Mine Is Scleredema Of Bushke
Posted 15 January 2008 - 09:11 AM
About 5 years ago I was diagnosed with scleredima of Bushke. ( Bushke was a dermatoligist in Germany in the 30s and 40s.) With the dermatoligist we tried narrow band ultra violet light, No luck.
In the last six months the scledema has kicked in again. My doctor had me on Cozar for blood preasure. The shoulders, elbows and knees really suffered. when I stopped the Cozar , the muscle pain ,stiffness and lack of range of motion slowed up. Change blood presure meds and everthing comes back. It seems to me that there is some connection with Beta blockers ,statins and others and the advancement of scleredema. I have a new rheumatoligist and hopefully we can attack scleredema like it is attacking me.
Here is to a better new year! Even pain Free. I will talk to everyone soon. Jim
Posted 15 January 2008 - 11:15 AM
Welcome to the Sclero Forums. I'm so happy you found us, but sorry it's due to your illness. You certainly are now among those that will truly understand what you are going through!
Looking forward to knowing you better.
Posted 15 January 2008 - 12:43 PM
Nice to meet you. This site is the most up to date and informative site for this illness and loaded with people like you and me who share everyday occurrences and new additions to what we may face or already face. I have posted here numerous times to share ideas and to get advice from all my friends I have made here.
It's when you arrive here and get acquainted with everyone, that you realize you are not alone and we are a population in and of ourselves.
Try to join in on the chat Wednesday and get acquainted with additional members.
It is what it is...........
Posted 15 January 2008 - 03:34 PM
(Retired)ISN Sclero Forums Support Specialist
(Retired)ISN Sclero Forums UK Chat Host
International Scleroderma Network (ISN)
Posted 16 January 2008 - 08:15 AM
I'm glad you found us. WELCOME You will find that there are so many wonderful people here to led a helping hand and ear to your problems and questions.
Posted 25 April 2008 - 11:00 PM
I'm Gladys and I have Scleredema of Bushke. I am 52 and I have also active Rheumatoid Arthritis. I mostly have the Scleredema on my neck and back. I would like to know more about your consition and the medication you are taking.
Posted 25 April 2008 - 11:05 PM
I am Gladys. I am 52 years old and live in teh UK. I have been diagnosed with Scleredema of Bushke in 2004 and lately I have also been diagnosed with active Rheumatoid Arthritis. I am constantly in pain and whatever I take soed not seem to alleviate my pain. I have Scleredema on my neck and back and would like to know more about your consition and maybe be able to compare our condition and medication.
Hoping to hear from you soon
Posted 25 April 2008 - 11:11 PM
My name is Gladys and I'm 52 years old and live in the UK. I have Scleredema of Bushke and would like to communicate with people who have the same consition and see how we can help each other. I also have active Rheumatoid Arthritis and I am diabetic too. Do you have the consition and are you taking any medication. As for me I am not taking anything for the Scleredema but have been told that the medication for Rheumatoid Arthritis will help my skin. So far all the medication have not proved helpful. I was on methotrxate and came off it becasue of some skin problem. I was then prescribed Leflunomide which I have now discontinued for other side effect. I am now waiting to see my consultant and see what he says. Hoping to hear from you soon,
Posted 25 April 2008 - 11:13 PM
I am Gladys and sorry, I seemed to have sent you the weong e-mail thinking that you are a patient suffering from Scleredema of Bushke while I just noticed that you are the support people. Sorry about that misunderstanding.
Posted 27 April 2008 - 02:30 AM
Thanks for your e-mail. Ihave Scleredema of Bushke and was wrongly diagnosed the first time. They thought that I have localised Scleroderma. That was 6 years ago but in 2004, I was referred to the specialist hospital in Scleroderma and was told tha I have Scleredema of Bushke and not Scleroderma. Anyway, how long have you been suffering from Scleroderma, if I may ask. Are you on any medication? As for me, I haven't been given any medication as such but since I laso have active Rheumatoid Arthritis, I was prescribed Methotrxate which the doctor said will help with the Scleredema. The sad thing is that science hasn't find a cure yet for our condition. Let's hope that soon, they will come with some medication for us. Looking forward to hearing from you, all the best,
N.b: Thanks for the hug, we do need it!!!!!!! Yesterday I was in pain all day with swollen figure.
Posted 29 April 2008 - 08:06 AM
I've been diagnosed for 8 years. I'm on Plaquenil, meds for GERD, muscle relaxers, pain pills, anti-inflammatory, thryroid meds, digestive enzymes, Miralax for motility issues, ummmmmm I know there is much more, but I can't think right now!
Again, so glad you've joined us!