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A Step Backwards

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#1 barefut


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Posted 17 January 2008 - 06:45 PM

Well I've taken a step backwards. Was feeling pretty good for a pretty long time and coincidentally, since I've had a rather large helping of stress piled upon my plate (to do withfinances and estranged hubby) have been having hard time getting up in the mornings.

Once again, showering is like climbing Everest. Then I have to go lie down, then force myself up again to get dressed. Have come close to calling in sick once but didn't because I have already missed 4 days of work with sick dad and sick kids and my 3 month check up and left early once with migrane-like tension headache and left once after only 2 hours to go to ER for kidney stone pain. I can't miss any more work!!

Been drinking a cup of regular coffee in the mornings just to get my motor running, eating 5 small healthy snacks to keep energy up, taking daily multi vitamins and glucosamine but my body feels like concrete. It's always my hips, shoulders, hands, feet and lower back. My range of motion is disappearing. Moving at all is painful and difficult.

I don't know why I am telling all of you this, as if you don't already know what it's like. Just need to whine a bit I guess.

I really love my job and love working. I can't let this stop me. But really, I have never found anything that helps this pain and fatigue except time. I know in time it will subside - but when? I don't know. Past experience says it could last weeks or months. I'll bet it would go away if my stress would.

Do I call rheumatologist? What would she do? Increase pred? Prescribe narcotic pain med? I already know she doesn't want to do either. What else is there? I have asked also about arthritis pain meds but my pain is more in connective tissues and muscles rather than joints.

Well, good night and thanks for reading my gripe.
Be well,

#2 jefa


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Posted 17 January 2008 - 10:42 PM

Sorry to hear you are feeling down. I knew it would be a hard road going back to work, but I admire you for persisting anyway. Just wanted to say that the anti-inflammatory meds that are prescribed for arthritis ARE helpful for connective tissue and muscle pain as well. When I was still working, I would occasionally forget to take a dose in the rush of things and I felt it. For me at least, I need to take them continuously for them to be most affective. I know the coffee sounds like a good way to jump start, but I would seriously think about exchanging it for a cup of black tea which can give you the same jolt but has other benefits. And keep a bottle of water with you at work. Lots of water helps loads. Hugs to you.
Warm wishes,

Carrie Maddoux
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#3 LisaBulman


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Posted 18 January 2008 - 02:35 AM

Hi Barefut,
Here is some cheese to go along with your whine, :) it is a pretty healthy snack! Just kidding. Pain and fatigue have gotten the best of me as well. I also notice more this time of year than in the summer. Antiinflammatories do help a great deal. I am so stiff in the morning but if I forget to take my pill, by the mid afternoon I am just about crippled in pain. I agree with Jefa about the tea. I gave up coffee about 5 years ago and it was the best thing I did. Tea is for me now!

Reducung stress is never easy, but for your health, try. I volunteer for 2 each week at my girls school and when I leave there I go home and napp for 2 hours. It wipes me out!

Lisa Bulman
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#4 AmyTx


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Posted 18 January 2008 - 04:33 AM

hello, im sorry your hurting so much... I dont knnow what meds your on right now but my rheumatologist feels anyone who hurts like we do need to have maintenance meds or something for pain.. are you on plaquenil?? that and prednisone helped with my pain and aches..my rheumatologist pretty much gives me what I ask for she says I know best..she also does tons of labwork too and if the labwork consists of inflammatroy changes she gives me pain meds... I take pain medication and she just prescribed me neurontin which helps with my headaches, I hope your aches and pains disappear soon


#5 Sweet


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Posted 18 January 2008 - 06:25 AM

Hello Barefut my love,

I'm so sorry you are having such a tough time right now. Reading your post made me want to get in the car and come help you. I know all to well how pain and fatigue can effect a person and I don't know how you are doing all that you are.

Are you taking in Fish Oil? my primary care physician put me on it and after taking it regularly it REALLY helps with inflammation and the whole connective tissue pain. I wasn't sure at first so I tested it out, stopped it for a bit, but boy does it help. It is one capsule I won't miss. I think it's important that you take the right one however. How it's processed is very important. If you are interested give me a pm and I'll give you the details.
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#6 Margaret


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Posted 18 January 2008 - 03:22 PM

Hi Barefut ,

Sorry you are feeling so bad. Will keep you in my thoughts at night before retiring.

Take care, Everyone.

#7 Snowbird


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Posted 19 January 2008 - 03:01 AM

Hi Barefut

I'm sorry to hear you are having such a bad time as well. Try as hard as you can to force yourself to relax, even a little at a time to help relieve some of that stress. I also have you in my thoughts.
Sending good wishes your way!

#8 kelowna52


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Posted 19 January 2008 - 06:55 AM

Hi Barefut, it's heartbreaking to read your story. I am so sorry your going through all of these problems. I do believe stress makes all of this alot worse. If you could reduce some of your stress it might help, I know that's easier said then done. That is great that you like your job, because I sure couldn't go to work. That has to be really hard for you going to a job on top of everything else going on. My daughter's friend is trying to get me hooked up with Yoga, so I guess I will try it, my doctor's have been trying to get me to do something. It's tough when your not feeling well to think about exercise. Well, good luck to you, I sure wish all of us here could go to your house and help you out. Try to relax and think of yourself, try to keep everything else in perspective.

Take Care

Jackie S.

#9 Peggy


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Posted 19 January 2008 - 01:22 PM

So sorry to hear how hard this if for you. Hearing how hard it is for you go just get up and go to work breaks my heart for you. Have you tried Lyrica or like someone else suggested, neurotin (sp?). I took them in the beginning for nerve and joint pain and now that they quit working I have to be on a pain medication which now makes it impossible for me to work. While I was on the lyrica and neurotin they did help tho.

I hope you can get some rest when you can and I will keep you in my thoughts.

Blessings to you and a warm hug from Minnesota.


#10 barefut


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Posted 24 January 2008 - 04:11 PM

Sorry it's been so long to get back to you all. I want to thank each of you for your kind hearted replies. I actually was in tears on my way to work one morning after reading them because I felt so hugged.

You all are in my thoughts always too.

Love yous!