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Calcinosis


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#1 peanut

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Posted 26 November 2006 - 04:36 PM

I have 4, now five calcinosis build ups on my finger tips. I thought they were getting better till another appeared on my thumb which really hurts. I've covered it with a bandaid and antibiotic ointment. Im on BP meds, Norvasc which they say is supposed to help, but is there anything else I can do? Is this the beginning of finger ulsers?

peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#2 Guest_Sherrill_*

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Posted 26 November 2006 - 06:07 PM

Hi Peanut,

I am continually dealing with calcinosis problems in several areas. I have had them on my finger and thumb tips, and I just about always have some on my knuckles. I have one on a toe knuckle too, and several underneath my forearms.

Unless they become infected antibiotic ointment is not necessary. They can become inflamed and red and sore, but are not always infected then. Usually unless they break the skin, I have not found them to be infected, and not even then unless you are not very careful in dealing with them and a bacteria is introduced.

Often they can ooze or leak a white substance which can be gritty, which is little pieces of calcium. It can look like pus but isn't. I even had a doctor mistake it once!

They come in all shapes and sizes, and I have had some like a "spear" which stick into me and hurt! My husband is often successful now in grasping them and pulling them out, but do not try that unless you are quite sure of what you are doing. Let a doctor handle it.

Mine have not turned into ulcers, though it was close on a few occasions. I keep them covered and use Betadine (iodine) as an antiseptic.

If you are unsure of them see a doctor. In my experience many doctors have not had any experience with them, and do not know how to treat them. My rheumatologist told me that there is no particular treatment for them or he would offer it to me. The only treatment is topical or surgery. And I am not all that keen on people attacking me with sharp little knives if I can avoid it! :D

I'm also on lots of BP meds...... 360mg of Diltiazem, which is a calcium channel blocker like Norvasc, and I also take Doxazosin. These are good for Raynaud's, and indeed my Raynaud's is almost non existent since I started on Diltiazem. But I have not seen anything about them being good for stopping calcinosis.

#3 CraigR

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Posted 27 November 2006 - 06:17 AM

I have had occasional problems with calcinosis on the fingers. Sometimes they would be very small for quite a while, not really causing a problem, then they would sometimes grow. It was very painful if they seemed to press on a nerve (the slightest touch would elicit extreme pain).

I had a doctor (family practice) who removed them surgically. It was no big deal - and a lot better than being in pain. I would recommend only having one done at a time, since the recovery can sometimes be painful, and you don't want that going on in more than one place at a time.

I didn't find calcinosis to be a precursor to finger ulcers - though sometimes ulcers were a precursor to calcinosis.

Craig

CRST scleroderma since 1977.

#4 Guest_Jennifer_*

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Posted 27 November 2006 - 06:22 AM

What does one take to prevent calcinosis? Is it from Raynauds? I have been lucky thus far.
Jennifer

#5 Sweet

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Posted 27 November 2006 - 07:31 AM

Hi Jen -

Good question!

I searched out site and came up with this link, perhaps you will find the information in here helpful.

http://www.sclero.or...calcinosis.html

Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#6 R'egene

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Posted 02 December 2006 - 03:52 PM

Jennifer,

calcinosis can be painful and also disfigure your fingertips. Band-aids, and gloves help me and keeping them from getting so dry and stiff. They hurt but I don't know if there is any way to stop them from appearing.


R'egene
Birmingham, AL