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Botox, Anyone?


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#1 aniwallar

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Posted 28 January 2008 - 12:49 PM

Hello:
I know I must sound incredibly vain, specially with all the thing that we are all going thru. The thing is, I don't like the idea of growing old gracefully. I always thought that I could get a little help here and there. Nothing big, no surgeries or anything like that, just a little help.
Ever since I was a child I have crunched my forehead when I talk. Now, after 44 years, it had left a deeep crease making me look much older that I really am.
Again, it sounds crazy but I would love to put something there so it doesn't show so much. I have try to get info about this and scleroderma but I can't find anything conclusive.
Does anyone knows about this subject?
Thanks for listening.

Ani

#2 Sweet

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Posted 28 January 2008 - 06:39 PM

Hi Ani,

You don't sound vain at all. I think there are many of us that would do some sort of cosmetic treatment if we thought we could.

I just recently asked my rheumatologist about this very thing. He was dead set against injecting anything into my body because he felt with the crazy immune system we have we have no idea how our bodies will react to the foreign substance being injected. He personally has seen some really bad scaring and mutation with Sclero patients due to lip injections and botox injection. He didn't have a problem with my undergoing a surgical procedure however such as getting my eyes done. But frankly he worried me enough, that I don't think I'll do that either.
Warm and gentle hugs,

Pamela
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International Scleroderma Network (ISN)

#3 janet905

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Posted 28 January 2008 - 06:49 PM

hi ani, good question. and no you don't sound vain at all. I have had botox before and after I was diagnosed with limited sclero. my dermatologist and rheumatologist had no objections. I have also had juvederm lip injections (it's hyaluronic acid, not collagen) and laser skin treatments. it makes me look better than I usually feel. that in turn tends to make me feel better. I would, however, have any procedure like these done by a well - reputed dermatologist who is familiar with scleroderma. I have had great results with these procedures and no unusual side effects. I only have hard skin on several fingers and not my face. for my fingers that started to harden and curl, I went to my orthopedic surgeon and had cortisone injections into the fingers themselves and it helped stop the hardening and actually decreased the thickness on the tops of my fingers. helped the pain too. the pain of the injections was worse than just about anything else I have had done. but worth it since my hands work fairly well still. he had never done that procedure before since he only has had one other sclero patient but I thought it would work like the wrist injections I've had in the past , and it did ! I think doing things that help your self esteem and keeps you feeling more "normal" might just help battle depression and improve our overall health. one more thing that has really helped my overall wellbeing and energy level is the revatio (viagra) that my rheumatologist started me on last fall. it has decreased not only the fingertip ulcers and tends to speed their healing, but I have less muscle fatigue and more energy in general. I guess it helps increase blood flow to the whole body and therefore the tissues are less oxygen deprived in general. it has been amazing. I will definitely stay on this drug!. hope this helps. janet

#4 Sweet

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Posted 29 January 2008 - 06:50 AM

Hey Janet,

It was really good to read your post. I want so much to try a couple of things. It's really tough though to know if you've found a good dermatologist or not. How do you know? Just because they say they are? There are so many unknowns, that I just shy away from it in the end.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#5 kelowna52

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Posted 29 January 2008 - 10:58 AM

Hello girls, what a great topic. My Neour. doctor is going to start Botox Injections on me for my Migraines on Feb. 13th in Seattle. I have tried so many differant things, some things work for a while, but then they they quit working. I had to wait a month to get the Botox pre: approved by my Insurace company. I sure hope it works for me. Good luck to all of you. I absolutely think we should do all we possibly can to make us feel better. Go for it.

Jackie S.