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Did you know that exercise increases inflammation in systemic sclerosis?


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#1 SuzetteSnow

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Posted 04 February 2008 - 08:50 PM

Hello everyone. I was diagnosed with Systemic Scleroderma in 1997. I have had problems with my heart, lungs and kidneys in 1998. I am having painful leg cramps now and have to use a cane. My fingers are curled under.
SuzetteSnow

#2 jefa

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Posted 04 February 2008 - 11:12 PM

Hello Suzette. So glad you have finally found this forum after so many years of dealing with the disease. Let me welcome you with a big hug. Please feel free to read all the topics and comment on the ones that interest you. I look forward to hearing more from you.
Warm wishes,
Jefa

Carrie Maddoux
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International Scleroderma Network (ISN)

#3 Sweet

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Posted 05 February 2008 - 04:01 AM

Hi Suzette,

Welcome to the Sclero Forums!! I'm am so thrilled you have joined us, but sorry it's due to your long term diagnosis of Scleroderma.

I look forward to your future posts and getting to know you better.
Warm and gentle hugs,

Pamela
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International Scleroderma Network (ISN)

#4 epasen

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Posted 05 February 2008 - 04:11 AM

Suzette, welcome. I hope you enjoy your visits here :) I know I do. Emmi

#5 Shelley Ensz

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Posted 05 February 2008 - 06:48 AM

Hello Suzette, and welcome to Sclero Forums! I'm sorry you've been so severely affected by scleroderma. How have you managed to keep your attitude so sturdy over all these years?
Warm Hugs,

Shelley Ensz
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Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#6 Staley

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Posted 05 February 2008 - 11:32 AM

Dear Suzette - I'm sorry to hear what you're going thru. Best Wishes, Staley

#7 Sweet

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Posted 05 February 2008 - 01:59 PM

Hi Staley,

I noticed this was your first post, so I wanted to welcome you as well. When you feel comfortable, tell us a little about yourself.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#8 Snowbird

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Posted 05 February 2008 - 02:01 PM

Hi SuzetteSnow

Sorry to hear you are having such an awful time. Like Emmi, I enjoy my visits here a lot too...it's a great place to ask questions.....everybody is so helpful and can help us learn a lot about this disease.
Sending good wishes your way!

#9 fancyface

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Posted 05 February 2008 - 03:21 PM

Hi Suzette!

I am new here also. The people are great. Everyone is very supportive, knowledgeable, and of course understanding :D

The chat sessions are great too!!!!!

Warm wishes
Mel

#10 SuzetteSnow

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Posted 05 February 2008 - 03:47 PM

Thanks for the nice welcome. I don't know how I keep a positive attitude. It's not always there. Hope to get to know everyone.
Suzette

#11 Cheri

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Posted 05 February 2008 - 04:04 PM

Hi Suzette,

I am new here too. There are so many people who are so knowledgeable and helpful. When I first found out what I had, I was really scared and had never heard of sclero before. Everybody is so supportive of each other, and so warm and friendly. I guess if we have to have a disease, at least we have one where you can meet so many wonderful people. So welcome. You have found a warm, supportive place to be.

Big hugs,

Cheri

#12 WestCoast1

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Posted 05 February 2008 - 04:50 PM

Hi Suzette, I wanted to say welcome and I hope that you find lots of helpful information and support here!
*WestCoast*

********

#13 rlbrussell

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Posted 05 February 2008 - 06:24 PM

Hi Suzette,

I justed to join in and say Welcome too. My fingers are curled under as well. I have really had to learn patience and creative ways to accommodate.

Rosalinda
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dx Jan 2006

#14 jaxs

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Posted 06 February 2008 - 12:25 AM

welcome
i was dignosed two years this july, im sorry to hear that u are so bad but there are lots of gd people here with gd advice ....i ofen feel so lonely in my life but finding this site has made me relise I am not alone
very warm hugs from jaxsx
live life for today and not for tomorrow

#15 susie54

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Posted 06 February 2008 - 03:14 AM

Hi Suzette,

Just wanted to hi and welcome. Hope your legs are feeling better. Sorry you are dealing with so much. Susie54

#16 emmie

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Posted 06 February 2008 - 11:00 AM

welcome Suzette,

I'm glad you found us. I hope you find lots of help and information here. I hope you start feeling better soon.

emmie

#17 Michelle2

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Posted 08 February 2008 - 08:25 AM

Hi Suzette~

Welcome and I'm glad you found us. We are a very supportive and loving group. Please visit regularly your not alone!

big hugs!
Take care and stay warm,

Michelle