Posted 22 January 2008 - 05:15 PM
This has really been bothering me. I don't know if I can make it on disability. I have worked in dialysis for almost 8yrs now so this is basically all I know
Posted 23 January 2008 - 06:10 AM
warm hugs from Minnesota.
Posted 23 January 2008 - 08:14 AM
Posted 23 January 2008 - 11:12 AM
welcome. I work too. Not even a consideration of not working, when I wa shealthy we started a lifestyle that requires two incomes. I try to do part time as much as possible, but for the most part my illness has not changed my life or my workload. I'm a teacher and the worst part is the outside duties, like playground in the cold weather...I live in NY! At home, hubby helps a bit, but not too much. I still do most of the housework and shoping, cooking etc. Then the family laughs and wonders why I collapse at 7:00 PM every night! It's tough. I want to stay productive and not be sick, but some days it's hard!
Posted 23 January 2008 - 03:34 PM
I know quite a few people with sclero that work. They are very tired so their time is quite valuable, so it's probably a good idea to establish boundaries. It's probably a good idea to know what is important and not, and what really needs to get done now and what can be put off. It will probably save you time. I've learned not to feel guilty if I can't commit to something because I've already made a dedication to taking care of myself and for the sake of my family I can't afford to break that commitment. Don't be afraid to ask for help. It might be good to keep on hand phone numbers of some family or friends you can rely on to give a helping hand when you need it. I think if you get lots of rest, take care of yourself, and are aware of your body's needs plus a little pain med for your hands things will work out.
You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...
Posted 23 January 2008 - 05:35 PM
I do work full time. I need to work (2 kids in college) and I want to work. I canâ€™t imagine what I would do without work. I am fortunate to have extremely supportive employer and my manager. Specifically, last year I went through rough time and they were very supportive. A person from my HR went over any need for flexible schedule, short term, as well as long term disability benefits available to me.
I am glad I am working. It keeps me busy and provides me enough mental challenges. I believe I am more fit physically as well as mentally due to work.