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Nissen Fundoplication Surgery


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#1 kelowna52

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Posted 27 November 2006 - 01:26 PM

Hello everyone, I hope all of you had a great Thanksgiving weekend. I was wondering if any of you have had the Nissen Fundoplication Surgery? I have been feeling lousy lately, with chest and major body pain. Also pain in my hands and elbows which also extends into my arms. I did have a Sinus infection which I thought had pretty much gone. I had made an appointment with an Otolaryngology Doctor about a month ago when the Sinus Infection first started, but of course when you really need to get into a specialist, you can't get in. Well, today was my appointment. The Doctor examines me, askes me all sorts of questions, and tells me that the Acid Reflux is so bad, he can see sighn's of irritation all the way into my nose. He adds Zantac to my meds, which I'm already taking 2, 40 mg. tabs of Protonix and a OTC Prilosec once a day. He said the mucus was very thick, I know very gross. He told me to start taking this over the counter med for mucus, 1200 mg twice a day. He also told me to do the saline nose rinse at least twice a day. I have had a cough that just won't go away, he thinks that's because of the severe Acid Reflux. Anyway I would appreciate any info good and bad about this surgery. This doctor told me to go home and try his suggestions for 6 weeks and if things aren't any better, he wants me to see a doctor Re; this surgery. Thanks for listening.

Jackie S.

#2 Heidi

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Posted 27 November 2006 - 01:52 PM

Hi Jackie,

I don't have any personal experience with this surgery, but here is some information on it from the Sclero website: Nissen Fundoplication.

I know of one member here who has had the procedure, so hopefully she will pipe in and tell you of her experience.

Do keep us posted on how the newest medication regime works for you.

Warm wishes,

Heidi



#3 Shelley Ensz

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Posted 27 November 2006 - 02:25 PM

Hi Jackie,

My husband, Gene, had the Nissen surgery over two years ago. The surgery itself was complicated because they had to extend his esophagus with part of his stomach, so that he can have room for either a right or a left lung at transplant time (because they only give one lung for people over 60). And he has a large liver hemangioma which halted surgery while they thought that over.

Despite all that, he was out of the hospital within two days and back to work within a few weeks. He hasn't had a whit of heartburn since then. He is also still able to burp and such; it is a perfect Nissen to not have heartburn but still be able to burp, since that cures the problem without causing more of them.

I must say, he had a truly outstanding surgeon at a center that has an excellent track record with Nissen's. That is extremely important, because complications of a bad Nissen can be quite severe.

He doesn't have scleroderma; and he only had the surgery because he had to have his heartburn cured in order to be eligible for a lung transplant, because there are worse outcomes in lung transplant patients who have heartburn.

I have GERD but have it under control, at least for now, with diet and lifestyle changes since I have eliminated things that worsen or trigger it for me (see our page on GERD). It's definitely worthwhile to make all the lifestyle and medication changes necessary to try to get it under control before relenting on the surgery. And if you do have the surgery, my suggestion would be to screen very thoroughly for the best hospital and surgeon before letting anyone lay a finger on you.


Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#4 kelowna52

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Posted 27 November 2006 - 05:12 PM

Thank you so much for your input, Shelley and Heidi. I have also heard good and bad things about this surgery. I wish I could get this Reflux under control, but it does run in our family, so I will definatey try to watch what I eat, but sometimes it just doesn't seem to work. As far as the chest pain goes, I hope the Reflux is what is causing that. I think, I will call my rheumatologist tomorrow and see if he can give me a referral to a Cardiologist. I was seeing one on a regular basis when I lived in California, so I probably should get set up with a new one here. I also have a Hiatle Hernia, so with the slow motility and reflux, I guess I should expect these things that are happening to me. Thanks again for your replies.

Jackie S.