new and where do I go next?
Posted 19 February 2008 - 02:30 PM
Posted 19 February 2008 - 04:48 PM
So how many cats to you have?
You asked what type of doctor deals with autoimmune diseases. That would be a rheumatologist. They specialize in a variety of autoimmune diseases. My rheumatologist is my "team leader". Then I have a pulmonary doctor and cardiologist, both of whom always consult my rheumatologist before prescribing a new medication or procedure. Here is a link to our scleroderma specialist page. You can find a rheumatologist in your area by clicking on the appropriate link under ISN Guide To Scleroderma experts and Centers.
Please keep us up on what's happening. BTW - Welcome! We're glad you've join us and hope we can help out
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)
Posted 19 February 2008 - 06:53 PM
I'm so glad you've joined us, but sure sorry it appears you have CREST. Janey gave you a couple of great links and I agree whole heartily with what she said.
Look forward to knowing more about you!
Posted 20 February 2008 - 06:28 AM
"apparently confusing" condition ....at least confusling to the doctors I have already seen...Because I have pn I was sent to a neurologist, with the vasculitis to a vascular specialist, because of the colitis to a gastroenterologist.....etc...you get the drift...no one is putting "me" together...I "talked" to a dr. on a med chat group...he agrees with you...He said I should get a SLE test first...and I should have a parathyroid scan to rule out hyperparathyroidism....I have a appt with my general practitioner Mar. 3rd...and I am going to ask him to order these for me...then see if he will make a appt with a rheumatologist for me....He had mentioned seeing a immunologist because of the symptms of thyroid( they are similar to CREST....I also tend to have hypercalcemia .another sign of crest..(the lumps in my forearms, he said)...so we have a start....
I just have one beautiful long haired black cat who is the love of our life...she seems to know when I don't feel good...she comes on my lap, puts her head on my chest and "sings" me a song....animals are so psychic.....thanks much..and have learned a lot here already and feel your comradship....
Posted 20 February 2008 - 01:30 PM
My two cents as well...I'm glad you joined us too and I think you will find comfort here! I have found the people on this site have a great insight to this disease (and some others as well, I might add). Good luck with your tests.