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Biomarker for Diffuse Scleroderma skin has been discovered!


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Nerve Conduction Test Results


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#1 Buttons

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Posted 24 January 2008 - 12:40 AM

Had the tests done this morning & have got Carpel tunnel problems in both hands, she also said that my 'trigger thumb' could be because of the nerve being trapped.

But I still have to wait until I see the consultant to get the official results and that won't be until May, it will then be up to him about what they do but likely to be an operation to free the nerve.

Jesue

#2 debonair susie

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Posted 24 January 2008 - 10:13 AM

Jensue,

Months before I was diagnosed withmy Scleroderma, etc...I had carpal tunnel surgery...both wrists...6 wks apart. The first was open, looking to see if it was diseased and the second was endoscopic.
All I know is that the moment the nerve was released, I felt imediate relief... seriously! The nurse said, "Be sure you get your prescription of pain meds filled on the way home and take it right away, or the pain is going to be intolerable. My mother filled it, but all I got out of it was nauseous! I ended up tossing the rest of the pills down the toilet!lol I was very fortunate!

Should the decision be for you to have surgery... I hope you have the same result!

Susie
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#3 Michelle2

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Posted 24 January 2008 - 10:16 AM

Hi Jesue~

What is a trigger thumb?
Take care and stay warm,

Michelle

#4 janey

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Posted 24 January 2008 - 11:17 AM

Jensue,
I was also diagnosed with carpal eight months before diagnosis, but it went away. I immediately started doing some wrist exercises and wearing the wrist braces at night and when working at the computer. They did wonders. After about 6 months the pain from the carpal went away and I haven't had any problems since. That was 4.5 years ago! Did they give you wrist braces to wear?

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#5 Sheryl

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Posted 24 January 2008 - 01:14 PM

Jensue, I also had carpal tunnel in both wrists and hands. I wore the braces for about 3 weeks until surgery was scheduled. I had my left hand done and this happens a lot I have been told. But, when the surgery was completed the pain also went away in the other hand. I am glad I had chosen my left hand be done first. It took forever to heal and the pain to go away. Maybe, about 6 months. Come to find out while my wrist was bent back during surgery a wrist bone slipped out of place and that was causing me the added pain. I couldn't put any weight on it at all. One day I couldn't get up off the floor because the pain was so bad in my wrist, so I pushed really hard and instantly something popped in my wrist and I had no more pain. The carpal tunnel never has come back in my right hand. I am happy about that. I got in quickly because I already was going to a special surgeon for something else and he said he could do my carpal surgery. I feel bad that you have to wait until May to get some resolution. The pain I was in was unreal. It got to the point I couldn't sleep at night. If yours is already very bad maybe you can find a surgeon that can get you in early. Good Luck
Sheryl
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Sheryl

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#6 Sd53

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Posted 24 January 2008 - 03:18 PM

Jensue, I too have had carpel tunnel in both wrists, had the surgery on one & the other cleared up mysteriously. Go for the wrist braces right away is what I'd say!!! It helped me alot until I could have the surgery. I had to quit playing the piano & the computer, I slept with them on even...but I wasn't diagnosed with sclero yet either, so I don't know how it affects you painfully. Anyway, take care of yourself & protect your wrists & hands at all costs.

#7 Buttons

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Posted 24 January 2008 - 11:40 PM

The pain is quite bad and my fingers have not had proper sensation for a long time but thought it was due to Raunaud's because that has gotten so much worse. I do wake up with 'dead hands or pins & needles at night and when holding things like hairdryer. I do wonder if some of the weakness I feel in the strength of my hands is due to this. I have got a much weakened grip.
'Trigger thumb', its when the tendon does not run smoothly through the sheath so it keeps getting stuck so I can't always straighten my thumb & it's quite painful. At the base of the thumb I can feel a small painful lump so makes things awkward for example when holding my cars gearstick.(I'm in UK so most cars are manual).

It was the Rheumatologist who ordered the test & because of the way the system works in the UK I have to wait to see him & then deciding on what to do may refer me to surgeon.
jensue