrow will be better once that pill kicks in.
Tru

It is what it is...........

#11 Sheryl

Sheryl

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,029 posts
  • Location:Brooklyn, Michigan

Posted 14 January 2008 - 04:58 PM

Oh Tru,
I laughed until tears came to my eyes. I had to read your story to my family here in Florida. They all got a kick out of your reactions. Your doctor sort of deserved that small amount of punishment from you. Especially, after the pain he gave you a couple weeks ago without any pain killer. You go girl. Maybe, now he will be more care with you and all his other patients. I am keeping this short as I have written a couple emails from this log in, from Bradenton Florida and they don't seem to be arriving up on the posts. I am happy everything is coming along nicely. Sheryl
Strength and Warmth,
Sheryl

Sheryl Doom
ISN Support Specialist
(Retired) ISN Chat Moderator
International Scleroderma Network (ISN)