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Biomarker for Diffuse Scleroderma skin has been discovered!


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(update) Kathy Baker: Crest


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#1 Judy Devlin

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Posted 24 January 2008 - 02:22 AM

(Update) Kathy Baker: CREST - Systemic Scleroderma Two weeks later I was back in surgery where he amputated the entire index finger...

http://www.sclero.or...ker/a-to-z.html


Judy Devlin
ISN Archive Committee Chair
International Scleroderma Network
http://www.sclero.or...-judith/en.html
There are over 1,000 patient and caregiver stories on the main Sclero.org site.
Warm regards,

Judy Devlin
ISN Archive Committee Chair
International Scleroderma Network

#2 debonair susie

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Posted 24 January 2008 - 05:35 AM

Thank you for posting this information about Kathy, Judy.

Kathy, having seen the photo of your finger, I cannot EVEN imagine the severity of pain you had to have gone through :o OW, Ow, ow....

Big Soft Hugs,
Susie
Special Hugs,

Susie Kraft
ISN Support Specialist
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International Scleroderma Network (ISN)

#3 Michelle2

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Posted 24 January 2008 - 06:51 AM

Thank you for updating us. Kathie is a very strong woman and my heart goes out to her. I am so glad to hear that it has final healed and she is off all pain meds.

Best wishes to you, Kathie
Take care and stay warm,

Michelle

#4 truman

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Posted 24 January 2008 - 08:26 AM

The photo of your finger looks just like my toe. They will be operating again this Thursday due to bone infection.

I've been on Zyvox for the last three weeks. I've gotten vaginitis, thrush and diarrhea for most of that time. Yesterday, I developed a UTI infection and will be going to the doctors for treatment of that and pre op work up today for next Thursday's operation. I stopped taking the Zyvox as I anticipate the general practitioner will be prescribing something else for the UTI.

For a while, I would just st and cry.....now I sit, take a deep breath and laugh a little....it somewhat eases the frustration.

Believe me, I'm feeling a good portion of what you've been through. blessings and I hope all is well with you now.
Tru

It is what it is...........