Jump to content


Do you want up to date information about Scleroderma? Check out our Medical pages at www.sclero.org for all your Scleroderma questions!


Photo

Saw Urologist Yesterday


  • Please log in to reply
5 replies to this topic

#1 barefut

barefut

    Platinum Member

  • Bloggers
  • PipPipPipPipPipPipPipPipPipPip
  • 1,159 posts
  • Location:NW Washington

Posted 11 February 2008 - 11:15 PM

Well I am back to being a medical mystery (aka hypochondriac?)

Turns out my kidney area pain is not kidney related at all. No UTI. No kidney infection and the stones I have are small and not blocking urine flow so there is no kidney explanation for the pain.

I've been pain free (in that area) for a little over a week now. I don't know what in the world it could be. I have had "muscular" suggested but it really feels deeper to me. But what do I know? Maybe it is muscular. Maybe it's just sclero messing around. I'm just glad it's gone.

Uroligist has ordered a bone density test. I think that may be overkill but again what do I know? I just think if rheumatologist has not ordered one yet then it's not necessary. He also suggested calcium and vit D but isn't the jury still out on that for us sclerodermians? He did say check with rheumatologist on that.

When I was in the hosp for observation my white cell count went up "for no aparent reason" so Uro also wants another count. He's being very thourough (sp? :blink: ) I do like that.

Well, 2 am and not sleeping again. :angry: I'm wondering if I do have fibro?! :unsure:

Good night all,
Barefut

#2 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,261 posts
  • Location:Minnesota

Posted 12 February 2008 - 03:30 AM

Hi Barefut,

Sorry but you don't qualify as a hypochondriac. For that I think you'd have to remain convinced you were dying of kidney disease even after all your tests came out okay, and you just don't seem to possess the dedicated fervor and inattention to medical logic which that requires. huh.gif

Muscular pain in that area can go really deep, as anyone who has ever wrenched their back can tell you. I did in my back royally one time and the spasms it caused made it feel as though my bladder was going to burst. So if all the plumbing has checked out okay and the pain has gone away, chalk it up to just one of those things. Stuff happens and sometimes it doesn't stick around long enough or get pegged early enough to garner a firm diagnosis.

Keep in mind that I have no medical training at all, of course. But it's my understanding that calcium and vitamin D are both fine and good for scleroderma patients. Dietary calcium is not related to the condition of Calcinosis (calcium deposits) so no worry there; and vitamin D is essential for proper immune system functioning; in fact a lack of it may even cause or worsen some autoimmune diseases. See Causes of Scleroderma: Vitamin D Deficiency. And you should at least have a bone density test for baseline purposes.

You can review fibromyalgia symptoms and diagnosis information on our fibromyalgia page. Or just go straight to Sleep Disorders and Scleroderma, depending on how tired you are. cool.gif


Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#3 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,261 posts
  • Location:Minnesota

Posted 12 February 2008 - 03:48 AM

Hi Barefut,

You're on prednisone, aren't you? Did you know that it can cause muscle pain and back pain, among about a thousand other things? It can also cause sleeplessness. Not to mention sudden kidney failure and pneumonia in scleroderma patients; only very low doses (10mg I think) for less than 2 weeks would be used in situations where nothing else could be done, and even that is playing with fire for scleroderma patients. See our infamous prednisone link. And perhaps review the information with your medical team, if you see fit.


Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#4 debonair susie

debonair susie

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,638 posts
  • Location:(United States)

Posted 17 February 2008 - 12:07 PM

Hi Shelley,

 

I'm playing catch-up again after just getting back from vacation and I came across your thread. Very thought-provoking... for me! Everything you put in your thread was very interesting, to say the least!

Shortly after my diagnoses, I saw a young rheumatologist who wanted... desperately, to put me on Prednisone. When I refused, he wasn't happy with me -- to the point of no longer wanting me to be his patient! I was pleased then, as I didn't want a doctor who felt he had the right to dictate my health decisions/medications I should take. With this information, I'm really pleased I trust myself enough to make the decisions I do, concerning my health. I don't jump into anything without feeling comfortable about it.

Hugs,

 

Susie


Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#5 debonair susie

debonair susie

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,638 posts
  • Location:(United States)

Posted 18 February 2008 - 07:43 AM

Barefut, I hope you got some sleep since you started this thread.

No, you are not a hypochondriac, though it sure feels like it when the medical folks are thrown into a tailspin. The tough part, I see talked about here often... is some doctors
just can't seem to admit when they are stumped!

I am keeping my fingers crossed, that this can be figured out soon... it weighs on a person heavily, to say the least.

Soft Hugs,

Susie


Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#6 janey

janey

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 2,118 posts
  • Location:New Mexico

Posted 18 February 2008 - 10:04 AM

Barefut,

I'm so sorry that they were unable to determine the cause of your pain. UGH!! I am however, thrilled that's is gone away. I hope the pain does not return!

Everything I've read supports what Shelley said about calcium and vitamin D. Because I've been on prednisone for about 4 years (2.5 to 5 mg / day), I've had two bone density scans. Prednisone can cause bone loss. Fortunately, all my results were above normal so the rheumatologist said to just keep doing what I'm doing. Since I'm no longer able to do weight bearing exercise, I do supplement with calcium enriched soy milk, plus I get more calcium in all the anti-acid chewables I take. I also supplement with vitamin D since I've tested low on vit D. Vit D helps the absorption of calcium. So based on the advice of your doctor and whatever your bone density results are, it is something you might consider. BTW - if you've never had a bone density scan, it's easy breezy. You just lay there for a few minutes and let the machine scan you.

I hope you're getting some sleep.


Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)