Jump to content

Hang onto your hat: Sclero Forums Upgrade May 14-21, 2017!! The Forums will be offline for up to 4 days, and then will return with an entirely new look and feel.


Had SUP "session" Today

  • Please log in to reply
5 replies to this topic

#1 epasen


    Silver Member

  • Members
  • PipPipPipPip
  • 233 posts

Posted 04 February 2008 - 09:08 AM

I had my first Selective Ultraviolet Phototherapy session today.

I was in that light only one minute, and I already burned my face a bit.. It was all red and felt burned the whole day. It still does. I felt really dizzy and weird few hours after the whole thing. I don't know if it was the anxiety that was finally getting away from me, or was it the whole treatment itself.

All the sclero areas in my skin looked kinda reddish afterwards.. I don't know if that's a good, or a bad sign.

I was pretty worried when I heard that the tip of my shoulderblades won't get affected by the light, cause when I'm laying there, the whole weight is pressing those parts or something like that.. I have affected areas on both shoulderblades, and they are the parts that are in pain mostly. Well, if they can do something about the pigment on the bigger areas, I will be very positively surprised.

I wouldn have survived without my boyfriend who drove me there and to school afterwards. I was pretty scared to go by myself without anyone to support me. Luckily I didn't need to go alone.

Is it normal to feel dizzy or feel a bit sick afterwards?

Well that was just the first one. 14 to go, still...


#2 Peggy


    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 633 posts
  • Location:Minnesota

Posted 04 February 2008 - 11:05 AM

I'm glad all went well and really glad you had someone there for you. I hope these were successful and look forward to hearing if they were. Stay strong.

Warm hugs from a fellow Finlander.


#3 Snowbird


    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,007 posts
  • Location:Canada

Posted 04 February 2008 - 11:11 AM

Hi Emmi

Glad you had your boyfriend there to help you....I don't know anything about the SUP...but I am guessing that next time it might be a little easier for you now that you know what it's all about. Hope he can go with you to your next appointment too.
Sending good wishes your way!

#4 Sweet


    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,895 posts

Posted 04 February 2008 - 11:13 AM

Hi Emmi,

Thanks for letting us know how you did. It's all quite amazing me to actually. ONE minute made all of those changes. Sounds like it's going to work for you. I'm don't know if your reactions are normal or not. I hope someone that has had this done will answer that for you.

Hang in there girl!!
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#5 janey


    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 2,113 posts
  • Location:New Mexico

Posted 04 February 2008 - 04:28 PM

Sounds like a lot happened in the "one minute." Must have been pretty intense. I am sure you were naturally anxious during the whole thing and during the anticipation period. Well at least now you know what to expect so hopefully the pre-treatment anxiety will decrease. Good luck with you next treatments. We're pulling for you!

Big Hugs,
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#6 emmie


    Senior Silver Member

  • Members
  • PipPipPipPipPip
  • 319 posts

Posted 04 February 2008 - 06:19 PM


I think you are very brave to begin this new treatment. I'm so glad your boyfriend was able to drive you there and then to school afterwards. It will be great if this photo therapy is successful for you. Please keep us posted on your visits.

the other "emmie"