symptoms of pulmonary hypertension
Posted 11 February 2008 - 11:46 AM
Posted 11 February 2008 - 04:40 PM
I found this article on MedicineNet.com about edema that you might be interested in reading.
What causes pitting edema?
Here's an exert: Edema is caused by either systemic diseases, that is, diseases that affect the various organ systems of the body, or by local conditions involving just the affected extremities. The most common systemic diseases that are associated with edema involve the heart, liver, and kidneys. In these diseases, edema occurs primarily because of the body's retention of too much salt.
Commonly the first symptom of PH is shortness of breath. You mention that you don't have that so hopefully, that isn't the problem. It's good that you are getting these tests done so you can see IF anything is going on and to get a baseline for future tests. Please let us know how they turn out
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Posted 14 February 2008 - 09:02 AM
My first PFTs were remarkable - 125 to 210% of expected. My primary care physician said that there was no way that I had a problem, and said that I must be breathless because I was out of shape (even though I was at ideal weight, walking a few miles every day, swimming vigorously 5 nights a week, and working in my yard...)
Pulmonologist said that the high PFT figures pointed to a problem - that the body was overcompensating to get the O2 it needed. But he told me that it was so mild that I shouldn't notice it. My protest were met with the usual doctor arrogance, I.e., if your symptoms don't match the doctor's diagnosis, you must be delusional...
I didn't get a good diagnosis until I went to one of the best centers for PH - UC San Diego. So be sure you're at a top center for PH treatment - since it's a rare disease.
Echo can give them clues about the situation - but you really should find a good pulmonologist and get a right heart catheterization. This is the only way to truly find out you pulmonary blood pressure. I just had my third one last week. They insert a wire-like thing into a vein, and then up into the right side of the heart. Worst part is a little sting from the injection of local anesthetic. No big deal really.
Posted 14 February 2008 - 09:13 AM
There is a good listing of PH centers to be found at www.phcentral.org.
Posted 14 February 2008 - 12:54 PM
Posted 15 February 2008 - 12:26 AM
Hope all goes well with your tests and that it's not to long before you get the results.
I've been getting breathless for a while & my rheumatologist referred me to cardiologist because my first echocardiogram showed some 'stiffening' of the heart. She did stress test which she said was fine except she thought I became to breathless to quickly so now go for a second echocardiogram on Monday. She also said she thought it may be my lungs so will just have to wait & see.
I also get kind of dizzy, fairly frequently along with a numbness in the side of my neck & a tingling in my tongue, it is weird! So am going for an MRI scan today. But don't see rheumatologist until May for the results!
Do take care Lizzie
Posted 15 February 2008 - 03:11 AM
You have got a long time to wait for results. Did you have to wai long for the MRI appointment in the first place? How often do you get to see your rheumatologist?
I will get to find out results pretty quickly (unless they lose them like last time!) as I am in for a week of Iloprost early March (going in every 8 weeks at the moment). I really am not very concerned as at the gym I can manage walking on the treadmill at quite a steep uphill gradient easily for 15 minutes or more without getting breathless. I get the impression that being breathless would precede the leg swelling if were PHT.
Hope all went well with the MRI
Posted 15 February 2008 - 06:22 AM
My husband thinks it's ridiculous that I have to wait so long for results.
Hope the iloprust goes well for you, I had it last May but it didn't help much so they're not doing another.
Posted 15 February 2008 - 01:51 PM
Posted 15 February 2008 - 02:22 PM
Can't you call your rheumatologist to get the results over the phone? May seems like an awfully long time to wait for results.
Good luck on the results.
Posted 15 February 2008 - 11:44 PM
I noticed that this is your 1st post - wlecome to the forum.
I can undertand why your rheumatologist doesn't prescribe CCBs, in afct a lot of people can't tolerate them. I have pretty severe raynauds and the CCBs do make a difference and in fact don't actually seem to make much difference to my BP - still around 130/80 - might even be hypertensive without them! However if eco , PFTs show no problem am going to suggest to rheumatologist that could try reduce/ stop the CCBs and see if it makes a difference. My other thought is thatthe swelling/itching may be a precursor to skin thickening - there are definately some cahnges in skin texture there.