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16 replies to this topic

#1 jaxs

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Posted 05 February 2008 - 03:04 AM

i woke up last nite and my hands felt so numb I was very aware of them ,they also felt huge, I then had pins and needles in both hands it was just so strange today my hands are very shiny and tight more than they have been in ages anyone get this feeling,
jaxs
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#2 Sweet

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Posted 05 February 2008 - 03:59 AM

Hi Jaxs,

Has this problem gotten better once you were up an awake? I wonder if you were just laying on them wrong and lost circulation, or if you have some sort of pinched nerve.
Warm and gentle hugs,

Pamela
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#3 Buttons

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Posted 05 February 2008 - 04:39 AM

Hi Jaxs

I have this problem frequently at night time & have had the nerve conduction tests done which have shown I have Carpel Tunnel Syndrome in both hands.
My hands have also felt more tight & the skin is shiny.

I sometimes have to hang my arm out over the side of the bed to ease it.

Perhaps you should visit your doctor.

Jensue

#4 miocean

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Posted 05 February 2008 - 06:19 AM

That is exactly how I felt when my sclero first started. I would wake up at night with pins and needles and aching hands and arms. I would have to do arm circles to get it to stop. Eventually this went away. I hope you get some relief, I know it is no fun.
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#5 aniwallar

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Posted 05 February 2008 - 12:59 PM

Dear Jaxs:
I know exactly what you are talking about. I have the same thing. For me, it has never gone away, I just have gotten used to it. I still wake up in the middle of the night and I have to move my arms and hands to make them better. I had the nerve conduction test done and it showed carpan tunnel syndrome (sp). I also have the same symptoms in my feet.

I recently started mentioning this to my doctor again to see if I can get the test done again (I had it done about 2 years ago). You should do the same. Ask your doctor to send the test and take it from there. They can also do MRI to see if it has anything to do with your spine.

I hope this helps you.

Stay warm,

Ani

#6 jaxs

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Posted 06 February 2008 - 12:22 AM

thansk for the replies , I had my hands across my chest when I woke up , so I dont think I was lyeing on them , but I also get it in my feet also I will mention to my doctor just another problem in a long list lol,,,,,seems to be getting more than less theses days thanks again jaxsx
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#7 KarenL

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Posted 07 February 2008 - 01:29 AM

Hi Jaxs,

I get it too, and I'm not sleeping on my hands either. I also get it when I have my arms on the arm rests of a chair for too long. I have no answers, just commisserating. :(
Karen

#8 CraigR

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Posted 07 February 2008 - 09:54 AM

I've had this problem for many years. Vitamin B (especially B6) seems to help somewhat. It is always worse when the hands have had a lot of physical stress, such as gardening.

Craig

#9 Snowbird

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Posted 07 February 2008 - 12:41 PM

Hi all

My 2 cents worth....I have had this 3-4 times lately too...I asked the rheumatologist about it just yesterday....he said it could be carpel tunnel syndrome....if it keeps up or gets more frequent that I should have my family doctor send me for some nerve test....
Sending good wishes your way!

#10 Michelle2

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Posted 08 February 2008 - 08:51 AM

I've had this happen before as well. I think I pinched something while I was sleeping. Boy it sure is a weird feeling though. I haven't had it lately. If you continue to experience this be sure to tell you dr about it.

keep warm!
Take care and stay warm,

Michelle

#11 aniwallar

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Posted 10 February 2008 - 12:02 PM

I was told it is carpan tunnel syndrome. I see other people have been told the same thing. Now, my question is, What about the pins and needles on my feet?

Ani

#12 Snowbird

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Posted 10 February 2008 - 01:36 PM

Hey Ani

I had it only once in my left foot (but it was during the daytime)...and that was after I had spoken to my rheumatologist about my hands....or I would have asked that too....maybe someone here can tell us more? There must be some other explanation as well. Like you, I think it sheds another light on the subject too. :unsure:
Sending good wishes your way!

#13 Peggy

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Posted 11 February 2008 - 07:10 AM

This is how my sclero started - I had what they call "peripheral neuropathy" of my hands and feet. It started as a "tingling sensation" like pins and needles and then developed to them going numb. Then when the neuro couldn't figure out after extensive, extensive neuro tests he had me see the rehumo doctor who diagnosed sclero after all of her testing. So I think it's part of the disease. What they put me on was neurotin (gabapentin - sp?) or lyrica and this has helped. The numbness of my feet gets so bad that it crawls up my let up to my knees in numbness and can be so bad I can't feel my feet. Hope this helps.

Warm hugs from Minnesota.

Peggy

#14 aniwallar

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Posted 12 February 2008 - 12:31 PM

Hi Peggy:

I'm going to have to mention this to my doctor again. There are so many things going on with us that sometimes it feels weird to bring another symptom to the table, so you just kearn to live with it and go on.
I also had neurological test done because they were looking for peripheral neuropathy but it didn't come up. It would be nice to take something that will make the tingle go away.
Ani

#15 jaxs

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Posted 13 February 2008 - 11:30 AM

since the pins and needles I have been kept awake (even tho I sleep badly) with very strong pains in my arms and legs , that painful I could cry, it feels like I have been lifting very heavey things and my arms are so heavey and achen and my legs feel the same like I have run a marathon, I have been really tired too more than I have been in a long time , feels like my brain is going to burst, and my body just wants to give up, itching too more than usual, I hate moaning ( but thats all I seem to do theses days ) and dont know if I should phone my doctor or wait till I see her in march ? jaxsx
live life for today and not for tomorrow

#16 jefa

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Posted 13 February 2008 - 11:49 AM

jaxsx, call your doctor and at least ask whether you should come in sooner. Appointments are set to impose some kind of order, but we have to realise when the situation calls for more immediacy. As your signature says, live for today, not tomorrow.
Warm wishes,
Jefa

Carrie Maddoux
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#17 Sweet

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Posted 16 February 2008 - 09:02 AM

I agree with Carrie, you need to call your doctor.

Would love an update when you have time.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)