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Biomarker for Diffuse Scleroderma skin has been discovered!


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Had echocardiogram today


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#1 Buttons

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Posted 18 February 2008 - 09:58 AM

Had the echo done today and apparently my mitral valve is showing regurgitation. I don't see the cardio consultant until 2nd week in March. So now wondering if this is what is causing me to get out of breath when I exert myself. I think it's only mild but is this caused by sclero? I have been diagnosed with the Limited form.

I must admit it sounds a bit scary to me. I have also been suffering from a lot of pain in my back, sort of behind my right shoulder blade & am now wondering if this is linked in some way.

Does anyone else suffer with these problems?

#2 RememberingToSmile

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Posted 18 February 2008 - 10:18 AM

My echo shows mild regurg of both the mitral and tricuspid valves. My doctors aren't worried about, just watching for any changes through the years. Also, they say my shortness of breath, fatigue is not related to the valves - but rather my diffuse sclero and myositis. I am responding to medications and many of the the symptoms are easing.

I am interested to hear what your doctor tells you. Was the systolic pressure and LV size.function okay? Thoses are what my Dr. watches closely.

-RTS

#3 janey

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Posted 18 February 2008 - 06:30 PM

Jensue,
All my echo's have shown at least some amount of mitral valve regurgitation. It's increased a little over 5 years, but still not enough for my cardiologist to be concerned about. When I first saw it, I asked and he's comment was that most everyone has some regurgitation and with the advanced equipment used today, it shows more often. Yes, sclero can cause it by hardening of the valve tissue. A lot of my regurgitation is due to a pacemaker wire going through to mitral valve opening to the right ventricle. Still not enough to be concerned.

I'm certainly no doctor, but I do doubt that this is what is causing your shortness of breath. I would continue to pursue the cause of that.

Big Hugs,
Janey Willis
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#4 Clementine

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Posted 19 February 2008 - 03:23 AM

Jensue,
Sometimes I have those cramps in my shoulder blades too and my husband thinks I am insane....because honestly, I can relate mine to gas. Lovely, I know, but when I feel bad in my GI system, I get these should blade cramps.

I also have the mitral valve issues. I was concerned too, but then I read a lot about it and it is common. I wouldn't say it's something to not keep an eye on, but I did find out it isn't too weird to have this problem.

I hope you get your shortness of breath issue resolved. I wonder what it is. Please keep us informed!

Love, love and love.
Tangelo

#5 Sweet

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Posted 19 February 2008 - 06:01 AM

Hey Jensue,

Sorry to hear you have regurg. I also have it. And yes for me, it can make me out of breath quite quickly!!! I see Janey gave you a great link for your review, I hope it's helpful.
Warm and gentle hugs,

Pamela
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International Scleroderma Network (ISN)

#6 lizzie

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Posted 19 February 2008 - 08:24 AM

Hi Jensue, I don't ( as far as I know) have Mitral regurgitation. However I have a friend who has SSc and has it - She is a Dr - and she isn't too concerned about it and doesn't have breathlessness. Hoepfully your dr will be able to tell you more when you see him/her - try not to worry too much until then.
Lizzie