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skin tightening

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#1 luvbnmom3


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Posted 18 February 2008 - 11:59 AM

Hi all, I haven't been here in a while or posted in a while, been going back to school. I haven't been diagnosed with Sclero, but have had Raynaud's with irregular & dialated nailfold capillaries & a high RF test & negative ANA, that was 2 years ago. Haven't had any ANA tests since. I of course have a gazzilion other rediculous symptoms. One doctor thinks I have Myasthenia Gravis (labs were negative though), another just ran an MRI for MS, but I don't think either of those explain all the symptoms I have.

Anywho, I was wondering, in the beginning, is the skin tightening gradual in a way that you have days where it's tighter than others? I have had swollen hands & fingers for over a year, they're much worse in the morning when I wake & if I don't have my wedding ring on before I go to bed (sometimes my hands are too swollen to wear it) then I definetly will not be able to get it on in the morning.

For example, I notice sometimes when typing that the skin on my hands gets tighter after a while, so much so that I can't flatten my right hand out as much as the left AND my skin is shiney & tight, looks polished, & it's my entire hand, over part of my wrist.

I also notices lately that sometimes my face feels tight up around my temples, like too tight of a pony tail. Sometimes my upper lip feels tight and the other day, I went to take a bite of a donut & it just crashed into my lips...as in, it wasn't going to fit!

But, this tightness seems to come and go, it's not that tight all the time.

#2 ladyhawke


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Posted 18 February 2008 - 04:21 PM

Hi, I also find the same thing....at times my skin feels really tight on my hands, fingers are shiny and it's hard to flex my hands....same with my feet, hard to flex. My face sometimes feels like my mouth won't let me form my words right. And yes it seems to come and go. I haven't figured out what "triggers" it or why one day is worse than another. Weird....hope that someone else has more to add - Lisa
Life is NOT meant to be a struggle. Life is meant to be joyously abundant.

#3 janey


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Posted 18 February 2008 - 04:49 PM

Hey love,
Please bring these new symptoms up with your rheumatologist. If you can, take pictures because we all know that symptoms are like the clanking in the engine. When you get to the doctor's, the symptom is gone. It's the "shiny and tight" that preceded the hardening on me. Also I did have small mouth for a while (about 6 months) where I couldn't open my mouth wide enough for many foods.

If you feel your hands getting stiff you might start doing some hand exercises -
open/close you fingers (make a fist then stretch the fingers as open as possible)
Press your hand flat on the table. You might have push on the knuckles to get contact with the table
Then just massage each finger, one at a time, pulling and stretching straight.

Please keep us informed on what you find out and how your doctor visits go.

Big Hugs,
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#4 anonym4444


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Posted 18 February 2008 - 08:15 PM


same here...I also feel that it's differnt varieties of "tight"....but: I do think, that this is not yet skin tightening or thicker skin...it's so far "ONLY" swelling and that is known to be worse in the morning (yes, the wedding ring phenomena I also know...don't wear it anymore as it wouldn't go off in the morning...at night I can put it on - although not as easily as before.

And yes, also with typing sometimes the swelling gets worse and the fingers feel a bit more stiff. On the other hand, if I stay in the cold and the fingers are cold (I have no Raynaud yet, but definitely the fingers stay cold longer), the swelling seems to "shrink" and actually the finger tips look like there is wrinkling skin (like after sitting in the bath tub) with too little material below the skin....

I have no ANAs (yet?), have had my "start" 10 month ago, have no Raynaud (yet?) but do have Sicca (dry mouth) and do have tendon problems especially in the spine area (crackling noises)


#5 ladyhawke


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Posted 19 February 2008 - 03:24 AM

Me again....just another note here....I started yoga awhile ago, I can only do "my version" of yoga. My instructor is wonderful and doesn't push at all, just shows different stretches etc. I have found it really helps alot. We do the hand stretches and leg stretches. Flexing the feet, I find my skin feels tight from the top of my foot up my leg. I do physio twice a week and yoga twice a week and it really helps alot. After a yoga class my skin doesn't feel so tight. - Lisa
Life is NOT meant to be a struggle. Life is meant to be joyously abundant.

#6 Piper


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Posted 19 February 2008 - 04:20 AM

Hi, Maybe I'm not crazy after all. Mine comes and goes also, worse in morning. My palms and soles of feet are the worst and I can't open my hand flat or spread my fingers apart in the morning. Later in the day I look at my hands and they look almost normal although I still don't have complete range of motion. I have raynauds, + ANA for 5 years, tons of symptoms and my Dr. says I have a scleroderma esophagus. I still don't have a diagnosis though and some days I think, "what's the matter with you, it's all in your head"! I asked the rheumatologist why I hurt all the time and he said, " some people just hurt"! Like it's normal to be in pain. :rolleyes:
Hugs, Piper

#7 peanut


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Posted 19 February 2008 - 04:24 AM

I had swollen and puffy hands years before my diagnosis. A rheumatologist told me I've had sclero for 12 years perhaps... 10 non-active and 2 active. During the non active years, when I didn't think anything was wrong with me I remember waking up with super swollen hands.

If you hands stiffen try taking a break and gently stretching them once an hour or taking some Tylenol. That's what I did when I was working and using the computer a lot. Paraffin wax baths also help increase mobility.


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my HMO makes me wear a helmet...

#8 mando621


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Posted 19 February 2008 - 07:52 AM

Does anyone get a funny feeling in the tip of your nose? Every once in a while my nose seems to get tingly numb feeling. It goes away after a while. I hate to even mention it to anyone since people look at me funny when I say I'm having trouble swallowing, and it feels like the food is going up my throat.

I've had to quit wearing most of my rings. At night I've actually been awakened by the pain in my fingers where my rings were cutting into me. I keep my wedding ring on, but same problem. I can wear it all day except morning it is very tight. I'm wearing a rather large ring on my right hand because it isn't too tight in the morning.

#9 lizzie


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Posted 19 February 2008 - 08:16 AM

I too have had the skin tightening on and off sensation. just as I've convinced myself that is begining to progress more rapidly - it seems to stop , then almost as soon as I have convinced myself I am imagining it, it starts again. Cold weather definitely makes it feel tighter. For me the only reliable indicator that an area of my skin is about to thicken is when it itches -this seem to be followed fairly quickly by thicker skin.

#10 luvbnmom3


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Posted 19 February 2008 - 11:21 AM

Thanks a ton for the info. My Neuro just called, actually, my Primary did, with the results of an MRI the Neuro ordered (looking for MS again) and they said I have sinusitis & are calling in a prescription for me. I just chuckled to myself when I got off the phone because I got sick the day AFTER the MRI was scheduled & had the MRI done about 2 weeks after that. The reason it made me chuckle was because when I saw the Neuro, I told him that when I lay down, saliva sits in the back of my throat & goes up my nose & burns like I just choked on pool water, chlorine stuff you know? Anyways, I'm certain that's where the sinus infection came from.

Well, I see a dermatologist Dr on Friday for my toe nails, but I'm hoping that maybe she'll be able to figure out some of this other stuff, if my skin gets tight again like that I will get a picture to show her. I've had it for a year now where it would get tight just over my knuckles on my right hand, now the left hand does that & the right hand is the one that gets completely tight, sunken in in the center of my palm.

OH, the cold temps, that too can decrease swelling & also make my finger tips look just like I got out of the tub. One morning, I stuck my fingers out my bedroom window & flicked snow off the window sill to see if it'd bring some of the swelling & aching down.... sure did!