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Biomarker for Diffuse Scleroderma skin has been discovered!


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#1 miocean

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Posted 16 February 2008 - 05:26 AM

I went to my sclero specialist yesterday. My skin score has gone from 27 back up to 43. I have been complaining of dry, tight, itchy skin for a while now. She wants me to start injecting enbrel. Is anyone familiar with this? I have to have a TB test first. I'm a little nervous about the whole thing.

I am also a little overwhelmed. By the time I left her office I had 8 prescriptions for meds and tests! It will take me a while to get through it all.
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#2 janey

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Posted 16 February 2008 - 07:22 AM

M -
Eight prescriptions and tests is a lot to leave with! Did your doctor take the time to explain it all to you or at least give some information? I have no personal experience with enbrel. It's a new biologic agent that was approved by the FDA in 2004 for certain conditions. Here's a little information that we have on it on our DMARDS page (Enbrel).

Before starting any medication, please check to make sure that it doesn't interfere with others you are already taking. My rheumatologist (who I highly respect for staying up-to-date) was talking about putting me on a medication that I knew interfered with the Tracleer I'm taking. I had read it in the Tracleer information sheet. Tracleer is so new that he was unaware of the conflict. He did look it up and changed his mind and put me on another med.

Please keep us informed on how you are doing and how your tests turn out.

Big Hugs,


Janey Willis
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#3 kellyA

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Posted 16 February 2008 - 07:38 AM

What are skin scores, I've had sclero for years now and I have no idea what they are and how they are scored....

#4 miocean

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Posted 16 February 2008 - 08:49 AM

My dr. takes my skin score by gently squeezing my skin in various places on my body and assigning numbers to the hardness. Mine were mostly twos and threes this time. Then they are added up to get the final number.
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#5 Snowbird

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Posted 17 February 2008 - 02:10 PM

Hi

I take it that means, the lower the skin number, the better then, is that right??

Interesting to me too because I don't know anything about it either. What ratio do they normally use to measure our skin (what's good, not so good, etc)?

Thanks.
Sending good wishes your way!

#6 Kamlesh

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Posted 17 February 2008 - 06:47 PM

Hi Miocean,

Getting 8 new prescriptions in a single visit is awful. I hope majority of those are tests. One suggestion I would have for you, go over side effects of all your medications and make notes. Monitor any side effects carefully when you start medications. Sometimes doctors keep on adding medications and then you may be taking more medications to overcome side effects. At one time, I was on 21 medications and working with my rheumatologist we cut down to essential 11 medications.

You need to own your health issues and more educated you are with your disease and medications, better off you will be.
Kind regards,

Kamlesh