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#1 Delker

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Posted 22 January 2008 - 09:43 AM

I've been seeing a rhuematologist in NYC for about 6 years, and I love him---only---now that my symptoms are getting worse, and we've really done nothing proactive to treat (given my own aversion to medication mostly)---I'm wondering if I should seek out some second opinions (especially now that pulmonologist has recommended cyclophosphamide--see other post).

Don't know if it's allowed on this site---but any recommendations in NYC--or places to look.

Thanks
Dre



#2 Michelle2

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Posted 22 January 2008 - 12:27 PM

Hi there~

I absolutely think you need to get a second opinion. You need to take charge of your healthcare. I was in the same boat with my last rheumatologist and I finally took charge and CANNOT believe the difference my new dr has made. Good luck to you!
Take care and stay warm,

Michelle

#3 Jordan's Mommy

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Posted 22 January 2008 - 02:58 PM

there is a juvenile sclero doctor in new york listed as an expert on this site--i have emailed him several times, and he always emails me back--i am sure he would have a recommendation for you if you called or emailed. his name is tom lehman.
take care,

jennifer

#4 janey

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Posted 22 January 2008 - 06:50 PM

Dre,
Here's a list of rheumatologists in NYC from the American College of Rheumatology. It never hurts to get a second opinion if you feel uncomfortable.

Big Hugs,
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)